Thalidomide Voice

01/03/2026

REMINDER - Zoom call 4th March 6pm UK time. Check your emails for the link and the agenda. If you haven’t received anything then DM please or email at info@thalidomidevoice.org. Remember that together we are stronger.

12/02/2026

We held a successful inaugural meeting of the All Party Parliamentary Group (APPG) for Thalidomide last week. The group is now officially established as our voice in Parliament and is chaired by Rosie Duffield MP. Twelve MPs attended the meeting, despite it coinciding with the start of the Mandelson Debate, demonstrating their strong commitment to the group. We thank everyone for their support.

12/02/2026

We held a successful inaugural meeting of the All Party Parliamentary Group (APPG) for Thalidomide last week. The group is now officially established as our voice in Parliament and is chaired by Rosie Duffield MP. Twelve MPs attended the meeting, despite it coinciding with the start of the Mandelson Debate, demonstrating their strong commitment to the group.
If any one wants to sign up to support us you can do so at www.thalidomidevoice.org

14/01/2026

SUPPORTERS - today you will have received an email from the Trust regarding the Diageo review taking place this year. We have also sent you an email - please check your inboxes. Please let us know if you haven't received anything.

06/01/2026

Supporters Zoom Call Wednesday 7th January at 6pm UK time. Email info@thalidomidevoice.org for zoom link.

06/01/2026

Agenda for 7th Jan 2026 at 6pm

1. Welcome
2. Arising matters from last meeting
3. The compensation report - General discussions about your views, most relevant, how much to get etc
4. Diageo’s Asks
5. Financial status Of Diageo
6. Data breach at TT
7. People’s Stories
8. AOB

02/01/2026

Happy New Year to all our Supporters and Friends 🥳.
SUPPORTERS - please check your inboxes and let us know if you haven’t received anything. We would really love to hear what you think - here or email at info@thalidomidevoice.org

06/12/2025

Due to the pressure of Christmas and work loads we’re delaying the supporters meeting until after the new year. We’ll have a new date soon.

08/11/2025

We are aware about the online article in the Mail which suggests that Diageo could be a very attractive company to be taken over.

This might have massive ramifications for our community both in terms of opportunity and also of risk.

When Nick Dobrik and Phil Williams were on the NAC they had insisted on the Trust formulating a contingency plan in case of such an eventuality.

Firstly this must be dug up from the Trust’s archives.

And secondly we hope and expect that the Trust will be in touch with all the beneficiaries with a communique reassuring us about the immediate steps they are taking to mitigate the circumstances.

Lastly the ask of Diageo must include all future income stream payments are placed in an escrow account that guarantees those payments being made to the Trust.

29/10/2025

ENGLISH THALIDOMIDERS ONLY - HAVE YOU COMPLETED THE HEALTH GRANT EVALUATION SURVEY? The joint team from RAND Europe and the University of York are undertaking an independent evaluation of the Health Grant (for the English DHSC), and are currently conducting a survey of beneficiaries living in England. Agne and Liz who are leading the research would like to thank everyone who has already completed the survey and let you know that YOU CAN STILL TAKE PART. You can complete the survey in three ways:
1. online by following this link - https://www.smartsurvey.co.uk/s/healthgrant/
2. by telephone - call Liz Newbronner on 01904 321630;
3. and by post - to request a survey form please ring Liz or contact the research team at sociology-thalidomide-study@york.ac.uk
smartsurvey.co.uk
The Health Grant Evaluation survey 2025

Please take a few minutes to take our survey.

29/10/2025

Please take a few minutes to take our survey.

07/10/2025

ENGLISH THALIDOMIDERS ONLY - HAVE YOU COMPLETED THE HEALTH GRANT EVALUATION SURVEY? The joint team from RAND Europe and the University of York are undertaking an independent evaluation of the Health Grant (for the English DHSC), and are currently conducting a survey of beneficiaries living in England. Agne and Liz who are leading the research would like to thank everyone who has already completed the survey and let you know that YOU CAN STILL TAKE PART. You can complete the survey in three ways:
1. online by following this link - https://www.smartsurvey.co.uk/s/healthgrant/
2. by telephone - call Liz Newbronner on 01904 321630;
3. and by post - to request a survey form please ring Liz or contact the research team at sociology-thalidomide-study@york.ac.uk

Please take a few minutes to take our survey.