Spina Bifida Hydrocephalus Ireland (SBHI)

Spina Bifida Hydrocephalus Ireland (SBHI) Enriching and enhancing the lives of those in Ireland who are living with Spina Bifida and/or Hydrocephalus, and the lives of their families and wider circle
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There are still two places left on tomorrow's wheelchair skills workshop - lunch is included. If you are free join us fo...
08/04/2026

There are still two places left on tomorrow's wheelchair skills workshop - lunch is included. If you are free join us for a fun, and educational day!

This workshop is so kindly being funded the Irish Youth Foundation

This workshop is so kindly being funded the Irish Youth Foundation

SBHI April Newsletter πŸ“ƒ -
06/04/2026

SBHI April Newsletter πŸ“ƒ -

Welcome to our April newsletter. The clocks have gone forward, the evenings are brighter, and the daffodils are in full bloom. So let’s all wave goodbye to one miserable rain-filled winter! March was a busy month for SBHI which included our Family Weekend in Kilkenny. The feedback we received was ...

πŸ§‘πŸ’™
02/04/2026

πŸ§‘πŸ’™

We have THREE SPACES REMAINING for our upcoming Wheelchair Skills Workshop! Get in touch with Claire if you and your fam...
30/03/2026

We have THREE SPACES REMAINING for our upcoming Wheelchair Skills Workshop! Get in touch with Claire if you and your family would like to join

This workshop is so kindly being funded the Irish Youth Foundation

This workshop is so kindly being funded the Irish Youth Foundation

Reminder of our upcoming webinar on Online Safety When Making Payments!
26/03/2026

Reminder of our upcoming webinar on Online Safety When Making Payments!

πŸ›‘οΈ Online Safety Awareness Session

Stay safe online! Learn how to spot and avoid scam emails, texts, and phone calls, and find out what to do if you encounter them.

πŸ“… Date: Wednesday 1st April
πŸ•› Times: 12:00 PM and 7:00 PM (choose the session that suits you)
πŸ’» Location: Online

To register, contact Zoe at zcole@sbhi.ie or 087 348 3268.

Stay informed. Stay protected.

πŸ›‘οΈ Online Safety Awareness SessionStay safe online! Learn how to spot and avoid scam emails, texts, and phone calls, and...
19/03/2026

πŸ›‘οΈ Online Safety Awareness Session

Stay safe online! Learn how to spot and avoid scam emails, texts, and phone calls, and find out what to do if you encounter them.

πŸ“… Date: Wednesday 1st April
πŸ•› Times: 12:00 PM and 7:00 PM (choose the session that suits you)
πŸ’» Location: Online

To register, contact Zoe at zcole@sbhi.ie or 087 348 3268.

Stay informed. Stay protected.

08/03/2026

Happy πŸ’• The fabulous ladies in our Open Opportunities Day Service celebrated themselves in style this weeks ✨πŸͺ©

01/03/2026

Everybody at SBHI is so sad to hear of the terribly sad passing of our former Board Chairman, Interim CEO, current Board member and lifelong friend and advocate of our Association and its members, Fiach McDonagh. Our deepest sympathies to Shane and all of Fiach's other children and his beloved wife Anne. Thank you so much Fiach for being the essence of SBHI. We will miss you so much. Rest in peace dear friendπŸ’™

AGM and Conference Weekend Expression of Interest FormTaking place on May 8th-10th in the Hodson Bay Hotel, Athlone.  Pl...
20/02/2026

AGM and Conference Weekend Expression of Interest Form

Taking place on May 8th-10th in the Hodson Bay Hotel, Athlone. Please complete this form before 3pm TODAY, the 20th of February if you are interested in attending this year's event.


PLEASE NOTE: YOU MUST BOOK THROUGH SBHI ONLY.

Once you have completed the form, Our Respite Manager, Louise, will be in touch in the coming weeks with pricing. If you have any queries in the meantime please email lhealy@sbhi.ie.

Please click the link to complete this form.

We have just added some new merchandise to the SBHI Shop! New items include:> Embroidered SBHI Beanie>Detachable €1 and ...
19/02/2026

We have just added some new merchandise to the SBHI Shop!
New items include:
> Embroidered SBHI Beanie
>Detachable €1 and €2 trolley tokens
>'Beanie and Bear' Bundle

You can support the life changing services and supports we provide to those living in Ireland with Spina Bifida and/or Hydrocephalus by viewing /purchasing from the SBHI Shop here: https://sbhi.ie/product-category/new/

Address

National Resource Centre, Old Nangor Road, Clondalkin
Dublin
D22W5C1

Opening Hours

Monday 9am - 1pm
2pm - 5pm
Tuesday 9am - 1pm
2pm - 5pm
Wednesday 9am - 1pm
2pm - 5pm
Thursday 9am - 1pm
2pm - 5pm
Friday 9am - 1pm
2pm - 5pm

Telephone

+35314572329

Alerts

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Our Mission

This page has been created to raise awareness of spina bifida and/or hydrocephalus. We want to provide information and advice to those with the conditions as well as those who have family and friends with spina bifida and/or hydrocephalus.

Through this page you can also find information on our fundraising initiatives and how to become a volunteer with the organisation. We will also update this page with news on our conferences and seminars which take place throughout the year.

Spina Bifida is a relatively common condition, which affects about one in every 1000 children born per year in Ireland. Ireland has one of the highest incidences of Spina Bifida births in the world. Spina Bifida is the most common neural tube defect (NTD) which causes incomplete development of the spinal cord.

SBHI, Spina Bifida Hydrocephalus Ireland was established in 1968 by a small group of parents whose children had Spina Bifida and/or Hydrocephalus. These parents continue to dedicate their time to the association and are now elected volunteers on our Board of Directors as well as being elected to Branch Committees nationally. Today, SBHI has over 4 000 members and has branches in all four provinces, as well as a professionally run National Resource Centre based in Clondalkin, Dublin 22.