Irish Platform for Patient Organisations, Science, Industry

10/07/2025

Learn & take the survey of people living with psoriasis in Ireland from the Irish Skin Foundation

07/05/2025

We are delighted to announce the appointment of Laura Brady, PhD, as our new Chief Executive Officer, effective 16 June 2025.

Laura brings over a decade of leadership experience across health innovation, patient advocacy, and academic research. Prior to joining IPPOSI, she was the Digital Health Innovation Lead at the FutureNeuro Research Centre for Translational Brain Science, where she successfully implemented a data and digital health strategy aimed at improving outcomes for individuals living with neurological and neuropsychiatric conditions.

Previous to this role, Laura was the Head of Research at Fighting Blindness, where she spearheaded the organisation’s research strategy. She notably expanded the Target 5000 national patient registry, enhanced public and patient involvement in research, and generated evidence-based data that contributed to the reimbursement of Ireland’s first-ever gene therapy for a rare retinal disease.

In addition to her professional achievements, Laura currently serves on the Board of Health Research Charities Ireland (HRCI) and is a member of the National Genetics & Genomics Office (NGGO) PPI & Communications Working Group. She holds a PhD in Biochemistry from Trinity College Dublin and a Professional Diploma in Leading Digital Health Transformation from RCSI University of Medicine & Health Sciences.

Laura is passionate about harnessing data, amplifying the patient voice, and fostering cross-sector collaboration to drive progress and unlock new opportunities in patient-centered healthcare innovation. We look forward to the impactful leadership Laura will bring to IPPOSI, and we are excited to continue our mission to advocate for patients and enhance healthcare outcomes in Ireland.

Welcome to the team Laura!

01/05/2025

Are you a parent or guardian of a child or children with a rare disease or undiagnosed condition living in Ireland and Northern Ireland? Consider taking a survey to support PhD research around the social and economic impact for families:

This study aims to understand the financial and social situations of families with a child or children with a rare disease across the island of Ireland. The online survey asks questions about the social and financial impact of having a child or children with a rare disease. It includes different que...

30/04/2025

The Centre in Ireland for Clinical guideline support and Evidence Reviews (CICER) in the Health Information and Quality Authority (HIQA) is working on a project to build awareness on how clinical guidelines are developed in Ireland. The project aims to build learning resources tailored specifically to patients and the public.

They are putting together a small panel of 5-6 patients and members of the public to help build these resources. The details about the project and panel can be found below.

03/04/2025

We were delighted to meet with the class of IPPOSI's 2025 Patient Education Programme yesterday. It was a great opportunity to get to know the wonderful group of patients, patient representatives, advocates and carers who will spend the next 11 months exploring the research and development process for new medicines, medical devices, and health technologies.

We wish them the best of luck on their journey and will be here to support them every step of the way.

The 2025 patient education programme is supported by:
Health Research Board (HRB), EUPATI, Health Products Regulatory Authority (HPRA), NCPE - National Centre for Pharmacoeconomics and delivered with our education and PPI partners.

24/03/2025

Still time to register to join the All-Ireland Conference on Integrated Care on Wednesday, 26 March at O’Reilly Hall, University College Dublin.

Busaries available for patients and public with an interest.

Register at https://bit.ly/4iQ4Zjf

You can choose to pay by debit/credit card or Bank Transfer. If you pay by card, your card details will be encrypted and securely forwarded to the conference organiser.

21/03/2025

Interested in health data and the European Health Data Space, join the first in a series of online sessions organised by on 25 March to learn more.

Register at https://quantumproject.eu/event/quantum-patients-and-citizens-forum-session-1-what-kind-of-health-data-do-we-have/

After a successful kick-off in December, the QUANTUM patients and citizen community will launch a series of online sessions: ‘Understanding health data labelling and the European Health Data Space.’ The first […]

04/03/2025

Listen to members of the Oversight Panel share the verdict of the Citizens' Jury on the Use of Artificial Intelligence (AI) in Healthcare in Ireland - speaking on the Hard Shoulder, last Friday (from 25minutes, 25seconds) https://bit.ly/4kqoeRy HSE Ireland HSE Technology and Transformation

28/02/2025

Missed the report on AI in healthcare?

No worries! Check out our 1-page cheat sheet for the key takeaways! 🤫

For more, check out https://ipposi.ie/aicitizensjury/

27/02/2025

Sarah, one of the participants in the IPPOSI Citizens' Jury, shares her thoughts on the future of AI in healthcare on on Tuesday!

Tune in: http://bit.ly/4brH1b6

Read the full jury report: https://ipposi.ie/aicitizensjury/

26/02/2025

Listen to one of our jurors and one of our independent oversight panel members sharing their experience of the citizens' jury and their perspective on AI in healthcare on Kildare FM yesterday https://bit.ly/4hQIeev

24/02/2025

The verdict is in! https://ipposi.ie/aicitizensjury/

Read the Citizens' Jury report on Artificial Intelligence (AI) in Healthcare - 25 recommendations calling for regulation, public interest champions, ongoing engagement, and more.

Well done jurors! 👏👏👏



Read the full report at: https://ipposi.ie/aicitizensjury/