Neuroendocrine Cancer Ireland - NET Patient Network

Neuroendocrine Cancer Ireland - NET Patient Network Neuroendocrine Cancer Ireland is Page for information about Neuroendocrine Cancer in Ireland

Neuroendocrine Cancer Ireland is Page for information about Neuroendocrine Cancer in Ireland and the NET Patient Network, an organisation of Neuroendocrine Tumour (NET) patients in Ireland. NET Tumours include; Carcinoid - Functioning and Non-Functioning Pancreatic Tumours - Multiple Endocrine Neoplasias (MEN) - Gastrinomas - Insulinomas - Glucagonomas - Pheochromocytomas - VIPomas - Goblet Cell Carcinoids

Please join our Main Facebook Group is here. https://www.facebook.com/groups/neuroendocrine.cancer.ireland.support/

This Group is Private, only members of this group can read posts here ...... but we also a have Group for Patients who want to discuss issues in even more Privacy, with other Patients. AFTER you join the main Group above and get excepted into the group, please ask an Admin to join the Net Patients Only Group. No Caregivers or Family members allowed, so discussions are between NET Patients ONLY.

11/12/2025

A very special thank you again to Orla, who is a patient.

Athgarvan Pitch and Putt in conjunction with Orla raised €177 for our Neuroendocrine Cancer Ireland - NET Patient Network charity.

05/12/2025

Our email is working again, sorry for any inconvenience.

03/12/2025

Our NET Patient Network email system is not working at the moment.

We will post again when it is back in action.

11/11/2025

Hello everyone.

Can everyone who is attending the event please let us know if anyone has dietary requirements or a vegetarian to send an email to info@netpatientnetwork.ie

To let us know please as we need to get a number for both meals, so for the Friday night dinner and Saturday lunch.

11/11/2025

We would like to provide some important updates regarding parking, Friday night’s dinner, and a clarification about the event agenda..

Parking Information

All attendees of the Patient Day should park in the Level -1 underground car park, where complimentary guest parking is available.
Please note:

The surface car park has a strict one-hour limit, and vehicles parked beyond this may be clamped.

There are three EV charging points in the underground car park, available for use by hotel residents.

Friday Night Dinner

The dinner will begin at 7:30 p.m. in The Plaza Suite. Members of the committee and volunteers will be on site to welcome you.

A committee member will be seated at each table to help introduce everyone and foster connections.

To help everyone get to know one another, especially members attending for the first time, we’ll have name badge stickers available at the table and again in the morning before the conference as you arrive at the conference room.

Agenda Clarification

We’d like to clarify a small error in the agenda circulated yesterday:

Lisa Cullen is no longer working in the Centre of Excellence at St. Vincent’s University Hospital and will not be in attendance.

We apologise for the oversight.

Orla Dunlevy, who took on the role in September, will be attending the event.

While she won’t be part of the panel discussion, we look forward to welcoming her.

Orla is available Monday to Friday to support all diagnosed NET patients, not just those under St. Vincent’s University Hospital. You can contact her at: netcentre@svhg.ie .

We’re looking forward to seeing you all this weekend.

Wishing you safe travels.

10/11/2025

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Coolock

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