Joo Westwood Wellness

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Joo Westwood Wellness

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Integrative Health Coach snd chronic illness advocate with a special interest in Hypermobile Ehlers Danlos Syndrome (hEDS), Hypermobile Spectrum Disorder (HSD), Postural Orthostatic Tachycardia Syndrome (POTs) and Mast Cell Activation Syndrome (MCAS)

17/12/2025

2025 was a year of listening.

Listening to bodies that had been dismissed.
Listening to symptoms that didn’t fit neat boxes.
Listening long enough for patterns, answers, and progress to emerge.

This year reinforced something I see again and again: when people with hEDS and complex conditions are believed, outcomes change.
Diagnosis happens.
Pain becomes more manageable.
Sleep improves.
Work becomes possible again.
And nervous systems begin to feel safer.

Alongside long-term coaching and advocacy, I also opened my sound therapy clinic , offering both group sessions and private treatments. Using evidence-based applications of sound, frequency, and music, we’re seeing promising results for stress and pain management particularly for those of us with sensitive nervous systems.

This work is never rushed. It’s done slowly, carefully, and together over weeks and months, not isolated sessions. That’s why my client base is intentionally small and the focus is always on meaningful individual impact.

I’m deeply grateful for the people who trusted me with their stories, for collaborative partnerships that make integrated care possible, and for the community spaces that continue to grow into something truly special.

My 1:1 coaching is currently full until February 2026, but you’re welcome to get in touch to join the waitlist or explore group, community and sound therapy support.

I’ll be stepping back over the holidays, see you in 2026 💙🦓

09/12/2025

January can feel a little heavy after the buzz of December, can’t it? ❤️‍🩹
So before I kick off my fantastic lineup of expert speakers and healthcare professionals for 2026, I thought we’d start the year with something we all need… a gentle pause. ✨

Join me on 24 Jan 2026, 2–4pm at The Welcome Church, Woking for tea, treats, and good conversation.

As you know I spend a lot of my year working with specialists, building connections, organising educational events, and advocating behind the scenes… but community matters just as much as knowledge. Sometimes we need space to breathe, laugh, share, and just be with like-minded souls. 🥰

Bring your favourite allergy-friendly baked goods if you’d like, or simply turn up and enjoy. No sign-up, no pressure.

I’ll be there too, offering informal guidance, coaching insights, and advocacy tips in a relaxed group setting as part of my ongoing volunteering work for those who can’t access private support.

Let’s start the year with warmth, connection, and a moment to reset together. Drop me 💙 if you want to join!

11/11/2025

What an incredible session on Saturday with Chloe Hall all about nutrition and symptom management for EDS, POTS & MCAS! 🦓

Chloe went above and beyond tailoring her presentation to our members’ questions and sharing so much valuable, practical insight. It was such a pleasure to work with her!

Don’t forget to check out The Nourished Programme and her upcoming webinars via

💬 Want the playback? Comment CHLOE and I’ll send it your way!

03/11/2025

Gut issues, MCAS, histamine intolerance, or EDS symptoms?

Join us this Saturday, Nov 8 (10am–12pm) at The Welcome Church, Woking for a special session with Chloe Hall, RD sharing expert, practical advice on:
- Gut symptom management
- Histamine intolerance & MCAS
- Diet support for EDS & PoTS

🎥 Can’t make it in person? A playback will be sent to all attendees!

Comment “DIET” below for the booking link or find it in my bio.

07/10/2025

Struggling with gut issues, MCAS, histamine intolerance, or Ehlers Danlos Syndrome (EDS) related symptoms?

You’re not alone and the right dietary support can make a real difference!

I am thrilled to welcome Chloe Hall, RD, BSc, MSc, for a special Woking session on diet and symptom management.

With over 13 years of NHS and specialist experience, plus personal insight into coeliac disease, IBS, and MCAS, Chloe brings both expertise and empathy.

✨ She’ll be sharing practical guidance on:
🥦 Managing gut symptoms
🌿 Histamine intolerance & MCAS
💪 Diet support for EDS & PoTS

Don’t miss this unique opportunity to learn from a leading specialist who truly understands complex conditions, both professionally and personally.

📅 Saturday 8 November 10-12pm
📍 The Welcome Church, Woking (Playback available for those who can’t make it on the day)
👇 Comment “DIET” below and I’ll send you the booking link straight to your DMs! Alternatively you can find the link to book in my bio.

11/08/2025

✨ When your health feels invisible and your pain dismissed, finding someone who truly sees you can change everything. Sam’s story is a powerful reminder that the right kind of support can open doors to healing, hope, and creativity, even after years of being unheard.

If you’re living with Ehlers-Danlos Syndrome (EDS), Hypermobility Spectrum Disorder (HSD), chronic illness, or any condition that’s often misunderstood or dismissed, know you’re not alone. I’m here to listen, guide, and help you find the care and understanding you deserve…because your story matters.

💬 Ready to take the first step? Book a free discovery call with me and let’s explore how I might be able to support you on your health journey.

And if Sam’s journey moved you, please check out , her amazing body of work, including The Selkie’s Tale and other beautiful books. Every purchase supports her creativity and plants a tree, a gift from one chronic illness warrior to another. 🌿🦓💙

04/08/2025

For the next EDS UK Woking Support Group meeting, I am thrilled to be hosting a very special in-person event with Dr. Edward Sames, Consultant Rheumatologist and General Physician, for a morning of expert insight, support and community connection.

We’ll be diving into all things hEDS, HSD, and chronic pain, from diagnosis to management to the emotional toll of navigating these conditions in today’s healthcare system.

✅ Expect practical advice, expert answers to your questions, and a relaxed, fireside-style atmosphere.
💬 You’ll also have the chance to submit your questions in advance or ask them live on the day.

📅 Saturday 30 August 2025
🕙 10am–12pm
📍 The Welcome Church, Woking

This is a rare opportunity to hear directly from one of the leading voices in EDS care here in Surrey and to feel supported in your journey.

🔗 Booking link in bio

06/07/2025

A little bandage changed everything but what about the things we can’t see? 👇

A few months ago I sustained a secondary degree burn on my hand and the response was immediate:
“Are you okay?”
“Do you need help?”
“Let me take care of that for you.”

And honestly it felt so good to be supported.
But it also made me reflect…

I live with hEDS and chronic symptoms that most people can’t see such as joint pain, fatigue, migraines, brain fog. Things that don’t always come with a cast or a bandage.

Sometimes we forget how much easier it is to offer care when there’s something tangible in front of us. But invisible things matter too.

✨ For anyone living with invisible illness:
✅ You are not making it up.
✅ You don’t need visible proof to deserve care.
✅ You’re allowed to ask for help even without a bandage.

Let’s keep building awareness not out of blame or from a victim mentality but from a place of connection and curiosity.

💬 Have you ever experienced this contrast? I’d love to hear your thoughts.

25/06/2025

Why does summer hit me so hard?

If you live with POTS, hEDS or MCAS, you might dread the warmer months even if you feel like you should be enjoying them.

💭 I used to wonder what was wrong with me.
From childhood holidays where I felt faint and sick…To now, when the school run or sports sideline can wipe me out!

It took me years to realise:
This isn’t weakness.
It’s nervous system dysregulation.

Your body is working overtime to adapt to heat, dehydration, mast cell triggers, and circulatory strain.

In this post I’m sharing:
👉 Why hot weather is so physiologically hard when you live with these conditions
👉 What’s actually happening in your body
👉 What I’ve learned that helps from electrolytes to pacing

💙 If this speaks to you, I see you. You’re doing your best with a sensitive system in a dysregulating world!

✨ I offer personalised, whole-person support to help you manage symptoms and shine through your chronic condition, not just survive it.
📩 DM me to explore how we can work together.

13/06/2025

“There’s no point in being assessed… it’s just an expensive label.”

That’s what a GP told my client this week, after suffering from severe gastrointestinal symptoms, debilitating fatigue and pain.

Let that sink in.

🧠 The emotional toll of medical dismissal.
💔 The mental health impact of being told “it’s all in your head.”
⏳ The years lost without a diagnosis.
🩺 The physical cost of untreated symptoms.

A diagnosis of hEDS, HSD, POTS, or MALS isn’t “just a label.”
It’s a lifeline, language, clarity, and the start of self-management.

✅ It reduces unnecessary GP visits.
✅ It prevents A&E trips.
✅ It empowers the patient.
✅ And actually it saves the NHS money in the long run.

As a health coach and chronic illness advocate, I see what happens when people are finally heard and what damage is done when they’re not.

That’s why I help my clients prepare, self-advocate, and pursue the care they need whether through the NHS or private support.

Yes, I work in private practice.
But I also give my time for free through support groups.
And I’m part of wider efforts to make care more accessible for all, including an upcoming presentation to local GPs on improving Ehlers-Danlos Syndrome diagnosis pathways.

Even areas lucky enough to have NHS health coaches are now facing cuts.
This role — my role — isn’t being funded.
But it should be.

This fight is bigger than one diagnosis.
It’s about building a system that listens, believes, and responds.

We can and must do better. 💙🦓

03/06/2025

Thank you for allowing me to be a part of your recovery. If Ana’s story resonates with you… you’re not alone.

You don’t have to navigate chronic illness or complex care by yourself.

My spaces are now full for June but I’ll be opening up new slots in July.

If you’d like whole-person support tailored to your life,
📩 DM me or book a free discovery call to see if we’re a good fit.

✨ Gentle tools. Real-life strategies. Support that sees the whole of you.

—
👋 Hi, I’m Joo — a mum of four living with hEDS and POTS, navigating chronic illness with a full heart and a lot of pacing.

I’m a qualified Health Coach, Sound Therapist, and EDS UK volunteer, running support group meetings to help others feel seen and supported.

As an Integrative Health Coach, I bridge the gap between overwhelmed clients and a healthcare system that often isn’t built for people like us.

If you’d like support that meets you where you are, DM me. I’d love to hear from you.

💙 Follow for more stories, tools, and reminders: you’re not alone.

Address

Woking

Website

https://www.joowestwoodwellness.com/book

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