Enriching and enhancing the lives of those in Ireland who are living with Spina Bifida and/or Hydrocephalus, and the lives of their families and wider circle
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20/02/2026
AGM and Conference Weekend Expression of Interest Form
Taking place on May 8th-10th in the Hodson Bay Hotel, Athlone. Please complete this form before 3pm TODAY, the 20th of February if you are interested in attending this year's event.
PLEASE NOTE: YOU MUST BOOK THROUGH SBHI ONLY.
Once you have completed the form, Our Respite Manager, Louise, will be in touch in the coming weeks with pricing. If you have any queries in the meantime please email lhealy@sbhi.ie.
Please click the link to complete this form.
19/02/2026
We have just added some new merchandise to the SBHI Shop!
New items include:
> Embroidered SBHI Beanie
>Detachable €1 and €2 trolley tokens
>'Beanie and Bear' Bundle
You can support the life changing services and supports we provide to those living in Ireland with Spina Bifida and/or Hydrocephalus by viewing /purchasing from the SBHI Shop here: https://sbhi.ie/product-category/new/
18/02/2026
Don't forget about our upcoming coffee mornings next week 😊
The first of our Coffee Mornings are coming up this month!☕️
As part of our 2026 ‘Making Connections’ initiative, the Family Liaison Team are delighted to invite you to our first coffee morning of the year. There will be four coffee mornings throughout the year, held in different locations throughout Ireland, offering opportunities to connect and chat in a relaxed atmosphere. Get in touch with your local Family Liaison Officer if you are interested in attending, or have any queries.
Coffee Mornings will take place on February 25th from 11am-1pm at the following locations:
📍SLIGO: Glasshouse Hotel
📍STILLORGAN: Talbot Hotel
📍NEWBRIDGE: Keadeen Hotel
📍MULLINGAR: Bloomfield Hotel
📍DUNDALK: Gateway Hotel
📍WEXFORD: Whitford Hotel
📍CORK: Maldron Hotel, Cork City
Everyone Welcome - We look forward to seeing you there!💙
18/02/2026
We’re delighted to announce our upcoming Get Job Ready workshop as part of our What Works for Me Programme.
This will run across two separate sessions, each focusing on two key areas to help you feel confident and prepared for employment.
Session 1
Date: 19th March 2026
Place: Glashaus Hotel, Tallaght, Dublin
Time 10am to 4pm
Topics covered:
>Crafting a strong CV and tailoring it to specific roles
>How to job search effectively, including creating and managing online job search profiles
Lunch will be provided. The venue is easily accessible, with Luas and bus stops right at the hotel, and parking available on site.
Session 2
(Date to be confirmed)
This session will focus on:
>Interview preparation, including mock interviews with real employers
>What happens after you secure employment, including employment rights, reasonable accommodations, the Work and Access scheme, and other key supports
Places are limited and the strict closing date to register is 5th March 2026.
The What Works For Me Programme is co-funded by the Government of Ireland, through the Department of Social Protection, and the European Union alongside Workability: Inclusive Pathways to Employment Programme
16/02/2026
We currently have three spaces remaining for this workshop. Please contact cmccormack@sbhi.ie to book in.
14/02/2026
Happy Valentine's Day Everyone ❤️
Our members had great fun last week at our annual Valentine's Social night 😍
12/02/2026
The first of our Coffee Mornings are coming up this month!☕️
As part of our 2026 ‘Making Connections’ initiative, the Family Liaison Team are delighted to invite you to our first coffee morning of the year. There will be four coffee mornings throughout the year, held in different locations throughout Ireland, offering opportunities to connect and chat in a relaxed atmosphere. Get in touch with your local Family Liaison Officer if you are interested in attending, or have any queries.
Coffee Mornings will take place on February 25th from 11am-1pm at the following locations:
📍SLIGO: Glasshouse Hotel
📍STILLORGAN: Talbot Hotel
📍NEWBRIDGE: Keadeen Hotel
📍MULLINGAR: Bloomfield Hotel
📍DUNDALK: Gateway Hotel
📍WEXFORD: Whitford Hotel
📍CORK: Maldron Hotel, Cork City
Everyone Welcome - We look forward to seeing you there!💙
11/02/2026
*Memo from our Chief Executive Officer, Gerry Maguire:*
'' Please see attached HSE Press Release below. I know this is yet another worrying time for both parents of children living with Spina Bifida and/or Hydrocephalus and also for young adults who have transitioned from child to adult services. Should you wish to discuss any concerns, please do not hesitate to contact me, Gerry''
Mr Selvadurai Nayagam, the independent expert reviewing parts of the Paediatric Orthopaedic Surgery service at CHI and NOHC, has now completed the first phase of his review.
09/02/2026
This year's AGM and Conference Weekend will be taking place in the Hodson Bay Hotel, Athlone from the 8th of May until the 10th. If you are interested in attending please complete expression of interest from linked below *before* February 18th.
Please click the link to complete this form.
06/02/2026
An emotional but very happy day when our Dear Member, Hellen Martin, returned to the SBHI Open Opportunity Service after a long and very serious illness. Hellen was welcomed back by her friends and staff to a big party, handmade cards and banners to mark her incredible fight and road back. The strength and resilience of all our Members is one that bowls us over each and everyday and we are honoured to support them and their families and carers on their journey. Thinking of all those who are currently unwell and get well soon! 💕
23/01/2026
23/01/2026
Welcome, Minwei!🎉
Minwei is joining the SBHI Team over in our Open Opportunities Day Service as a Functional Support and Key Worker.
She is looking forward to supporting our community in discovering new talents, boosting their confidence and wellbeing through the nature, art and healthy cooking. Outside of work, she a good cook and enjoys hiking and Zumba!
We are looking forward to having you on the team, Minwei 😊
Address
National Resource Centre, Old Nangor Road, Clondalkin Dublin D22W5C1
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Contact The Practice
Send a message to Spina Bifida Hydrocephalus Ireland (SBHI):
This page has been created to raise awareness of spina bifida and/or hydrocephalus. We want to provide information and advice to those with the conditions as well as those who have family and friends with spina bifida and/or hydrocephalus.
Through this page you can also find information on our fundraising initiatives and how to become a volunteer with the organisation. We will also update this page with news on our conferences and seminars which take place throughout the year.
Spina Bifida is a relatively common condition, which affects about one in every 1000 children born per year in Ireland. Ireland has one of the highest incidences of Spina Bifida births in the world. Spina Bifida is the most common neural tube defect (NTD) which causes incomplete development of the spinal cord.
SBHI, Spina Bifida Hydrocephalus Ireland was established in 1968 by a small group of parents whose children had Spina Bifida and/or Hydrocephalus. These parents continue to dedicate their time to the association and are now elected volunteers on our Board of Directors as well as being elected to Branch Committees nationally. Today, SBHI has over 4 000 members and has branches in all four provinces, as well as a professionally run National Resource Centre based in Clondalkin, Dublin 22.
The mission or purpose of Spina Bifida Hydrocephalus Ireland is to provide information, support and advice to people with Spina Bifida and/or Hydrocephalus, their parents and carers, as well as to promote social inclusion and equality for people with Spina Bifida and/or Hydrocephalus in Irish society.
