22/02/2024
I'm really excited to be starting the Primal Trust programme for limbic retraining and nervous system healing - thanks to the Go Fund Me donations. Thank you so much to everyone who has helped so far.
I'm dealing with a very complex set of issues. Wonderful as many NHS employees are, and much as I'm massively grateful for the help I've received there (especially various trips to A&E with scary, extreme reactions), they are just not informed or trained in diagnosing and treating complex chronic conditions.
This means, not only having to pay for everything yourself, but doing all your own research, and wasting a lot of money time in trial and error, suffering much longer than necessary.
I still don't have a full understanding, but I'm learning a lot. Yes, my CIRS diagnosis and genetic testing confirm that I have the abnormality in the HLA gene that means my immune system fails to properly recognise and eliminate bio-toxins (moulds, Lyme, and also covid it seems), and this does require physical treatment, including binders that stick to the toxins and carry them out of the body, so that you're not endlessly recycling /storing them.
I've had these genes all my life. But I haven't had full blown CIRS all my life. So...????
Turns out there's a whole other layer. Programmes specialised in chronic conditions, such as Primal Trust and Gupta, attribute the onset as a 'perfect storm', such as long term stress, an acute stress, and a virus or toxin exposure, all in a short time frame. This overwhelms the body and sends the amygdala in the limbic brain into a state of red alert for danger, setting off the sympathetic nervous system response, cytokine storms, and inflammation, which causes many of the symptoms. The body then signals the symptoms back to the brain, which interprets them as evidence that acute danger is still present, and ramps up the nervous system and inflammatory immune responses even more - creating an ever worsening cycle that is very difficult to break. The body is stuck in a danger response, down to the cellular level. And you can't think you way out of it, or just medicate your way out of it.
The chronic stress response may purely be generated, on a cellular level, in response to a biological threat, but often there's a history.
Fascinatingly, people with these conditions (ME/CFS/mould toxicity/MCAS/chemical sensitivity/fibromyalgia/auto immunity/long covid and others), usually have a history of chronic stress response, childhood trauma, worry, PTSD, over-stretching, perfectionism etc.
Most of the programmes addressing this are sharing information you'd never get from your doctor. But most are focussed on a top down response, interrupting the anxious thoughts and hyper-vigilance. This is great for creating space between the self and the thoughts, and is important and helpful - but - it cannot address the stress and/or trauma stored in the body, which is a deeper root that cannot be influenced by thought alone.
Primal Trust is interesting, because it also addresses the stress and trauma held in the body, as well as the anxious thoughts in the mind (the two exacerbate each other).
It isn't a quick fix, especially if the stress pattern is life-long, and requires dedication and some hours a day - but it has had amazing results for many people.
For me it's the first step, as recent covid now has me too sensitive to take supplements and medicines - I have allergic type reactions to everything. So calming the body and mind will get me to the stage where I can then do the mast cell and detox treatments.
Hilarious that I have a back ground in yoga, meditation and deep relaxation ! - though perhaps not surprising that I needed those tools to be ok all my life. And I thought I'd done so much work on all this stuff already!
This illness, this perfect storm, has massively magnified lifelong patterns to such extreme that they HAVE to be prioritised - bringing incredible opportunity for transformation.
Thank you to everyone who has supported me to take the next level of this journey.
I don't just want to get better and get my life back - I want to see a huge increase in awareness and help for chronic conditions, with mainstream and alternative practitioners working together. No one should have to wait three years for diagnosis and have to fund raise to afford treatment.
So please keep on sharing :)
love and gratitude
Nikki ###x
Dear community, I'm here humbly asking for your help. I have a co… Nikki Chambers needs your support for Help Nikki recover from rare chronic illness
