Spina Bifida Hydrocephalus Ireland (SBHI)

Spina Bifida Hydrocephalus Ireland (SBHI) Enriching and enhancing the lives of those in Ireland who are living with Spina Bifida and/or Hydrocephalus, and the lives of their families and wider circle
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We are delighted to be selected by Íova again this year as the chosen charity for their annual winter show!The show will...
09/12/2025

We are delighted to be selected by Íova again this year as the chosen charity for their annual winter show!

The show will take place Saturday, December 13th from 3pm-9pm in Tailors Hall, Dublin D08 X2A3 and a variety of prints will be on sale with 50% of the sales going towards helping us to continue to support and offer services to those in Ireland living with Spina Bifida and/or Hydrocephalus 🩵

Here are some of the very glamorous photos of our very glamorous guests at this year’s SBHI Open Opportunity Service Gal...
09/12/2025

Here are some of the very glamorous photos of our very glamorous guests at this year’s SBHI Open Opportunity Service Gala Ball.

This was the 4th year of this exciting and much anticipated event, especially by our Members.
We would like to say a huge thank you to all who supported us to raise much needed funds for the SBHI OOS Service, a vital service for many in SBHI.

The current tally of funds raised is €15,405. Thank you to all who supported the event in anyway, big or small. It was a night full of fun, laughter and togetherness in our SBHI Community.

09/12/2025
03/12/2025
‼️CancellationDue to low sign up we unfortunately have cancelled this week’s ‘Christmas Get-together’
02/12/2025

‼️Cancellation

Due to low sign up we unfortunately have cancelled this week’s ‘Christmas Get-together’

Last minute prep for this evening’s ❄️Winter Gala Ball❄️ Our annual fundraiser is for our members, by our members ❤️ Eac...
22/11/2025

Last minute prep for this evening’s ❄️Winter Gala Ball❄️

Our annual fundraiser is for our members, by our members ❤️ Each hamper, gift bag, plan, design is created by them and it is an incredible event that they put together each year!

We looking forward to seeing you all later 🎄

❄️SBHI OOS Gala Ball Update❄️Registration is now closed for this year's Gala Ball which is taking place this Saturday, 2...
18/11/2025

❄️SBHI OOS Gala Ball Update❄️

Registration is now closed for this year's Gala Ball which is taking place this Saturday, 22nd of November.

If you cannot attend, but would still like to support- please consider buying some tickets for the raffle which will be held on the night https://www.idonate.ie/raffle/SBHIGalaBall

Many luxury Gift hampers, deluxe hampers & retail vouchers up for grabs which our service users along with staff sourced and made within their day service to raise vital funds. 🥰

iDonate.ie - SBHI OOS Gala Ball Raffle for Spina Bifida Hydrocephalus Ireland - iDonate Ireland online raffles for causes

Massive well done to the  on their incredible win over the weekend! We have met the team a few times during our annual r...
18/11/2025

Massive well done to the on their incredible win over the weekend!

We have met the team a few times during our annual respite break to and they have always been so kind and interested in hearing about the supports and services we provide to those in Ireland living with Spina Bifida and/or Hydrocephalus ❤️

We were so grateful to visit Dundalk yesterday to receive a cheque from one of our   Dublin Marathon Runners.Paul raised...
13/11/2025

We were so grateful to visit Dundalk yesterday to receive a cheque from one of our Dublin Marathon Runners.

Paul raised an incredible €6,450 for Spina Bifida Hydrocephalus Ireland while also completing his first ever marathon! Thank you to you all - Paul, Fiona, Aoife, and Grainne - the level of commitment a marathon takes for an entire family is so high and to do it while raising funds for a charity is even more admirable 💙

We have very limited spaces for the 2026 Marathon -if you are interested in being a part of you can apply here: https://consoles.realbuzz.com/charity/dublin-marathon/listings/?utm_source=Irish+Life+Dublin+website&utm_medium=Listing+Page&utm_campaign=7+June+23

Reminder about our upcoming webinar for any parents who have children considering third level education in the next year...
10/11/2025

Reminder about our upcoming webinar for any parents who have children considering third level education in the next year or two! 🎓

Zoe will be hosting a Webinar on the 11th of November where she will talk about the transition from second to third level education information. this webinar is aimed at 5th and 6th year members and their parents/guardians.

Discuss your options with our Training and Education Team.

Online 7pm-8pm
November 11th
Email zcole@sbhi.ie to register

SBHI's What Works For Me programme is co-funded by the Government of Ireland, through the Department of Social Protection, and the European Union.

Address

National Resource Centre, Old Nangor Road, Clondalkin
Dublin
D22W5C1

Opening Hours

Monday 9am - 1pm
2pm - 5pm
Tuesday 9am - 1pm
2pm - 5pm
Wednesday 9am - 1pm
2pm - 5pm
Thursday 9am - 1pm
2pm - 5pm
Friday 9am - 1pm
2pm - 5pm

Telephone

+35314572329

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Our Mission

This page has been created to raise awareness of spina bifida and/or hydrocephalus. We want to provide information and advice to those with the conditions as well as those who have family and friends with spina bifida and/or hydrocephalus.

Through this page you can also find information on our fundraising initiatives and how to become a volunteer with the organisation. We will also update this page with news on our conferences and seminars which take place throughout the year.

Spina Bifida is a relatively common condition, which affects about one in every 1000 children born per year in Ireland. Ireland has one of the highest incidences of Spina Bifida births in the world. Spina Bifida is the most common neural tube defect (NTD) which causes incomplete development of the spinal cord.

SBHI, Spina Bifida Hydrocephalus Ireland was established in 1968 by a small group of parents whose children had Spina Bifida and/or Hydrocephalus. These parents continue to dedicate their time to the association and are now elected volunteers on our Board of Directors as well as being elected to Branch Committees nationally. Today, SBHI has over 4 000 members and has branches in all four provinces, as well as a professionally run National Resource Centre based in Clondalkin, Dublin 22.