Enriching and enhancing the lives of those in Ireland who are living with Spina Bifida and/or Hydrocephalus, and the lives of their families and wider circle
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09/09/2025
Jigsaw will be joining us live on zoom to deliver their One Good Adult workshop on September 18th.
There will be two sessions of the same workshop one at 10 am and another at 7pm.
Please register by emailing education@sbhi.ie with your name followed by One Good Adult and your preferred time to attend.
One Good Adult This 1.5 hour workshop is for any adult who is or can be ‘One Good Adult’ in the life of a young person.
At the end of the workshop attendees will:
Understand the factors that influence youth mental health.
Recognise the importance of One Good Adults in supporting young people's mental health.
Recognise the importance of self-care for One Good Adults.
05/09/2025
Thank you to the guys down in Carnew, Co.Wicklow who hosted the annual Tom Hennessy Memorial Horseshoe tournament and raised an amazing €350 for Spina Bifida Hydrocephalus Ireland.
Donations like these are used towards continuing to provide services and supports such as respite breaks, family weekends, counselling and family liaison support to individuals all over Ireland who live with Spina Bifida and/or Hydrocephalus. 💙🧡
03/09/2025
We are looking for feedback from parents on managing Catheterisation in a school setting. We would really appreciate you sharing your experience if you have a child in school this year who requires catheterisation
Please click the link to complete this form.
02/09/2025
Jigsaw will be joining us live on zoom to deliver their One Good Adult workshop on September 18th.
There will be two sessions of the same workshop one at 10 am and another at 7pm.
Please register by emailing education@sbhi.ie with your name followed by One Good Adult and your preferred time to attend.
One Good Adult This 1.5 hour workshop is for any adult who is or can be ‘One Good Adult’ in the life of a young person.
At the end of the workshop attendees will:
Understand the factors that influence youth mental health.
Recognise the importance of One Good Adults in supporting young people’s mental health.
Recognise the importance of self-care for One Good Adults.
01/09/2025
🎒Back to school or starting a new school?
We would love to include some 'first day' photos in this month's newsletter! Please email Noelle at njordan@sbh.ie or send via DM by 5pm to have your child's, or your own, photo included ☺️
And did you know - our Training, Education, and Employment Team offer 'Hydrocephalus' and 'Spina Bifida' awareness training to schools?
Link in with Claire at cmccormack@sbhi.ie to arrange. She will liaise with the school to arrange an in-person awareness training session to anyone who will be involved in caring for your child while they are in their school environment. Providing shunt cards if needed and training based on your child's individual needs.
Afterwards, she will have a follow up call with yourselves to highlight any areas that may need to be addressed and to recap on what was included in the training.
26/08/2025
Our Coloplast Clinics are back!
Nurse Debbie will be in SBHI Headquarters on the below dates to help you with any bowel/bladder issues anyone in our Spina Bifida Hydrocephalus community are experiencing including, but not limited to Ostomy Care / Continence Care / Wound & Skin Care / Interventional Urology
Debbie will be on site on the below dates:
Wednesday 24th September
Wednesday 28th October
Wednesday 25th November
Video or phone consultations are also available if you cannot make it up to our office. (SBHI, Old Nangor Road, Clondalkin, Dublin D22W5C1)
To book a slot at any of the above dates please contact the clinic coordinator by phoning 01 9190192 or email nurseteam@coloplast.com
22/08/2025
The SBHI Golf Classic 2025 ⛳️
Thank you to all our players, sponsors and donators for helping the SBHI 2025 Golf Classic raise over €4,050!
We were blessed as always with sunny skies ☀️ And happy faces all round!
The event is always a great day out and we would love to see it continue to grow bigger and bigger!
The McCarthy's continue as winners again this year taking home the cup for the second year in a row! 🏆
18/08/2025
Registration is now open for our final Teen Event of 2025! This time the event will be in collaboration with the Connacht and Donegal Branches of SBHI!
The meet up will be from 2:30pm-5pm on Saturday, September 27th in Lough Key Forest & Activity Park Co. Roscommon.
*NOTE* Deadline for completing the registration is Friday, 29th of August.
Please click the link to complete this form.
07/08/2025
📣DUBLIN BASED ARTISTS- We need your help! 📣
We are developing a memorial garden at our office in Clondalkin. A space for family and friends to visit and remember those they have lost in the Spina Bifida and Hydrocephalus community ❤️
We are almost done but need one more finishing touch - a wall mural!
If you are a local artist, or maybe beginning and looking for a practise canvas, please get in touch with us ASAP via DM or email Noelle at njordan@sbhi.ie📣
Address
National Resource Centre, Old Nangor Road, Clondalkin Dublin D22W5C1
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Contact The Practice
Send a message to Spina Bifida Hydrocephalus Ireland (SBHI):
This page has been created to raise awareness of spina bifida and/or hydrocephalus. We want to provide information and advice to those with the conditions as well as those who have family and friends with spina bifida and/or hydrocephalus.
Through this page you can also find information on our fundraising initiatives and how to become a volunteer with the organisation. We will also update this page with news on our conferences and seminars which take place throughout the year.
Spina Bifida is a relatively common condition, which affects about one in every 1000 children born per year in Ireland. Ireland has one of the highest incidences of Spina Bifida births in the world. Spina Bifida is the most common neural tube defect (NTD) which causes incomplete development of the spinal cord.
SBHI, Spina Bifida Hydrocephalus Ireland was established in 1968 by a small group of parents whose children had Spina Bifida and/or Hydrocephalus. These parents continue to dedicate their time to the association and are now elected volunteers on our Board of Directors as well as being elected to Branch Committees nationally. Today, SBHI has over 4 000 members and has branches in all four provinces, as well as a professionally run National Resource Centre based in Clondalkin, Dublin 22.
The mission or purpose of Spina Bifida Hydrocephalus Ireland is to provide information, support and advice to people with Spina Bifida and/or Hydrocephalus, their parents and carers, as well as to promote social inclusion and equality for people with Spina Bifida and/or Hydrocephalus in Irish society.
