The-MS-guide

05/03/2026

Send this to someone who needs to understand

MS fatigue is not tiredness

it has a name, a mechanism, and it is absolutely not in your head.

Sharing this one widely because the misunderstanding does real damage.

01/03/2026

My MRI results are in and I have conduction delay in my right leg. So good combined with bad.

But nonetheless, I got outside today and did some exercise albeit not as much as I used to be able to do. Never give up.

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27/02/2026

Why I've been quiet: The expert patient reality check

MRIs ✓
ECTRIMS paper ✓
Two trial panels ✓
8-min documentary ✓
Job applications ✓
Functioning right leg ✗

Turns out MS doesn't care about your to-do list.

Not gone, just moving slower ATM.

MSAwareness DisabilityAdvocate RealTalk

13/02/2026

13/02/2026

04/02/2026

Ocrevus (ocrelizumab) vs Tysabri/Tyruco (natalizumab):
a national Danish registry study (2018–2023) found no clear difference in relapses, PIRA, or new MRI inflammatory activity after adjustment.

Translation:
for many people, effectiveness is very similar, and the decision comes down to fit factors like JC virus status/PML risk, monitoring burden, vaccine timing, infusion schedule, prior treatments, and clinician experience.

Subscribe for hundreds of free MS videos: youtube.com/

31/01/2026

Measles is circulating again, and if you have MS or you take immune-suppressing medication, your risk from infections can be higher.

Do this simple check:

Find out your MMR status (2 doses, or confirmed immunity).

Sort it before immunosuppressive treatment starts, because MMR is a live vaccine.

If you have a significant exposure and you are not immune, get medical advice urgently, timing matters.

Full longer explainer on YouTube at youtube.com/. Subscribe for evidence-led MS content.

28/01/2026

I’m moving the centre of gravity to YouTube.

You’ll still see shorts here. But if you want the in-depth MS videos (the ‘why’, not just the ‘what’), plus community posts and live sessions, that’s all on YouTube, and it is free.

Subscribe here: youtube.com/

If you know someone with MS who’s drowning in conflicting advice, share this with them.

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