07/04/2026
“Ella’s our little miracle child… we were told to say our goodbyes when she was just three days old.”
Ella has the most severe form of Edwards’ syndrome (trisomy 18), a life-limiting condition that affects nearly every part of her body, including her breathing, digestion and development. When she was diagnosed, doctors said she was “incompatible with life.”
Despite suffering a cardiac arrest as a newborn, and mum Chloe having to give CPR with one finger as she was so small, Ella is now five, and defying the odds every single day.
Mum Chloe says “She’s the happiest little girl you could ever meet – she's constantly beaming. She loves her Labrador Rufus, having fun, and rough and tumble play. And she loves anything silly – basically the more silly you are, the more she’ll laugh!”
She also loves being around other children, even though her complex needs mean she often misses out.
Julia’s House has been there for Ella and her family for the past two years, giving her a safe space to play, explore and make friends, while providing expert care and reassurance for her parents. Whether it’s messy play in the sensory room or simply knowing she’s in safe hands.
Read Ella’s full story and see how you can support families like hers this Spring by donating to our Every Giggle Appeal: https://ow.ly/JJoA50YCtma