Spina Bifida Hydrocephalus Ireland (SBHI)

03/10/2025

Our 2025 Spina Bifida Hydrocephalus Awareness Week event guide has landed!

We have a jam packed week with events for everyone and hope you can all join us in spreading the message that 🤚

In preparation for the week we have handprint art packs that we would love for our Spina Bifida Hydrocephalus community to design their own and write on them why they feel they matter and also to describe a time or reason they have felt they don't matter. These will be shared - anonymously- on our social media pages on Friday the 24th which is International Federation for Spina Bifida and Hydrocephalus International Spina Bifida Hydrocephalus Day. To order your handprint please email Noelle : njordan@sbhi.ie before next Friday, 10th of October

Which events will you be joining us for? 🗓

02/10/2025

We will be releasing the event guide for this year's Spina Bifida Hydrocephalus Awareness Week tomorrow 👀 Keep an eye on our social media pages!

02/10/2025

LAST CHANCE TO REGISTER !

Will you be joining us at this year's SBHI Halloween Party? 🧛‍♂️

When: Saturday, October 25th 7pm-11pm
Where: Maldron Hotel, Tallaght

This is an event for over 18s. If you are interested in joining us on the night, please email respite@sbhi.ie or contact Louise on 085-7119087.

01/10/2025

🛎Only 6 days left to apply to this role of Driver / Care Assistant!

SBHI is seeking a reliable & compassionate Driver/Care Assistant to support individuals with Spina Bifida/ Hydrocephalus in their daily transport & care needs.

01/10/2025

IF’s webinar ‘Living with SBH: Our Lives, Our Choices’ is starting soon!

🗣️ Our insightful panellists are ready to share their experiences on living with Spina Bifida and Hydrocephalus (SBH) - and they’re waiting for you to join the conversation 👇

🔹Gerry Maguire – Spina Bifida Hydrocephalus Ireland (SBHI)
🔹Su Xiao Vin – Spina Bifida and Hydrocephalus Association of Malaysia
🔹Jurn Anthonis – Vereniging voor Spina Bifida & Hydrocephalus
🔹Maahi Rudawat – Spina Bifida Foundation - India

📌 Register and join 👉 bit.ly/4gjQX8X

01/10/2025

Spina Bifida Hydrocephalus Ireland (SBHI) in collaboration with Cuimsiu (part of FIT) ( https://fit.ie/cuimsiu-programme/ ) invite you to an exclusive half-day event designed for HR professionals, recruiters, and employers who want to change the way they see recruitment. This event is part of our What Works for Me programme. The programme is designed to support SBHI members living with disabilities to move closer to the labour market. This programme is funded by Pobal and the European Union.

Date: Thursday 16th October 2025
Time: 9:00am – 1:00pm
Location: The Maldron Hotel, Newlands Cross, Dublin

This event will challenge traditional hiring practices and open your eyes to the talent, skills, and value that people with disabilities bring to the workplace. Through real stories, practical strategies, and interactive sessions, you’ll discover how to:

Write inclusive job descriptions
Run accessible and bias-free recruitment processes
Make reasonable accommodations that really work
Retain and support employees with confidence

Featuring:
Expert speakers from experts in the industry.
First-hand perspectives from employers and employees.
Practical tools to take back to your organisation.

Attendance is free, but places are limited.
Register now via Eventbrite: https://www.eventbrite.ie/e/turning-recruitment-on-its-head-building-inclusive-hiring-practices-tickets-1659139112749?aff=oddtdtcreator

24/09/2025

Unfortunately we have received no sign ups to the below webinar we were planning to hold tomorrow.

If you are interested in learning some skills to building healthier habits around sleeping, exercise and food - and are free tomorrow evening at 7pm to attend the online webinar - please email Zoe at zcole@sbhi.ie to get the webinar link before lunch time tomorrow

📌Building Healthy Habits📌

Zoe, our Education and Learning Coordinator , will be hosting an online session Thursday 25th of September at 7pm around ‘Building Healthy Habits’.

This session will give participants the introductory skills to begin living a healthier, happier life! Building healthy habits with food, sleep and exercise.

To register email Zoe at zcole@sbhi.ie

24/09/2025

This is amazing to see!💙

23/09/2025

We are hiring!

At Spina Bifida Hydrocephalus Ireland we're looking for a Driver / Care Assistant to join our values-driven, collaborative, and deeply rewarding team.

Apply via the link below

SBHI is seeking a reliable & compassionate Driver/Care Assistant to support individuals with Spina Bifida/ Hydrocephalus in their daily transport & care needs.

20/09/2025

James was born with Congenital Hydrocephalus in 1966. He was given the opportunity to tell his story in a project run by Dublin City Council "Humans of Dublin".

💙

20/09/2025

Today is . This year's theme is: “Raising Awareness, Redefining Outcomes”

“Raising Awareness, Redefining Outcomes” reflects the strength and perseverance of people living with hydrocephalus and those who support them. It’s about sharing stories of triumph of overcoming delayed diagnoses, navigating complex care journeys, and advocating for a better future. Each voice raised helps break stigma, build understanding, and create space for real change. Redefining outcomes means not just surviving, but thriving, living fully, achieving goals, and proving that with the right support, anything is possible.

Hydrocephalus Association

18/09/2025

📌Building Healthy Habits📌

Zoe, our Education and Learning Coordinator , will be hosting an online session Thursday 25th of September at 7pm around ‘Building Healthy Habits’.

This session will give participants the introductory skills to begin living a healthier, happier life! Building healthy habits with food, sleep and exercise.

To register email Zoe at zcole@sbhi.ie