HK Acrofriend

11/10/2018

部分罕見疾病和癌症藥物極度昂貴，雖然有「安全網」撒瑪利亞基金和關愛基金為有經濟需要的病人提供援助，但往往被批評為申請門檻過高。今日（10日）《施政報告》宣布，經檢討現時藥費分擔經濟審查機制後，建議減少須....

21/07/2018

Gruesome genetic conditions afflict a handful of city residents; even if treatments exist, slow pprovals and stratospheric costs can keep drugs out of reach.

04/07/2018

From the desk of Linda M. Rio, M.A., Marriage and Family Therapist and PWN contributor. I recently met with someone diagnosed with a pituitary tumor who inspired me to write about this topic. I realize that even though I have written and spoken about the role for children in the “system” of a pi...

23/05/2018

17/05/2018

沒有哺乳卻流出乳汁；已經成人卻手腳繼續變大；突然體重變重，腫成月亮臉，都可能是腦下垂體腫瘤在作怪！

17/05/2018

PW Contributor Denise meditates on the power of prayer and the role it plays in the rare disease community and families.

15/05/2018

  The nomination deadline has been extended to May 31st!   Annually, the Rare Disease Community comes together to look amongst themselves to identify and nominate individuals who have bec…

15/05/2018

The hypothalamus and pituitary gland are key players in the endocrine system. The pituitary, which is controlled by the hypothalamus, is often called “The Maste

14/05/2018

Daphne Adelman As a nurse, Daphne Adelman has two main goals: for her patients to have options and access when it comes to their medication and treatments, and for them to have a good quality of life. Daphne was nominated by Jill Sisco, an acromegaly patient and leader of the patient organization, A...

14/05/2018

NORD gratefully acknowledges John D. Carmichael, MD, Associate Professor of Clinical Medicine, Keck School of Medicine of the University of Southern California, for assistance in the preparation of this report.

11/05/2018

Medication treatment

“Have you read our consensus document on the medical management of ? https://t.co/ayIlLgOYXz”

11/05/2018

The latest Tweets from Pituitary Foundation (). Leading UK & ROI providing & support to people living with pituitary conditions - Patients, family & friends. 0117 3701333. UK & ROI