Pulmonary Hypertension Israel העמותה הישראלית ליתר לחץ דם ריאתי

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Pulmonary Hypertension Israel העמותה הישראלית ליתר לחץ דם ריאתי Israel Pulmonary Hypertension Association | יתר לחץ דם ריאתי היא מחלה מתיש? Women stricken with the illness are unable to function normally.

העמותה הישראלית ליתר לחץ דם ריאתי מסייעת לחולות ולחולים ביתר לחץ דם ריאתי בהשאלת ציוד רפואי ייחודי לצרכיהם, [מחוללי חמצן נייד] בעזרה כספית לחולים עם קשיים כלכליים ברכישת תרופות, בקיום קבוצות תמיכה המנוהלות על ידי צוות מקצועי, המקלות על החולים בהתמודדות היומיומית המורכבת עם המחלה והקשיים הנלווים לה, בקיום אירועים חברתיים להעלאת המורל, בכנסים שנתיים לחולים בשיתוף רופאים, במיצוי זכויות מול הביטוח הלא

ומי, קופת החולים ומשרד הבריאות. העמותה מקדמת הכנסה של תרופות חדשות לסל הבריאות, פועלת בשיתוף פעולה הדוק עם אירגוני חולים מאירופה וארצות הברית. העמותה מוכרת לצרכי מס על פי סעיף 46 לפקודת מס הכנסה ומפעילה קו תמיכה טלפוני שמספרו: 1800747574 . למידע רפואי נרחב מומלץ לגלוש לאתר האינטרנט של העמותה הנמצא בלינק הבא: http://www.phisrael.org.il/

Pulmonary hypertension is a debilitating illness that can strike children and adults of all ages but most often afflicts women in their childbearing years. The disease affects the blood vessels between the heart and lungs causing a drop in oxygen levels and injuring the right side of the heart muscle. They have difficulty walking from one room the next, climbing stairs or otherwise conducting their daily affairs
The Israel Pulmonary Hypertension Association was established in 2000 in order to assist and support people suffering from the disease. The organization's objectives include:
http://www.phisrael.org.il/content_eng.asp?type=98

15/08/2025

📣PHAEUROPE is excited to invite you to a free, patient-focused webinar unpacking key findings from the Pulmonary Hypertension Global Patient Survey (PHGPS), with a focus on European adult data. Hall Skaara from PHAEUROPE and Frances Varian will be leading the discussion.

Hall and Frances will be discussing:

- Time to diagnosis
- Quality of life
- Access to care
- Understanding the 10 Calls to Action

🗣 Live Q&A + discussion forum
🌍 Multi-language captions via Zoom
🤝 In partnership with PHAEUROPE & the European Lung Foundation

Register for free: https://lnkd.in/gM8EUXv3

Sometimes, it’s PH Luisa has been a special little girl from the very beginning. Although she showed subtle signs — lik...
30/05/2025

Sometimes, it’s PH

Luisa has been a special little girl from the very beginning. Although she showed subtle signs — like slight developmental delays, getting tired faster, and frequent vomiting — it wasn’t until shortly after her 4th birthday that doctors discovered something serious: the right side of her heart was almost twice as large as the left. She was quickly referred to the Children’s Heart Center, where severe pulmonary arterial hypertension (PAH) was diagnosed.

Luisa doesn't fully understand her illness yet, but she faces each day with joy, playing
happily with her friends. Sometimes, she feels scared, but with her mom, dad, and little sister Lilli always by her side, she knows she’s never alone. Thanks to the incredible support from PH Austria, Luisa and her family feel stronger and
more hopeful for the journey ahead.

Sometimes, it’s PH Kiyoko was first diagnosed with pulmonary arterial hypertension (PAH) in 2002. Years later, in 2015...
29/05/2025

Sometimes, it’s PH


Kiyoko was first diagnosed with pulmonary arterial hypertension (PAH) in 2002.
Years later, in 2015, her diagnosis was updated to chronic thromboembolic pulmonary hypertension (CTEPH). Despite the challenges, Kiyoko manages her condition with oral medication and oxygen therapy.

Now, she dedicates her time to supporting other patients, offering hope and understanding from her own experience. Her quiet strength and commitment to helping others shine through every day.

Sometimes, it’s PH Jennifer was diagnosed with pulmonary hypertension (PH) in September 2012 while pregnant with her f...
29/05/2025

Sometimes, it’s PH


Jennifer was diagnosed with pulmonary hypertension (PH) in September 2012 while pregnant with her first
child. Her pregnancy was already complicated by gestational diabetes, cholestasis, and the PUPPP rash. As her
pregnancy progressed, Jennifer began to have severe breathing difficulties, and her lips and fingernails turned
blue. Her mother insisted she go to the hospital, where her oxygen saturation was found to be dangerously
low at 80%.

After a series of tests, an obstetrician suspected PH and Jennifer was airlifted to Halifax, Nova Scotia, where a
specialized PH clinic could manage her condition. Doctors planned an emergency cesarean section while she
was under anesthesia, and Jennifer gave birth to her daughter on a Friday. She spent several days in ICU/CCU
but was soon stable enough to meet her newborn daughter.

After weeks of recovery and monitoring, Jennifer returned to her local hospital, where she decided to
discharge herself. She was determined to return home, be a mom, and raise her daughter. Despite the tough road ahead, Jennifer’s strength and determination helped her through the challenges.

Jennifer is forever grateful to the obstetrician who quickly recognized the signs of PH and saved her life. She credits her daughter for saving her life that day, and she continues to raise awareness for PH.

“Surround yourself with support from family, friends, and the PH community. Your diagnosis doesn’t define you—keep your head high and live life to the fullest!”

Sometimes, it’s PH Jan was diagnosed with worsening pulmonary embolism 18 years ago. The doctors told him, "Your illnes...
28/05/2025

Sometimes, it’s PH

Jan was diagnosed with worsening pulmonary embolism 18 years ago. The doctors told him, "Your illness cannot be treated." However, he did not accept that. As a professional researcher, Jan took matters into his own hands, studying his condition, applying his knowledge, and seeking a second opinion. Since then, he has successfully reduced and managed his pulmonary hypertension.

Sometimes, it’s PH Ivana was always a lively person, leading a fast-paced life filled with sports, travel, and raising ...
28/05/2025

Sometimes, it’s PH

Ivana was always a lively person, leading a fast-paced life filled with sports, travel, and raising her three children. However, as time passed, she began to notice that even the simplest tasks became more difficult. At first, she attributed it to fatigue or being out of shape, but soon, she found herself struggling to breathe on stairs and even gasping for air during conversations.

After months of tests and uncertainty, Ivana was diagnosed with pulmonary arterial hypertension (PAH). The diagnosis was a shock, and the lack of a cure left her feeling uncertain about the future. However, with the support of her husband, friends, and doctors, Ivana gradually accepted the limitations her condition brought.

Today, Ivana lives a slower-paced life, but she embraces it fully. She finds peace and beauty in the quieter moments, staying active when she can, and helping others navigate their own struggles with PAH. Her motto is: "Yes, PH is a heavy burden, it slows you down but you can still reach your destination."

Thank You to Our Sponsors We extend our heartfelt gratitude to all the sponsors of World Pulmonary Hypertension Day 20...
28/05/2025

Thank You to Our Sponsors

We extend our heartfelt gratitude to all the sponsors of World Pulmonary
Hypertension Day 2025 and the "Sometimes, it’s PH" campaign.

Your generosity, unwavering support, and commitment to the PH community
are the driving force behind this global effort to raise awareness and bring
change. Without you, none of this would be possible.

From awareness to action, you help us shine a light on the realities of PH and
bring hope to thousands.

Thank you for standing with us, for believing in our mission, and for being an
essential part of our global PHamily.

Sometimes, it’s PH Iuliia was diagnosed with pulmonary hypertension (PH) when she was just 12 years old. At the time,...
27/05/2025

Sometimes, it’s PH

Iuliia was diagnosed with pulmonary hypertension (PH) when she was just 12 years old. At the time, there were no proper testing or treatment options available in Ukraine, and there were periods when walking even 2 meters felt nearly impossible. However, things began to change when she turned 18. New medications, which were relatively new to Ukraine, helped stabilize her condition, and she began to feel better.

Iuliia truly believes that life is beautiful, despite the challenges she faces. Though
she sometimes feels uncomfortable looking at pictures of herself, she understands that the bluish skin color is inevitable with 85% saturation.

Sometimes, it's PH! Iryna discovered her diagnosis by accident. After losing consciousness one day, she was rushed to t...
27/05/2025

Sometimes, it's PH!

Iryna discovered her diagnosis by accident. After losing consciousness one day,
she was rushed to the hospital, where she learned she had pulmonary
hypertension (PH). Before the diagnosis, she had been experiencing symptoms
like shortness of breath, dizziness, and difficulty walking up stairs, which were
initially attributed to anemia by doctors.

For two years, Iryna searched for answers, but her condition only worsened in
the spring of 2024. Everyday activities, such as walking, became a struggle as she
found it hard to breathe. This led to her emergency hospital visit, where PH was
finally diagnosed.

In the beginning, Iryna felt shock, denial, and fear. However, she is now
incredibly grateful to the doctors at the Strazhesko Institute for their proper
treatment. Thanks to the prescribed therapy, she continues to live a full life—
caring for her family, raising her daughter, working, and living as fully as possible
despite the limitations of her condition.

Pulmonary hypertension (PH) affects over 31.5 million people worldwide—but its true impact stretches far beyond the numb...
27/05/2025

Pulmonary hypertension (PH) affects over 31.5 million people worldwide—but
its true impact stretches far beyond the numbers. This serious and often
invisible condition places a heavy burden, not only on patients but also on their
families, caregivers, and healthcare systems.

A striking 85% of patients with severe PH (like severe PAH) require daily support
from others, whether from medical professionals or loved ones, highlighting the
profound societal and emotional toll of the disease. As the number of newly
diagnosed cases continues to rise each year, the true prevalence of PH is likely
far greater than current estimates suggest—many cases remain undetected due
to late diagnosis or misdiagnosis.

The burden is growing. The need for awareness, early detection, and support
has never been more urgent.

➡www. worldphday.org
➡www.phaeurope.org
➡belaircenter.info

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