09/05/2026
The only picture I have taken today of our trip to headquarters.
This month is International awareness month for PKU (phenylketonuria)
Today we spent the day at Firstplay Foods, the headquarters of Promin, a company that produces low protein foods for people living with PKU.
It wasnât just a lovely day out⌠it was also a really important reminder of how much thought, care and support goes into helping families like ours đ
For anyone who isnât familiar, PKU is a rare inherited condition. It means the body canât properly break down a protein called phenylalanine, which is found in everyday foods like meat, dairy, eggs, nuts and even regular bread.
Without careful management, this can build up in the body and affect brain development and overall health.
So for Oliver, life looks a little different.
At 14, heâs currently allowed 12 exchanges of natural protein a day, which has to be carefully measured and tracked. Most of his protein actually comes from specially designed supplements, alongside low protein foods like those made by Promin.
Today gave us such a brilliant insight into that world.
We had a full tour of the factory and got to see how these foods are produced and packaged, led by the very knowledgeable Faye. While the adults were learning more, the teens were busy making their own baguette and carrot cake to take home (which went down very well!).
We were also treated to a low protein lunch, Oliverâs highlight was definitely the rice salad, and he had the chance to sample some of the supplements that play such a big part in his diet.
But more than anything, it was just so lovely to be in a space where everything felt⌠normal.
Being able to chat with other parents and teens who just get it, in an environment that was so inclusive and welcoming, really meant a lot.
A huge thank you to Tom, Katya and Linda from Promin and their fantastic team, and to Lucy and Georgia, the dietitians from Manchester Childrenâs Hospital, for organising such a thoughtful and supportive day.
Itâs experiences like this that make such a difference đ