Youth Diabetes Action 兒童糖尿協會

25/07/2025

【兒童糖尿協會就政府回應資助CGM事宜之回覆 │ YDA Response to Government’s Reply on CGM Subsidies 】
兒童糖尿協會對政府就林哲玄議員於立法會提出，有關為一型糖尿病患者提供持續血糖監測儀CGM資助的回應，表示深切失望。政府的回應明顯忽視一型與二型糖尿病之間的根本差異。一型糖尿病屬自身免疫系統疾病，患者必須接受密集式胰島素治療及持續血糖監測，而二型糖尿病之治療方式則有所不同，故有關醫療政策及資源分配應作清晰區分。
政府回應指，如持續向全港超過658,000名糖尿病患者提供CGM，可能對醫療人手構成壓力，每年涉及數十億港元開支。然而，該說法將所有糖尿病患者劃一處理，完全忽略一型患者在血糖上需要更頻繁管理，故CGM對他們而言屬基本所需。
若僅集中考慮CGM前期成本支出，將忽視其帶來的整體經濟效益。為一型糖尿病患者提供CGM資助，可透過改善血糖控制、減少住院次數及降低併發症，從而長遠節省醫療開支。
儘管醫管局現時根據臨床準則，為部分患者提供有限數量的CGM，然而有多項研究表明，CGM有助穩定血糖水平、減少高低血糖情況，有效預防多種併發症。透過針對性資助措施，可在不加重醫療系統負擔的情況下，讓患者受惠。
本會促請政府，落實針對性支援措施，優先保障一型糖尿病患者的健康與福祉。
詳細聲明請參閱︰https://shorturl.at/d58p2

We express deep disappointment with the Government’s reply to Hon Dr David Lam’s LegCo question on subsidies for CGMs for people with Type 1 diabetes. The response overlooks critical differences between Type 1 and Type 2 diabetes. Type 1 is an autoimmune condition requiring intensive insulin therapy and continuous glucose monitoring, while Type 2 involves different treatments. These differences demand distinct healthcare policies and resource allocation.
The Government states that providing CGMs to over 658,000 people with diabetes continuously could overwhelm healthcare personnel and cost billions annually. However, this groups all people with diabetes together and ignores that those with Type 1 require more intensive glucose management, making CGMs essential.
Focusing solely on upfront CGM costs overlooks the broader economic benefits. Subsidising CGMs for people with Type 1 diabetes can deliver long-term savings through improved glycaemic control, fewer hospital admissions, and reduced complications.
While the Hospital Authority provides a limited supply of CGMs free to some individuals under clinical criteria, CGMs are proven to improve control, reduce hypo- and hyperglycaemic episodes, and prevent complications. Targeted subsidy support can provide these benefits without overwhelming healthcare resources or costs.
We call on policymakers to prioritise the health and well-being of people with Type 1 diabetes through targeted support.
Read our full response here: https://shorturl.at/PFdML

23/07/2025

🎓 「糖友校園」研討會 — 關心糖童，你一定要參加！

想了解糖尿病最新治療？ 想知道孩子在校園生活要注意什麼？ 這場由香港兒童醫院主辦的研討會，為你一次解答！

🗓 活動詳情
- 📅 日期：2025 年 8 月 8 日（星期五）
- 🕒 時間：下午 2:00至 5:00
- 📍 地點：香港兒童醫院 A 座一樓演講廳

🌟 活動亮點
🔬 探索糖尿病治療的最新科技與未來方向
🏫 「與糖童行」校園篇：幫助孩子自在融入校園生活
👁 學童近視與糖尿眼：你不可忽視的健康警號

👩‍⚕️ 專家陣容強大
由兒童醫院糖尿病團隊的資深醫生、護士及治療師主講，內容專業、實用，讓你一次掌握關鍵知識！

💬 現場答問環節
有疑問？現場發問，專家即時解答，讓你安心又放心！

🎈 小朋友專屬驚喜！
活動當日設有由「智樂 Playright」舉辦的遊戲工作坊，讓小朋友邊玩邊學，樂在其中！

📢 立即報名，名額有限！

👉 報名連結：https://docs.google.com/forms/d/e/1FAIpQLSdQK-8D6a7i_VRGW-8EGLgdY6VUcYcP8Hlng1NTCkuhAIueIw/viewform

📧 查詢電郵： chdmhotline@gmail.com

#糖尿病 #糖尿病管理 #糖尿病科技 #糖尿病眼睛 #香港兒童醫院 #兒童糖尿協會 #校園生活

09/07/2025

【首個一型糖尿Barbie │ The first Barbie with T1D】💙💃👗🩷
首個患有一型糖尿病嘅Barbie公仔面世啦，佢仲戴住連續血糖監測儀（CGM）同胰島素泵架！🎉
呢個設計不但提升大眾對糖尿病嘅認識，亦可以令患病兒童及其家人更了解並接納日常使用糖尿病管理科技。
我哋一齊喺 #糖尿病 嘅旅程上繼續同行、互相支持吧！💙
We're excited to see Barbie launching a doll with Type 1 diabetes, complete with a continuous glucose monitor (CGM) and an insulin pump! 🎉
This not only raises awareness of diabetes but also normalises the use of life-saving diabetes tech for children with diabetes.
Let's keep supporting each other in our journeys! 💙

Mattel designed a new Barbie to represent those living with type 1 diabetes. CNN's Jacqueline Howard explains what makes this doll unique. ...

02/07/2025

【🩸糖尿病日常管理—分享你嘅管理小TIPS，贏取豐富獎品！ 🎁丨🩸 Managing Diabetes Daily: Share Your Tips & Win a Prize!🎁】

每日面對血糖管理嘅挑戰💪，一型糖尿病童同家長承受住外人難以想像嘅壓力。隨着醫學進步，利用科技控糖的胰島素泵治療為一型糖尿病患者帶來重大幫助！

新一代胰島素泵會每5分鐘自動校正胰島素劑量，配合連續葡萄糖監測系統，有效將血糖維持於正常水平。患者免受打針之苦，能更自在地享受生活。

兒童糖尿協會(YDA)獲賽馬會慈善信託基金資助嘅「年輕糖尿支援計劃」，為10位糖友提供免費胰島素泵及3年的相關醫療消耗品。我哋一齊聽吓其中一位受惠者恩樂、佢爸爸媽媽👨‍👩‍👦同埋黃梓慧醫生👩‍⚕️嘅分享。

片段入面，恩樂分享左佢點樣運用胰島素泵來管理糖尿病。你地又點樣管理自己或屋企人嘅糖尿病呢?
🗣歡迎留言，分享你地嘅貼士。我地會送出豐富禮物🎁！

活動參加辦法：
1️⃣追蹤 (Follow) FB page / IG page (Youth Diabetes Action 兒童糖尿協會) 同讚好 (Like) 呢個貼文
2️⃣留言分享你哋係點樣管理自己嘅糖尿病嘅TIPS (≤150字)
3️⃣分享呢個貼文(如果係私人帳戶，在分享貼文後截圖，然後直接dm我哋)

做齊以上3個步驟，並得到最多人讚好嘅2位留言者將可獲得豐富禮物：
🎁LOG-ON $200 禮券及Medtronic Simplera連續葡萄糖監測系統CGM一個🎁

🗓活動日期: 即日起至2025年7月20號 中午12:00 (香港時間)
🏆得獎結果公佈日期: 2025年8月1號

❗️❗️備註：
· FB及IG將一齊計算, 每個帳號只限留言一次, 暫只接受香港本地投稿。
· 每名得獎者只能獲得最多一份獎品。屆時有專人FB /IG Inbox聯絡提供領取禮物詳情。確認得獎後，參加者須親臨指定地點、出示由主辦單位發出的中獎通知訊息及/或身份證明文件，核對後便可領取獎品。
· 得獎者若未能在主辦單位於中獎通知書內指定的限期前領獎，將被視作自動放棄領獎權利。
· 參加者的投稿有機會公開至本會的社交平台及大型展覽活動作展覽作分享用途。
· 參加者透過網上提供的個人資料，只會被用作處理有關參加是次比賽之用，包括聯絡及核實參賽者身份。
· 主辦單位不會對任何人士參與此活動而引致任何財物損失或任何其他性質的損壞承擔任何責任。如有任何爭議，兒童糖尿協會保留最終決定權。
· 如有任何疑問，請致電： 2544 3263 （辨公時間為星期一至五 9:00 am至6:00 pm，公眾假期除外)。

Facing daily challenges in blood glucose management💪, children with Type 1 diabetes and their parents endure immense pressures that often go unseen. Thanks to medical advancements, insulin pump technology now offers life-changing support.

The latest insulin pumps automatically adjust doses every five minutes. When paired with continuous glucose monitoring (CGM) systems, they effectively maintain healthy blood glucose levels — freeing patients from constant injections and empowering them to live life to the fullest.

Through the "Jockey Club Support for Young People with Diabetes" programme, YDA provides 10 beneficiaries with free insulin pumps and three years of medical supplies. Hear how this has transformed the life of Yan Lok and his family👨‍👩‍👦, along with insights from 👩‍⚕️Dr Wong Tsz Wai.

How do YOU manage your own or your family member’s diabetes?
Share your diabetes management tips in the comments, and we’ll reward the most-liked stories!

How to join:
1️⃣Follow [Youth Diabetes Action](FB/IG link) & like this post.
2️⃣Comment with your diabetes management tip (≤150 words).
3️⃣Share this post (Private account? DM us your screenshot of the share)
🎁Grand prizes for the two most-liked entries:
- LOG-ON HK$200 voucher
- Medtronic Simplera CGM sensor
🗓Event period: Now until 20 July 2025, 12:00 noon (HKT)
🏆Winner announcement: 1 August 2025

❗️❗️Notes:
- FB/IG entries will be combined. One entry per account. Hong Kong residents only.
- Winners must present ID at designated locations to claim prizes.
- By participating, you grant YDA permission to share your tips on our platforms/exhibitions.
- Personal data collected will only be used for contest purposes.
- YDA reserves the right of final decision. Inquiries: +852 2544 3263 (Mon-Fri 9 am-6 pm, excluding public holidays).

#兒童糖尿協會 #糖尿病兒童關懷 #連續葡萄糖監測系統 #糖尿病管理 #胰島素泵 #賽馬會慈善信託基金

27/06/2025

【🎻 慈善音樂會圓滿落幕！感謝香港愛樂團與你共譜愛心樂章丨Charity Concert Success! SARPO & You Make a Difference】

✨ 6月22日，由香港愛樂團傾力呈獻，為YDA籌款的慈善音樂會於香港文化中心音樂廳圓滿謝幕！這場音樂盛宴不僅帶來《青少年管弦樂指南》、《魔法師的學徒》等經典樂章，更榮幸邀請國際知名小號演奏家 Nitiphum Bamrungbanthum 震撼獨奏，為支持糖尿病兒童的使命奏響強音！

❤️ 誠摯感謝 香港愛樂團 以藝術傳遞溫暖，更衷心致敬冠名贊助：
Purviz R. Shroff, MH & Late Rusy M. Shroff, BBS, MBE 對糖尿病兒童的堅定支持與無私奉獻！

你們的善心，將持續照亮他們的希望之路。

✨ On 22nd June, the spectacular charity concert presented by the SAR Philharmonic Orchestra at the Hong Kong Cultural Centre Concert Hall concluded with resounding success. Audiences were enthralled by masterpieces like "The Young Person's Guide to the Orchestra" and "The Sorcerer's Apprentice", alongside a breath-taking trumpet solo by world-renowned artist Nitiphum Bamrungbanthum – all in support of children with diabetes!

❤️ Our deepest gratitude to the SAR Philharmonic Orchestra for turning artistry into compassion, and to our Title Sponsor:
Purviz R. Shroff, MH & Late Rusy M. Shroff, BBS, MBE, whose unwavering commitment empowers children living diabetes.

Your generosity fuels hope and transforms lives.

#慈善音樂會 #香港愛樂團 #兒童糖尿協會 #糖尿病兒童關懷 #社區攜手

24/06/2025

【YDA與香港中文大學聯合主辦首屆糖尿病科技論壇 YDA and the Chinese University of Hong Kong hosted the first Diabetes Technology Discussion Forum】

連續血糖監測儀作為糖尿病管理的重要技術，雖能顯著提升患者生活質素，惟其高昂成本令不少患者卻步。
兒童糖尿協會及香港中文大學聯合主辦首屆糖尿病科技論壇，邀請來自英國、新加坡及澳洲的專家分享各地政府推動此項技術的具體政策外，更著重探討如何在本港落實相關支援措施。
一型糖尿病患者需每日注射胰島素，若血糖控制不當可能危及生命，其中青少年患者在維持理想血糖水平（HbA1c）方面尤為困難。

論壇重點內容摘要如下：
1. 數據顯示，使用CGM可使HbA1c降低0.5% - 1%，顯著減少糖尿病併發症及低血糖發生次數。然而，本港T1D兒童的使用率僅10%，明顯低於發達國家25%的平均水平；
2. 本會調查顯示，526名受訪患者中，92%曾使用CGM，其中80%為長期使用者，但高達94.7%表示若費用未能降低將被迫停用；
3. 澳洲採取分階段資助政策，並強調醫療機構、病友組織與政府部門之間的相互協作，方能有效提升CGM的普及。
是次論壇的詳細報告將於稍後公布，敬請留意本會最新動態。
誠請社會各界共同關注糖尿病照護議題，共同改善糖童的生活質素。

The advent of Continuous Glucose Monitors (CGMs) provides outstanding improvement to the lives of those living with diabetes; however, they are cost-prohibitive for many.
YDA and the Chinese University of Hong Kong jointly hosted the first Diabetes Technology Discussion Forum, in collaboration with experts from the UK, Singapore and Australia converged in Hong Kong recently to share how their governments support the use of this remarkable technology. And more importantly, how YDA can advocate the same in Hong Kong.
Living with diabetes can be life threatening when not managed properly. People with Type 1 diabetes (T1D) in particular, require daily doses of insulin. Proper management includes having good control of blood glucose levels (HbA1c), which is, especially, challenging for youths.

A few key insights shared at the Forum:
1. Data shows that CGMs reduce HbA1c by 0.5-1%, significantly decreasing diabetes complications and hypoglycaemic episodes, yet only 10% of paediatric T1D patients in Hong Kong currently utilise CGM compared to nearly 25% in developed nations.
2. YDA data revealed that, of 526 respondents, 92% have used CGM, with 80% being continuous users. However, 94.7% would stop if costs remain high.
3. Australia used a phased approach to CGM subsidies, emphasising the importance of a united effort among all stakeholders including diabetes associations, healthcare providers and patients.

A comprehensive report from the Forum will be shared in due course. Stay tuned by following this page.
Help us improve the lives of those living with . Together we will make a difference.

#糖尿病管理 #一型糖尿病 #二型糖尿病 #兒童糖尿病 #糖尿病科技 #兒童糖尿協會 #香港中文大學 #香港中文大學醫學院

12/06/2025

🌟 慈善音樂會邀請🌟

別錯過這場由香港愛樂團傾力呈獻，為YDA籌款的精彩慈善音樂會!🎻✨

活動詳情：
日期：2025年6月22日（星期日）
時間：下午3:00至5:00
地點：尖沙咀香港文化中心演奏廳

音樂會將帶來《青少年管弦樂指南》、《魔法師的學徒》等經典樂章，更特邀國際知名小號演奏家Nitiphum Bamrungbanthum帶來精彩獨奏!🎶

這是一個難得的機會，讓你與家人既能享受高水準的音樂盛宴，同時為糖尿病兒童出一分力。您購買的每張門票，都將轉化為改變病童生命的力量。

🎟️ 立即購票：
https://airtable.com/appspKvXrSoc3Qw1S/shrzTsrFCIE923xyQ

無論是獨自欣賞或與摯愛分享，您的每一分支持都彌足珍貴。讓我們攜手為糖尿病兒童創造更美好的未來。

衷心感謝你的支持! ❤️

#兒童糖尿協會 #慈善音樂會 #關愛糖尿病兒童 #共創美好未來

🌟 Join Us for a Wonderful Afternoon of Music! 🌟

Don't miss out on the incredible charity concert to benefit YDA, performed by the SAR Philharmonic Orchestra! 🎻✨

Date: Sunday, 22 June 2025
Time: 3:00-5:00 PM
Venue: Concert Hall, Hong Kong Cultural Centre, Tsim Sha Tsui

Enjoy classic favourites like The Young Person’s Guide to the Orchestra and The Sorcerer’s Apprentice, along with a special trumpet performance by renowned soloist Nitiphum Bamrungbanthum🎶

This is a fantastic opportunity for a fun and enjoyable family outing while supporting a great cause. Your ticket purchase not only guarantees a memorable experience but also helps make a difference in the lives of young people affected by diabetes.

🎟️ Get your tickets today: https://airtable.com/appspKvXrSoc3Qw1S/shrzTsrFCIE923xyQ

Every donation counts, whether for yourself or to share the joy with someone else. Together, we can create a brighter future for those in need.

Thank you for your support! ❤️


_
了解更多兒童糖尿協會: https://www.yda.org.hk/zh-hant/
Find out more about YDA: https://www.yda.org.hk/

06/06/2025

🌟 重要會議預告！🌟

我們很榮幸宣布，YDA 首屆糖尿病科技論壇將於明日(6月7日) 舉行，本次主題重點探討如何提升連續血糖監測儀（CGM）在香港普及應用。論壇由 YDA 及香港中文大學醫學院聯合主辦，將匯集海內外醫療專家及使用者代表，共同探討CGM的資助模式與推廣策略。
期待透過此次交流，改善香港的糖尿病照護體系💙 請持續關注活動最新動態！

🌟 Exciting Meeting Ahead! 🌟

We are excited and looking forward to hosting our inaugural diabetes technology discussion forum tomorrow (7th June) on improving access to CGMs in Hong Kong. Jointly organised with Faculty of Medicine of The Chinese University of Hong Kong, we hope this forum will provide a platform to engage key stakeholders in vital discussions exploring funding models and strategies for enhancing access to CGMs. Together, we can make a difference in diabetes care💙 Stay tuned for updates!

#糖尿病管理 #醫療創新 #一型糖尿病 #二型糖尿病 #兒童糖尿病 #糖尿病科技

04/06/2025

【讓糖尿病不再是孩子的障礙
No child held back because of Diabetes】

每日面對血糖管理嘅挑戰，一型糖尿病童同家長承受住外人難以想像嘅壓力。CGM連續血糖監測儀嘅出現，為佢哋帶嚟新希望，成為管理血糖嘅必需品。

兒童糖尿協會(YDA)獲賽馬會資助嘅「年輕糖尿支援計劃」，為糖友提供免費CGM，幫助無數家庭。

想了解該計劃嘅詳細資訊，可到訪YDA賽馬會年輕糖尿支援計劃網站：
https://jcsupportdm.hk/zh-hant/

Every day, children with Type 1 diabetes and their families face immense challenges in managing blood glucose levels—struggles that are hard for others to imagine. The emergence of Continuous Glucose Monitors (CGM) has brought new hope, becoming an essential tool for effective diabetes management.

With funding from The Hong Kong Jockey Club Charities Trust, the Youth Diabetes Action (YDA) launched the "Jockey Club Support for Young People with Diabetes Programme," providing free CGM devices to eligible patients and helping countless families.

To learn more about this impactful initiative, please visit the official website:
https://jcsupportdm.hk/zh-hant/

#一型糖尿病 #二型糖尿病 #糖尿病 #兒童糖尿病 #兒童糖尿協會 #糖尿病不是孩子的障礙 #血糖管理

02/06/2025

【兒童糖尿及疫苗講座丨Youth Diabetes and Vaccination Talk】

📢 邀請你參加兒童糖尿及疫苗講座！📢

你知唔知道糖尿病患者感染肺炎鏈球菌嘅風險比常人高4倍？💡
我哋誠邀你參加「兒童糖尿及疫苗」專題講座，了解更多為糖尿病兒童提供標準免疫接種計劃以外的保護

👨⚕️ 特別邀請張璧濤醫生作分享，為你：
✅ 深入剖析兩者密切關係
✅ 解讀最新20價肺炎鏈球菌疫苗的相關資訊
✅ 現場問答解決個人健康疑慮

📅 日期：2025/6/14
⏰ 時間：2:00-3:00 pm
🗣 語言：講座將以廣東話進行，Q&A環節將以中英文進行
💲 費用：費用全免
📍 地點：九龍柯士甸道童軍徑香港童軍中心

立即報名：https://forms.gle/48AGDQt5sJEcWgKc6 成功報名後，你將收到確認電郵。
如有任何查詢📞，請WhatsApp 本會同事Vic (9322 4605)。

📢 Youth Diabetes and Vaccination Talk Invitation! 📢

Did you know people with diabetes have 4x higher risk of pneumococcal diseases? 💡

👨⚕️ Featuring keynote speaker Dr CHEUNG P*k To, help you to:
✅ Understand the critical link between diabetes & pneumococcal infections
✅ Learn about cutting-edge 20-valent pneumococcal vaccine
✅ Get personalised Q&A with healthcare professionals

📅 Date: 2025/6/14
⏰ Time: 2:00-3:00 pm
🗣 Language: The presentation will be conducted in Cantonese, and the Q&A will be bilingual
💲 Fee: Free of charge
📍 Venue: Hong Kong Scout Centre, Scout Path, Austin Road, Kowloon, Hong Kong

Registration: https://forms.gle/WTH6kCLSQn1GGJqJ8 Upon successful registration, you will receive a confirmation email.
📞 For enquiries, please WhatsApp our staff Vic at 9322 4605.

#一型糖尿病 #二型糖尿病 #糖尿病 #兒童糖尿病 #兒童糖尿協會 #糖尿病不是孩子的障礙 #疫苗
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了解更多兒童糖尿協會: https://www.yda.org.hk/zh-hant/
Find out more about YDA: https://www.yda.org.hk/

31/05/2025

【端午節快樂 Happy Dragon Boat Festival】
YDA提提各位會員，記得計好碳水、check 好血糖先食糉呀
YDA reminds all members: remember to count your carbohydrates and check your blood glucose before eating rice dumplings.




#兒童糖尿協會 #一型糖尿病 #糖尿病
#兒童糖尿病 #糖尿病不是孩子的障礙 #端午節
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了解更多兒童糖尿協會: https://www.yda.org.hk/zh-hant/
Find out more about YDA: https://www.yda.org.hk/

19/05/2025

【青少年管弦樂入門慈善音樂會〡The young person’s guide to the orchestra charity concert】

我們誠邀您出席，由香港愛樂團傾力演出，為YDA籌款的精彩慈善音樂會❤️是次活動非常適合一家大小參與😆定能為大家帶來歡樂難忘的體驗~

活動詳情：
日期：2025年6月22日（星期日）
時間：下午3:00至5:00
地點：尖沙咀香港文化中心演奏廳

音樂會將演奏管弦樂的經典作品🎶包括《青少年管弦樂入門》和《魔法師的學徒》等，亦會有著名小號獨奏家Nitiphum Bamrungbanthum為大家帶來精彩的演奏🎺

我們需要您的支持，誠邀您購票或捐款贊助受惠者欣賞這場音樂盛宴🤗🤗

讓我們攜手支持糖尿病兒童！再次感謝您一直以來的鼎力支持！

✏️報名 ：https://airtable.com/appspKvXrSoc3Qw1S/shrzTsrFCIE923xyQ

We are excited to invite you to a wonderful charity concert to benefit YDA❤️ performed by the SAR Philharmonic Orchestra – a family-friendly event which promises to be a delightful experience for all ages😆

Date: Sunday, 22 June 2025
Time: 3.00-5.00pm
Venue: Concert Hall, Hong Kong Cultural Centre, Tsim Sha Tsui

The concert will feature well known classics 🎶including The Young Person’s Guide to the Orchestra and The Sorcerer’s Apprentice, as well as a trumpet rendition by renowned soloist Nitiphum Bamrungbanthum.
Your support is invaluable, and we encourage you to make a donation for tickets—either for yourself or to give others the opportunity to attend🤗🤗

Together, we can make a difference in the lives of young people affected by diabetes. Thank you for your continued support!

✏️Registration: https://airtable.com/appspKvXrSoc3Qw1S/shrzTsrFCIE923xyQ

#一型糖尿病 #二型糖尿病 #糖尿病 #兒童糖尿病 #兒童糖尿協會 #糖尿病不是孩子的障礙 #青少年管弦樂入門慈善音樂會 #慈善音樂會
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了解更多兒童糖尿協會: https://www.yda.org.hk/zh-hant/
Find out more about YDA: https://www.yda.org.hk/