Neuroendocrine Cancer Ireland - NET Patient Network

Neuroendocrine Cancer Ireland - NET Patient Network Neuroendocrine Cancer Ireland is Page for information about Neuroendocrine Cancer in Ireland and the

Neuroendocrine Cancer Ireland is Page for information about Neuroendocrine Cancer in Ireland and the NET Patient Network, an organisation of Neuroendocrine Tumour (NET) patients in Ireland. NET Tumours include; Carcinoid - Functioning and Non-Functioning Pancreatic Tumours - Multiple Endocrine Neoplasias (MEN) - Gastrinomas - Insulinomas - Glucagonomas - Pheochromocytomas - VIPomas - Goblet Cell Carcinoids

Please join our Main Facebook Group is here. https://www.facebook.com/groups/neuroendocrine.cancer.ireland.support/

This Group is Private, only members of this group can read posts here ...... but we also a have Group for Patients who want to discuss issues in even more Privacy, with other Patients. AFTER you join the main Group above and get excepted into the group, please ask an Admin to join the Net Patients Only Group. No Caregivers or Family members allowed, so discussions are between NET Patients ONLY.

03/09/2025

Our annual NET Patient event is been held on Friday November 14th and Saturday November 15th.

In order for the event to be a success again this year we need volunteers to help out.

We will need people to help for the following:

Friday night dinner.

Saturday event.

Saturday lunch.

If you or your family members would be willing to volunteer please send an email to:

info@netpatientnetwork.ie

28/08/2025

Congratulations to our NET Patient Network Committee member Justin Winters who has been appointed Patient Advocate for the Centre of Excellence NET's clinic in St Vincent's Hospital. 🎉🎊

14/08/2025

There is a charity cycle this Friday, August 25th and a third of the funds raised are going to NET Patient Network.

The video below will give you more information, including a section with Mark McDonnell, Chairperson of NET Patient Network.

If you would like to contribute to three worthy causes, here's the link to their Go Fund Me page.

https://gofund.me/f2afe8e9

28/02/2025

🔔Today is !
Let’s shine the light on people living with a rare disease, and foster change in the lives of 300 million people worldwide.
📌Neuroendocrine cancer is a complex disease. The incidence is said to be between 6 or 8 per 100 000 population, and it is growing.
👉We need more healthcare professionals to be aware of neuroendocrine cancer to be able to suspect it as a diagnosis and refer patients for a scan and/or to specialists promptly.
✅Please watch and read the NET patient stories to learn from them: https://incalliance.org/patient-stories/
✅We help HCPs with factsheets on 26 NENs – available in the following 11 languages: Arabic, Chinese, English, French, German, Hindi, Italian, Japanese, Portuguese, Russian and Spanish: https://incalliance.org/net-info-packs/

Disease Day
-Rare Diseases Europe

A big THANK YOU to the Irish Cancer Society for adding a Neuroendocrine Tumours booklet to their Daffodil Centres. ...
17/11/2024

A big THANK YOU to the Irish Cancer Society for adding a Neuroendocrine Tumours booklet to their Daffodil Centres.

NET Patient Day 2024 starts.
16/11/2024

NET Patient Day 2024 starts.

10/11/2024

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