I am Alex

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I am Alex

When your baby is diagnosed with a life-altering condition, your world shatters. But then, you gather every ounce of strength to fight. We began the fight.

And this is our battle for Alex. Diagnosis
We noticed Alex wasn't making his milestones. Test after test in the midst of COVID when only one parent could go and receive bad news after worst news. It was discovered that Alex had brain damage (PVL) , 2 genetic deletions and sensory processing disorder. we were told that there was no case in the world like Alex . No doctor could tell us what his life would look like ....

The Journey
We were left numb, lost and utterly devastated. But like any parent , you put your own feelings to the and focus on your child. The disability services for children are so under resourced it's frightening. Alex can't talk or walk . but we believe that we need to give him every chance to achieve both . Alongside public supports, Alex privately for therapies to support him to achieve his potential , whilst also planning long term to adapt our home for Alex's long term care . Family
Dave and I have to work full time, we have all the same bills as everyone else to contend with, we have 2 other wonderful kids that adore their little brother and of course must continue to do their sport's , have their friends home and enjoy their childhood

Help
We like any other parent never expected to be in this situation . But after months of unknown and tears it is time for action. We need your support in anyway possible to give Alex the life and support that this one in a billion little boy deserves
My pray that one day science will catch up and give Alex the opportunity for gene therapy . But until then we have to live and support Alex in the present . We need to adapt our home for the special stander and buggy / possibly a wheelchair in the future .He getting very heavy to carry up and down the stairs and awake a lot during the night . So we plan to build a bedroom / sensory and wet room for Alexs needs/ dignity and development . But we cannot do it alone . So please help us to help Alex

02/04/2025

Get behind this fantastic event which we were so grateful to be supported by. Kids will love the bikes and support is for Cystic Fibrosis.

22/07/2024

So we now have a wheelchair user in our house. ❤️❤️

Not something you envisage for your little boy but something we have had to accept and Alex is very comfortable in his new wheelchair.

Another step in the journey. 💪🤏🙋‍♂️

19/07/2024

Alex was asked to help launch Jack and Jill Children's Foundation foundation Cannonball Ireland ‘Cannonball 2024‘ car run event today with Rosanna Davison Nutrition. As a family we are so happy to support and promote this amazing fundraiser event. We receive 45 hours a month Jack and Jill carer hours, which allows us to go and support Alex’s Brother and Sister, have a break to rest, take Ryan and Ella to play Rathnew AFC , Greystones United AFC Soccer Club and Rathnew GAA 1885 or bring them to the cinema or even a one and one chat and check in with them.

So many people have and are helping, caring and supporting our family and we are only delighted to give our support to help other families with special little people like our Alex.

So please get behind this family friendly, fun and exciting event .. Cannonball 2024 .

Rosanna, Alex was so at ease with you and we’re delighted you got one of the best hugs in the world. Thank you for coming today and your support.

Making memories.

https://www.sundayworld.com/showbiz/celebrity/rosanna-davison-all-geared-up-for-cannonball-2024/a251956235.html https://m.sundayworld.com/showbiz/celebrity/rosanna-davison-all-geared-up-for-cannonball-2024/a251956235.html

11/05/2024

John Snell

John has relentlessly been fighting for Alex on so many levels since meeting him and understanding his needs. John has gone out of his way on so many occasions with advise, support and genuine concern.

Please get behind John in the local elections coming up as we are extremely grateful, lucky and blessed to have John in the community.

Best of luck John.

Team Alex.

29/04/2024

Yesterday was a very special day to remember Mark Coster with all his family and friends at his annual memorial bike run.
When a community gets together it is extraordinary what can happen!
A huge thank you to everyone for choosing
Alex for a second year to be part of this very special family day. 1500 euro was raised for Alex yesterday , which is a massive amount of money. The sheer generosity of spirit was everywhere to be seen and a true testimony to Mark’s legacy and memory .
Angelina Walsh Coster Gavin Ryan Joe coster Rathnew Past & Present Wicklow Town

Mark Coster RIP

07/04/2024

It’s never easy talking about Alex and life with Alex but recently Alex’s Mum Cliona was invited to do a podcast with Susan Fox entitled UNFORSEEN CIRCUMSTANCES “Only boy in the world” , Cliona really gives you an insight into her life. Take a listen here

https://open.spotify.com/episode/4Bh5USSFYiW43vKhFCeaHd?si=xt7454AtS5-Q15wrI6oBiA

And here

https://irepod.com/podcast/unforeseen-circumstances-with-susan-fox/ep5-only-boy-in-the-world-with-cliona-buckley

💜

03/04/2024

Huge thank you to Sinead Dalton and EVOKE.ie for catching up with us recently about Alex. Thank you for your continued support.

https://evoke.ie/2024/03/08/life-style/mum-help-brain-condition

02/04/2024

A huge that you to Michelle and Matt for getting Alex’s new website together. Trojan work guys. 💪🏻❤️

https://www.iamalex.ie/

25/03/2024

Hello Everyone,

We're here with an update on recent happenings, involving all members of our family:

In April, Dave made the decision to leave his job to become Alex's full-time caregiver at home, a necessary step to meet Alex's increasing needs. Meanwhile, I continue to work full-time to support our family.

Our initial plan to renovate our house in Rathnew to accommodate Alex's needs evolved after discussions with trustees. Ultimately, we decided to sell Rathnew and purchase a bungalow, with the support of Mr. Cllr. John Snell, Niall Kennedy, Ruth and Daragh, Alex's godparents.

Moving out of our family home of 18 years has been a challenging transition for all of us. We've taken a step back from public fundraising to focus on spending quality time together as a family, allowing our children Ryan and Ella to adjust to the changes in their lives.

While we navigate this period of change, Ryan has started his first year of secondary school, and Ella has been adapting to a new football club. Their resilience and adaptability during this time have been inspiring.

Alex's condition has presented new challenges, with severe to profound disabilities in all areas. With the unwavering support of our friends and family, we're committed to continuing this journey with Alex.

Our GoFundMe campaign, initiated in September 2022, has received overwhelming support, for which we're incredibly grateful. We're hopeful that we'll soon find our forever home for Alex.

We're thrilled to introduce SOS 🆘 Build for Alex, inspired by the DIY SOS TV show. We'll kick off this initiative with a fundraising golf classic and dinner in May. Stay tuned for updates as we embark on this new venture.

Once again, we extend our heartfelt thanks for your kindness, love, and generosity. Wishing everyone a peaceful and joyous Easter.

Cliona & Dave.

Address

Rathnew

Website

http://www.iamalex.ie/

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