The-MS-guide

Riding across Canada For MS. Follow at . Support, join and donate to the cause. Follow at www.strava.com/atheletes/rc4ms

31/01/2026

Measles is circulating again, and if you have MS or you take immune-suppressing medication, your risk from infections can be higher.

Do this simple check:

Find out your MMR status (2 doses, or confirmed immunity).

Sort it before immunosuppressive treatment starts, because MMR is a live vaccine.

If you have a significant exposure and you are not immune, get medical advice urgently, timing matters.

Full longer explainer on YouTube at youtube.com/. Subscribe for evidence-led MS content.

28/01/2026

I’m moving the centre of gravity to YouTube.

You’ll still see shorts here. But if you want the in-depth MS videos (the ‘why’, not just the ‘what’), plus community posts and live sessions, that’s all on YouTube, and it is free.

Subscribe here: youtube.com/

If you know someone with MS who’s drowning in conflicting advice, share this with them.

MSresearch MSsymptoms MStips MSfatigue MSbrainfog MSlife chronicillness disability neuro neurology YouTube theMSguide

24/01/2026

“I’ve had MS for 34 years. I still get relapses.
Some hours I’m completely fine. Other hours my balance is off and the fatigue hits hard.
The key, for me, is not interpreting that as failure or decline. I pace, I accept help, and I stay socially connected instead of withdrawing.
Because of my MS, I’m also rethinking how I share information — how to give the best value to the most people for the time they spend watching. Expect an announcement on that soon. It will likely centre on YouTube.
Relapses happen. They don’t define you.”

BrainHealth LivingWithMS

20/01/2026

MS drug leaflets list risks clearly. But the risk of waiting with MS often gets described in vague terms. That’s not a fair decision.

I’ve had MS for 34 years and taken 5 different DMTs.

Use this 2-column test in clinic: drug risk vs MS risk if control is delayed.

Printable one-page sheet + the missing “fourth question” on patreon.com/tMSg

Neurology PatientAdvocacy HealthLiteracy ChronicIllness DisabilityAwareness BrainHealth

18/01/2026

This is genuinely interesting MS research — but it needs nuance.

A patient-derived antibody appears to protect neurons in lab experiments and in a mouse model of MS. That’s unusual, because antibodies are usually framed as harmful in MS.

But this is not human evidence.
It’s early, pre-clinical science — and that distinction matters.
What is important is the pattern:
we’ve seen before that some antibodies can regulate or even protect, not just damage.

Research is cyclical.
Progress is slow.
And hope needs to stay grounded in evidence.

ScienceCommunication ResearchExplained LivingWithMS

16/01/2026

I delayed applying for PIP for years — not because I didn’t qualify, but because it forced me to acknowledge how much MS affects daily life.

PIP isn’t unemployment benefit. It’s functional support.
The form isn’t asking for bravery — it’s asking for accuracy.

I’ve done a full Patreon deep-dive on how the PIP form actually works, common mistakes, and how to answer without minimising your reality.

Link in bio.

MSAwareness

13/01/2026

Drug leaflets list every possible side effect — in detail.
MS disability almost never gets the same treatment.

That imbalance shapes fear, delays decisions, and quietly changes lives.

After 34 years with MS and five disease-modifying treatments, I still think we don’t help people weigh both sides of risk properly — short-term treatment risk versus long-term loss of function.

On Patreon, we’re opening this up with real patient experiences:
What scared you.
What helped.
What you wish you’d known earlier.

Link in bio to join the conversation.

HealthDecisions
InvisibleDisability
LivedExperience

11/01/2026

I know this isn’t high-production content.

No drones. No jump cuts. No viral choreography.

What I can offer is lived experience, professional context, and honesty about what MS actually feels like — especially in the uncertain moments between symptoms and scans.

Walking’s been harder lately. I’ve got a full head and spine MRI coming up.

Until then, I do what I always do: look after the basics, stay curious, and share what I’ve learned along the way.
If that makes this journey a little easier for someone else, it’s worth it.
L

10/01/2026

The hardest part of MS isn’t pain or weakness.
It’s uncertainty.

I’ve lived with MS for 34 years and I still catch myself thinking:
“Is this new?”
“Is this progression?”

That isn’t weakness. It’s a normal brain responding to an unpredictable disease.

What helps isn’t positivity — it’s structure:
• noise vs signal
• patterns over moments
• knowing what’s worth escalating

I explain the framework here and go deeper on Patreon (patreon.com/tMSg).

Link in bio.
AnxietyTools MSCommunity

08/01/2026

“Why can I think clearly one day… and struggle the next?”

Brain fog in MS is real, common, and explainable.
It’s about slowed signals, fatigue load, and reduced cognitive capacity — not motivation or intelligence.

I’ve shared a deeper Patreon post breaking this down properly, plus practical ways to protect your mental energy day to day and what to say in clinic if this is affecting your life.

Link in bio for the deep dive.

PatientEmpowerment

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