Enriching and enhancing the lives of those in Ireland who are living with Spina Bifida and/or Hydrocephalus, and the lives of their families and wider circle
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08/04/2026
There are still two places left on tomorrow's wheelchair skills workshop - lunch is included. If you are free join us for a fun, and educational day!
This workshop is so kindly being funded the Irish Youth Foundation
This workshop is so kindly being funded the Irish Youth Foundation
06/04/2026
SBHI April Newsletter π -
Welcome to our April newsletter. The clocks have gone forward, the evenings are brighter, and the daffodils are in full bloom. So letβs all wave goodbye to one miserable rain-filled winter! March was a busy month for SBHI which included our Family Weekend in Kilkenny. The feedback we received was ...
02/04/2026
π§‘π
30/03/2026
We have THREE SPACES REMAINING for our upcoming Wheelchair Skills Workshop! Get in touch with Claire if you and your family would like to join
This workshop is so kindly being funded the Irish Youth Foundation
This workshop is so kindly being funded the Irish Youth Foundation
26/03/2026
Reminder of our upcoming webinar on Online Safety When Making Payments!
π‘οΈ Online Safety Awareness Session
Stay safe online! Learn how to spot and avoid scam emails, texts, and phone calls, and find out what to do if you encounter them.
π Date: Wednesday 1st April
π Times: 12:00 PM and 7:00 PM (choose the session that suits you)
π» Location: Online
To register, contact Zoe at zcole@sbhi.ie or 087 348 3268.
Stay informed. Stay protected.
19/03/2026
π‘οΈ Online Safety Awareness Session
Stay safe online! Learn how to spot and avoid scam emails, texts, and phone calls, and find out what to do if you encounter them.
π Date: Wednesday 1st April
π Times: 12:00 PM and 7:00 PM (choose the session that suits you)
π» Location: Online
To register, contact Zoe at zcole@sbhi.ie or 087 348 3268.
Stay informed. Stay protected.
09/03/2026
Our March newsletter has arrived! You can view it, alongside previous monthly SBHI newsletters on our website:
Everybody at SBHI is so sad to hear of the terribly sad passing of our former Board Chairman, Interim CEO, current Board member and lifelong friend and advocate of our Association and its members, Fiach McDonagh. Our deepest sympathies to Shane and all of Fiach's other children and his beloved wife Anne. Thank you so much Fiach for being the essence of SBHI. We will miss you so much. Rest in peace dear friendπ
20/02/2026
AGM and Conference Weekend Expression of Interest Form
Taking place on May 8th-10th in the Hodson Bay Hotel, Athlone. Please complete this form before 3pm TODAY, the 20th of February if you are interested in attending this year's event.
PLEASE NOTE: YOU MUST BOOK THROUGH SBHI ONLY.
Once you have completed the form, Our Respite Manager, Louise, will be in touch in the coming weeks with pricing. If you have any queries in the meantime please email lhealy@sbhi.ie.
Please click the link to complete this form.
19/02/2026
We have just added some new merchandise to the SBHI Shop!
New items include:
> Embroidered SBHI Beanie
>Detachable β¬1 and β¬2 trolley tokens
>'Beanie and Bear' Bundle
You can support the life changing services and supports we provide to those living in Ireland with Spina Bifida and/or Hydrocephalus by viewing /purchasing from the SBHI Shop here: https://sbhi.ie/product-category/new/
Address
National Resource Centre, Old Nangor Road, Clondalkin Dublin D22W5C1
Be the first to know and let us send you an email when Spina Bifida Hydrocephalus Ireland (SBHI) posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.
This page has been created to raise awareness of spina bifida and/or hydrocephalus. We want to provide information and advice to those with the conditions as well as those who have family and friends with spina bifida and/or hydrocephalus.
Through this page you can also find information on our fundraising initiatives and how to become a volunteer with the organisation. We will also update this page with news on our conferences and seminars which take place throughout the year.
Spina Bifida is a relatively common condition, which affects about one in every 1000 children born per year in Ireland. Ireland has one of the highest incidences of Spina Bifida births in the world. Spina Bifida is the most common neural tube defect (NTD) which causes incomplete development of the spinal cord.
SBHI, Spina Bifida Hydrocephalus Ireland was established in 1968 by a small group of parents whose children had Spina Bifida and/or Hydrocephalus. These parents continue to dedicate their time to the association and are now elected volunteers on our Board of Directors as well as being elected to Branch Committees nationally. Today, SBHI has over 4 000 members and has branches in all four provinces, as well as a professionally run National Resource Centre based in Clondalkin, Dublin 22.
The mission or purpose of Spina Bifida Hydrocephalus Ireland is to provide information, support and advice to people with Spina Bifida and/or Hydrocephalus, their parents and carers, as well as to promote social inclusion and equality for people with Spina Bifida and/or Hydrocephalus in Irish society.