Harrys world

Harrys world Harry is an 8 year old boy with a rare condition called Genitopatellar syndrome. He is our hero.

Chill Sunday
23/11/2025

Chill Sunday

Harrys not impressed being woken up early on a Saturday morning for an appointment he usually has a sleep in followed by...
15/11/2025

Harrys not impressed being woken up early on a Saturday morning for an appointment he usually has a sleep in followed by telly but CHI are trying to get through the backlog of appointments. Harry is having an X-ray on his spine then meeting the consultant for a plan. Unfortunately Harry’s scoliosis has progressed and because he’s such a complex little boy, all his consultant will need to have a meeting together to see what the best plan would be for Harry. He’s off then for a sleep over LauraLynn – Ireland’s Children’s Hospice He loves going there with his friends and gets spoilt 🙂 x

Home where he belongs 🥰
05/11/2025

Home where he belongs 🥰

Rough weekend for Harry. Ambulance ride Halloween night. Antibiotics have started to work and he’s back smiling at every...
02/11/2025

Rough weekend for Harry. Ambulance ride Halloween night. Antibiotics have started to work and he’s back smiling at everyone 🥰

27/10/2025
Amazing night at the jack and Jill fancy dress fundraiser
27/10/2025

Amazing night at the jack and Jill fancy dress fundraiser

Great time at Centerparcs. Bit of a hiccup during are stay with Harry becoming unwell. Thankfully the staff on site are ...
20/09/2025

Great time at Centerparcs. Bit of a hiccup during are stay with Harry becoming unwell. Thankfully the staff on site are so helpful and are journey home is not that far, Harry was able to go to his own GP and get antibiotics and come back to enjoy the rest of the holidays ###

Back to school 🥰
28/08/2025

Back to school 🥰

Magical Happy friendly weekend 🙂
24/08/2025

Magical Happy friendly weekend 🙂

12/08/2025

Sensory cubbie belmullet library. Harry and ruby love it :-)

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