27/01/2021
It is very difficult to ask, I have been accumulating for almost two months, but we cant no longer wait. I want to introduce you to a little girl whose childhood is being tried by a rare, terrible disease ... Rasmussen's encephalitis... A diagnosis that has turned our family's life upside down ... A month before our daughter's fifth birthday, our journey through hospitals began ... Infinite research to find the cause of what happened... We didn't find the answers after all the tests, all of them were good, only the MRI scan showed some water on the left side of the brain... I will never forget the words of the nurse of Santara clinics when my daughter had a hard time to wake up after anaesthesia... Mom did you know your child is invalid... Oh, I wanted to shout, no, I didn't know, my child was completely healthy two months ago ... Genetic tests and the answer again, everything is fine ... And the disease is there, no antiepileptic drugs did not stop seizures and right arms and legs tremors. Homoeopaths, osteopaths, wherever we went. The situation only got worse, my daughter more and more often forgot the necessary words ... Without receiving help in Lithuania, we signed up for a study in Ireland, where our father lived and worked. EEG examination and after our examination, they didn't let us go home... Again a bunch of examinations, a brain biopsy ... And again, all is well except the MRI, it shows that the left side of the brain is damaged. And this is typical for only one disease, Rasmussen's encephalitis. This disease has been discovered quite recently and has not yet been well studied. According to available data, it is an autoimmune disease, when the body itself begins to attack the brain, one in 10 million cases ... Because the brain is vulnerable, it causes seizures, many attacks, on bad days we have about a hundred a day ... We drink a bunch of drugs, steroids, chemotherapy, immunosuppressants .. 20 kg weight gain... No one knows why immunity is confused. In our case, no signs of the disease were found during the biopsy (found nothing but lesions), no antibodies were found in the blood as well. Diagnosis of the disease based on MRI data only. The MRI scans done a year and a half apart are no different, which gives us hope that the disease has stopped, done its dirty work and left ... All we need now is to force my daughter’s brain to regenerate so we can have two arms, two legs again, we could express our thoughts understandably and not forget the letters repeated every day for two years ... Before the disease, we knew them all... After reading one mother's wonderful experience about using Neuroptimal for a child with brain damage, we decided to give it a try. We found workouts just 130 km from us. A very sincere man, talking to him gives us a lot of hope, we see the positive changes, daughter's special assistant at school sees them too. Since the workouts are far from us, we can now only get there once a week, and according to Mr Steven, we would need at least three times, and it would be ideal every day ... Riding every day during the working week would be 1,300 kilometres, a lot, and one session costs 70 euros. .. Thanks again to Mr Steven for donating 10 sessions. To help our Enrika, we would like to buy this Neuroptimal equipment, then we could expect really good results. Neuroptimal was developed to treat epilepsy, and during the session, we were reassured by the onset of the attack. When we return home after the sessions, we notice improvements in Enrika's language, but a week's break, and even three at Christmas, brings her back ... Sure, we could save and the money, but my daughter needs help here and now, she doesn't have that much time ... We must prove to doctors that Enrika is healing, that the disease has stopped, otherwise they insist on surgery, to remove the damaged side of the brain ... Please, help us 10700 (Neuroptimal plus VAT) euros is very much for our family...
https://gofund.me/8501c2c5
It is very difficult to ask, I have been accumulating for almost tw… Egle Saveljeva needs your support for Help to return childhood for Enrika