UK MS Register

24/03/2026

The Register team have just returned from the Multiple Sclerosis Trust conference in Leicestershire.

As in previous years this proved to be a fantastic opportunity to share the work of the Register and connect with a wide variety of people within the MS world. We were proud to showcase our research though our posters and presentations, and welcomed so many engaged visitors to our stand. 👋

It was also a pleasure this year to share a stand with the MS Pregnancy Register😊 Thank you MS Trust team for another great conference! 🎉

24/03/2026

Patient registries may sound technical, but they are actually one of the easiest ways people living with a long-term condition can get involved in research. By sharing their own experiences of everyday life, either directly or via their healthcare team, they can help researchers find answers to ques...

20/03/2026

Congratulations to UK MS Register senior analyst Dr Jeff Rodgers who is today showcasing his work at Brain Conference 2026 in London🙌

Jeff has been studying Register data and is presenting a poster titled 'Emulating a pseudo-trial of Baclofen and Sativex for MS spasticity using the UK MS Register'.

We could not do this work without our amazing community of people with MS who contribute to the Register - thank you 🎉🥰

19/03/2026

Did you know that the UK MS Register host the expression of interest for the Octopus trial? This is a revolutionary trial that will transform the way we test treatments for Progressive Multiple Sclerosis (MS).

You can read the latest update from the trial here:

We know many of you have been waiting a long time. We are very grateful for your patience and for staying with us. Your support helps make this trial possible. Thank you to those of you who gave us feedback via the Octopus Waiting List Survey. We are currently reviewing your feedback and will use

13/03/2026

Great to be asked to be involved in this blog from the European Committee for Treatment & Research in Multiple Sclerosis team!

Follow the link to read what Register lead Dr Rod Middleton has to say about patient registries and their importance in real-world research.

Patient registries may sound technical, but they are actually one of the easiest ways people living with a long-term condition can get involved in research. By sharing their own experiences of everyday life, either directly or via their healthcare team, they can help researchers find answers to ques...

08/03/2026

Happy International Women’s Day 2026! 💜

At the UK MS Register, we’re proud to work alongside so many incredible women — members of the MS community, researchers, clinicians, and colleagues, just some of whom are pictured below.

Today we celebrate your achievements, and the impact you continue to make in improving understanding and support for people living with MS.

Thank you for everything you do. 🌟

04/03/2026

🌸 Our Spring questionnaires are now live on the UK MS Register!

If you’re living with MS, your experiences matter. By taking part, you’re helping to shape research, improve understanding, and make a real difference to the MS community. Log into your account here: https://ukmsregister.org/Account/Login

Haven’t signed up yet? It’s quick and easy to get involved — simply visit our website to register and take part: https://ukmsregister.org/Account/Register

Thank you for being part of the MS Register community 💛

11/02/2026

Today is International Day of Women and Girls in Science, a time to acknowledge and celebrate the women and girls shaping the future of science. 🔬✨

At the Register, we’re committed to amplifying diverse voices in STEM, highlighting the groundbreaking work being carried out by women, and supporting the next generation of female researchers 🙌

06/02/2026

Living with MS in the UK?
You’re not alone — and your experience matters.

By joining the UK MS Register, you can help improve understanding, care, and research for people with MS now and in the future.

You can join if you:
✔ Live in the UK
✔ Are 18 or over
✔ Have a confirmed MS diagnosis

Add your voice: https://ukmsregister.org/Account/Register

26/01/2026

New study from researchers at University of Birmingham looking into the experiences of pregnant women with MS.

More details below 👇

21/01/2026

In December 2025, the UK MS Register hosted a Campus Research Day, held at Swansea University which brought together researchers and supporters of the MS Society UK to see first-hand how their fundraising activities directly enables important research into MS here in Wales.

The group received a guided tour of the MS research labs with Dr Owain Howell, followed by a talk from Register PI Dr Rod Middleton on how the Register’s data is used to drive meaningful change. Thank you to all our guests for visiting and being so engaged, thank you also to Ceri Ms-Society and MS Society Cymru for helping to organise this event.

Read the blog to discover highlights from the visit:

In December 2025, the Register team were delighted to host a Campus Research Day bringing together researchers and supporters of the MS Society for an engaging and inspiring visit. This event was the second Campus Research Day of its kind in 2025, building on the success of the visit in August and f...

16/01/2026

📣 We are pleased to share that the Register are now part of the NIHR (National Institute for Health and Care Research) Associate PI Scheme 🎉

This means that clinical teams working on the Register now have the opportunity to develop their research careers. Through the scheme healthcare professionals can gain hands-on experience in clinical research leadership.

Read more about the scheme, and how to be involved, in our blog:

Unlocking Research Potential — The NIHR Associate PI Scheme Now Available Through the UK MS Register At the UK MS Register, we are committed not only to driving high-quality Multiple Sclerosis research but also to strengthening and supporting the clinical research workforce across the UK. That’s...