OUCH (UK) - Cluster Headaches

OUCH (UK) - Cluster Headaches Cluster Headache support non profit charity OUCH (UK) is a UK based, non profit charity funded purely by members and donations.

We are primarily focused on the medical condition known as Cluster Headache. See Mission below for more information.

*PLEASE NOTE THAT ALL POSTS ON THIS PAGE ARE PERSONAL OPINIONS AND ARE NOT ENDORSED BY OUCH (UK). ANY ADVICE SHOULD ONLY BE FOLLOWED AFTER CONSULTATION WITH A TRAINED MEDICAL PROFESSIONAL*

This page is dedicated to OUCH (UK) and as such we ask that you refrain from promoting other pages or charities.

A huge THANK YOU to everyone who attended our conference on Sunday 8th June at the RVI in Newcastle and helped make it s...
28/08/2025

A huge THANK YOU to everyone who attended our conference on Sunday 8th June at the RVI in Newcastle and helped make it such a success. We'd also like to thank our sponsors, electroCore, for their generous support. Last but not least, to all our speakers on the day - thank you for your continued and valued support, expertise and advice. We really couldn't do it without you.

As promised we have added all the conference presentation slides to our website, Simply select the Meeting Presentations section on the Downloads page and they are all there as follows in PDF format:

Session 1. An overview of the diagnosis and treatment of Cluster Headache and The Trigeminal Autonomic Cephalgias by Dr Nicholas Silver, Consultant Neurologist, The Walton Centre, Liverpool.

Session 2. OUCH - Objectives and Initiatives by Dale Nolan, Trustee, OUCH, and Professor Peter Goadsby, Consultant Neurologist, King's College Hospital, London, Patron and Chair of OUCH (UK).

Session 3. Oxygen Therapy in Cluster Headache by Val Hobbs, Trustee, OUCH.

Session 4. Occipital Nerve Stimulation by Dr Ashish Gulve, Consultant in Pain Medicine, The James Cook University Hospital, Middlesbrough.

Session 5. My Journey through Cluster Headaches by Colin Simpson, Cluster Headache Sufferer. See also video below.

Session 6. Conference Keynote & Current Initiatives with: Professor Peter Goadsby, Consultant Neurologist, King's College Hospital, London, Patron and Chair of OUCH (UK), Dr Diana Wei, Consultant Neurologist, Senior Lecturer, Kings College Hospital, Dr Ravindra Inaththappulige.

You can also watch the video of Colin Simpson's journey with CH and Occipital Nerve Stimulation.

We hope you find these resources useful, they are very helpful to refer to when there was so much to take in on the day.

Best wishes
The Team at OUCH(UK)

https://ouchuk.org/news/view-slide-presentations-our-newcastle-event

๐ŸŒŸ Support Lynneโ€™s Highland Swing Challenge! ๐ŸŒŸOur amazing supporter Lynne is taking a leap of faithโ€ฆ literally! She will ...
16/08/2025

๐ŸŒŸ Support Lynneโ€™s Highland Swing Challenge! ๐ŸŒŸ

Our amazing supporter Lynne is taking a leap of faithโ€ฆ literally! She will be strapped beneath a bridge in Killiecrankie, plunging 15 metres in free fall before swinging 40 metres above the River Garry ๐Ÿช‚๐Ÿ’™

Lynne has lived with the devastating impact of cluster headaches since 2017 and she credits OUCH UK for giving her support, guidance and hope when she needed it most. Now she is giving back in the most courageous way!

๐Ÿ‘‰ Lynneโ€™s goal is to raise ยฃ200 and every single donation big or small helps us continue our vital work supporting people living with cluster headache.

โœจ You can help! โœจ
โœ” Donate today: https://ouchuk.org/civicrm/pcp/info?reset=1&id=26
โœ” Share this post to spread the word
โœ” Leave Lynne a message of support

Letโ€™s cheer Lynne on as she takes the Highland Swing for OUCH UK! ๐Ÿ’ช๐Ÿ’™ Together we can make a difference.

Raising general awareness of cluster headache and offering support and guidance through our helpline and user forum

Whitstable Half Marathon Saturday, July 19, 2025.Thanks so much to all the great supporters who have donated to Lee's ev...
16/07/2025

Whitstable Half Marathon Saturday, July 19, 2025.

Thanks so much to all the great supporters who have donated to Lee's event so far! We're very thankful for our wonderful fundraisers who put themselves through the mill to help keep this charity going. If you would like to donate to Lee's event, every penny helps:

https://ouchuk.org/civicrm/pcp/info?reset=1&id=24

He did it!! What a hero, Brian Sutherland! Congratulations on your sky dive going ahead.๐ŸŽ‰๐Ÿช‚You can donate to Brian's fund...
21/06/2025

He did it!! What a hero, Brian Sutherland! Congratulations on your sky dive going ahead.๐ŸŽ‰๐Ÿช‚
You can donate to Brian's fundraiser here:

https://ouchuk.org/civicrm/pcp/info?reset=1&id=20

Video to follow. Can't wait to see that!

Your online shopping could raise up to 5x the normal donation thanks to our friends at  this week! It's completely free ...
17/06/2025

Your online shopping could raise up to 5x the normal donation thanks to our friends at this week! It's completely free to use - just click, shop and raise >

Shop online with Give as you Live Online and raise a money for OUCH (UK) the simple way.

Sufferer Colin Simpson and Dr Ashish Gulve who spoke at our RVI Conference on Sunday about his journey with cluster head...
11/06/2025

Sufferer Colin Simpson and Dr Ashish Gulve who spoke at our RVI Conference on Sunday about his journey with cluster headaches and how ONS changed his life.

CH sufferer Colin Simpson talks about how the ONS procedure, carried out by Dr Ashish Gulve, James Cook University Hospital, Middlesbrough, completely change...

09/06/2025

A huge shout out to our sponsors, electroCore, for their generous support of our conferences. Their backing means such a lot to us, and Paul Edey, a very familiar figure, really feels like family. Lovely to meet Sam yesterday for the first time! Thank you all.


๐Ÿ‘๐Ÿ‘๐Ÿ‘๐Ÿ‘

WOW!!!! What an amazing experience at the OUCH Conference! ๐Ÿ™ŒWe are still buzzing from the energy, inspiration, and incre...
08/06/2025

WOW!!!! What an amazing experience at the OUCH Conference! ๐Ÿ™Œ

We are still buzzing from the energy, inspiration, and incredible turnout! From powerful talks and panels to the amazing networking opportunities, truly delivered.

A huge thank you to everyone who showed up, showed out, and made this event unforgettable. Your presence, passion, and participation are what made it such a success. ๐ŸŽ‰

Letโ€™s keep the momentum going. Until next time stay bold, stay curious, and keep believing ๐Ÿ’ฅ

โ›” Registration Now Closed โ›”We're all set for the Newcastle Cluster Headache Conference tomorrow, Sunday 8th June 2025, a...
07/06/2025

โ›” Registration Now Closed โ›”

We're all set for the Newcastle Cluster Headache Conference tomorrow, Sunday 8th June 2025, at the CRB Education Centre, Royal Victoria Infirmary!

Thank you to everyone who registered! We canโ€™t wait to welcome you for a powerful day of education, support, and community.

๐ŸŽค Expert talks from Professor Peter Goadsby, Dr. Nick Silver, and Dr. Ashish Gulve
๐Ÿงช Practical workshops (including oxygen therapy)
๐Ÿง˜โ€โ™‚๏ธ Quiet room with Oโ‚‚ & a space for carers
๐Ÿค A chance to connect with others who truly understand

See you tomorrow!

Happy birthday, Brian! Good luck for today, hope the weather is perfect for you. Thank you!Donate here if you'd like to ...
31/05/2025

Happy birthday, Brian! Good luck for today, hope the weather is perfect for you. Thank you!

Donate here if you'd like to show appreciation for Brian's brave event. Every penny counts:

https://ouchuk.org/civicrm/pcp/info?reset=1&id=20

Brian Sutherland's sky dive was delayed by windy weather on Saturday - but not for long - it's been rescheduled to this coming Saturday which is Brian's birthday!

Thank you, good luck and happy birthday, Brian!

Check out Brianโ€™s fundraising page to learn more and contribute:

https://ouchuk.org/civicrm/pcp/info?reset=1&id=20

Address

Tenby
SA709AG

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