UK MS Register

24/11/2025

PhD researcher Hannah Hollinger, from the University of Highlands and Islands, is currently recruiting to her study. The study involves an online survey that can be completed by individuals living with MS with the following eligibility criteria:

- RRMS
- Experience heat sensitivity
- Using a method of cooling
- Over 18
- Access to internet

If you have RRMS and currently use a method of cooling yourself please contact hannah.hollinger@uhi.ac.uk directly if you would like more information. Please also feel free to share this post with anyone who you think may be interested.

21/11/2025

UK MS Register lead Dr Rod Middleton is in London today at the National meeting of the ACORD Collaboration.

The ACORD Collaboration is made up of a variety of groups currently developing, running and reporting Multi-Arm Multi-Stage (M**S) platform trials in neurodegenerative conditions, such as , Parkinson's and Dementia.

Today's meeting was a great opportunity to hear updates on current M**S platform trials (such as Octopus), and also to learn about exciting innovations in neurodegenerative clinical trials.

19/11/2025

Earlier this month Rod from the Register joined MS-UK for an online information session. Attendees heard about the activities of the Register, and were also able to ask questions about how to get involved. You can read more about the event, or sign up to watch the recording, by following the link below.

Thank you MS-UK for inviting us along! MS-UK offer lots of different online activities tailored for people living with MS - visit their website to learn more: ms-uk.org
https://www.ms-uk.org/ms-register-introduction-session/

Our MS Register introduction session will explain how it works, and share how this valuable resource is helping shape the future of MS.

17/11/2025

This morning the UK MS Register team are hosting a Data Workshop at our offices in Swansea University. Here's project PI Dr Rod Middleton giving a brief overview of the Register, and explaining to our students how we use MS patient data for research.

We will be running more events like this next year, so if you are interested in learning techniques for using big data for research, please get in touch: researcher@ukmsregister.org

12/11/2025

We are very much looking forward to attending this MS Information day in Wrexham later this month 😊

It looks like a great opportunity to hear about the support on offer from the MS Society and learn about the latest MS research. Register below to reserve your spot 🧡

https://www.eventbrite.co.uk/e/ms-information-day-wrexham-flintshire-friday-28th-november-2025-tickets-1635260300579

31/10/2025

We have a number of new blogs available on our website 📣

In our most recent post we hear from Professor Klaus Schmierer at Queen Mary University of London about the AttackMS trial which has recently reopened.

This trial is the first study to treat individuals with suspected MS at the first demyelinating event. Read more here 👇

A UK clinical trial is testing whether rapid treatment with a highly effective multiple sclerosis (MS) drug (within just two weeks of the first presentation) could change the course of the disease. The AttackMS trial, led by Professor Klaus Schmierer at Queen Mary University of London, is the first....

24/10/2025

24/10/2025

The UK MS Register team are finishing the week on a high at the MS Society Cymru Living Well Day in Cardiff! 🎉

The event has had a fantastic turnout with more than 70 people here so far. Talks today cover everything from MS research, diet, financial support and mental health.

Thanks to the Cardiff and Vale University Health Board and the MS Society UK for hosting this brilliant event 🙌

21/10/2025

The MS Society UK 2026 grant rounds are now open for applications! 📣

Researchers can choose to apply for a range of awards including Catalyst, Project, Career Development and Data Discovery Awards 🏆

The MS Society is the largest charitable funder of MS research in the UK. The UK MS Register can be used by researchers applying for any of these Awards. If you want to learn more, or know of an MS researcher who is looking for funding then visit the MS Society website:

We're the largest charitable funder of MS research in the UK. Find out more about our application and review process.

26/09/2025

📣 Today we’re at ECTRIMS Patient Day in Barcelona! The Register are proud to be a supporting partners of this important event, which brings people affected by MS together with researchers, clinicians, and organisations from across the world 🌍

We’re here to listen, share, and connect — and to keep championing the role of real-world data and the MS community in shaping the future of research. If you're attending, come and say hi! 👋

26/09/2025

In case you missed it, the UK MS Register has been part of the 2025 conference in Barcelona this week 🇪🇸

Our team has been busy presenting research through posters, ePosters, and talks, helping to highlight the importance of real-world data and the voices of people living with MS.

A huge thank you to everyone who takes part in the UK MS Register – none of this would be possible without you. Your contributions are helping move MS research forward and making a real difference.

25/09/2025

We've had an incredibly busy and inspiring few days as exhibitors at the ECTRIMS 2025 conference in Barcelona! 🇪🇸🌍

The UK MS Register team has been working hard to share the important role your data plays in MS research. From chatting with researchers and clinicians from around the world, to showing how your experiences are helping shape better care and understanding of MS – it's been non-stop!

Thank you to everyone who continues to take part in the Register – none of this would be possible without you. 💙