Omphalocele / Exomphalos Awareness

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Omphalocele / Exomphalos Awareness

Omphalocele / Exomphalos Awareness . Helping people understand the condition and connect with other people. This page is run by Edwina Wrenn O'Connell

16/06/2025

10 years ago today I set up the Omphalocele Exomphalos Ireland Support Group 🖤🤍

15/06/2025

Happy Father's Day to O Dad's, dad's to be, O Angel Dad's and Warriors who are dad's 💙

30/03/2025

Happy Mother's Day to the OMoms who mark or celebrate this day today 💐❤️

31/01/2025

Today is Omphalocele Awareness Day
🖤🤍

22/01/2025

23/12/2024

Merry Christmas and Happy New Year to our O family and friends 🎄

17/11/2024

Today is World Prematurity Day.
In December 1989 I was born 3lbs 3oz and defied the odds of survival not only being tiny but being born Exomphalos Major 🙂 Thinking of our O warriors and angels today ❤️

04/10/2024

Baby Loss Awareness Week is held annually from 9 to 15 October.
Thinking of our O angels 🤍

01/09/2024

Steptember is NICU Awareness Month ❤️

11/07/2024

In this week's Limerick Leader page 14. Our campaign for newborn screening.

11/07/2024

Rare Diseases Ireland
At Leinster House for our Newborn Screening Campaign to get the number of rare diseases tested for doubled.

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Limerick

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http://omphaloceleexomphalosawareness.com/

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