Tehilla's Heart Journey

Tehilla's Heart Journey Tehilla was born with hypoplastic left heart syndrome- essentially, half a heart. This is a page dedicated to following her heart journey.

Yesterday, Tehilla had her 6 month cardiology checkup."Her heart has never been more perfect."
25/10/2022

Yesterday, Tehilla had her 6 month cardiology checkup.

"Her heart has never been more perfect."

Tehilla/Emma had a cardiology check-up. "Perfect heart; perfect kid! Now get out of here!"
28/04/2022

Tehilla/Emma had a cardiology check-up.

"Perfect heart; perfect kid! Now get out of here!"

16/01/2022

Tehilla's results came back negative! Thank God.

Now, she's just milking the rest of this sick day for what it's worth.

15/01/2022

Tehilla's fever broke on Friday and she's been feeling all better. We still have no results, so I don't know what to think. 🤷‍♀️

"Well, everything looks excellent. See you in 6 months! Unless you invite me to your Harry Potter party. I'll come dress...
04/10/2021

"Well, everything looks excellent. See you in 6 months! Unless you invite me to your Harry Potter party. I'll come dressed as a broom." -Dr. G.

I mean....what is higher than VIP service? Tehilla was given heated echo gel...
04/10/2021

I mean....what is higher than VIP service? Tehilla was given heated echo gel...

We are waiting patiently for Tehilla's cardiology checkup. She's very nervous being back at the hospital and keeps remin...
04/10/2021

We are waiting patiently for Tehilla's cardiology checkup. She's very nervous being back at the hospital and keeps reminding herself, "It's just an echo...just the cold gel..."

...and this is how well she is doing! First day of Grade 2! Thank God for miracles. *Pssst! Look how pink her lips a...
01/09/2021

...and this is how well she is doing! First day of Grade 2! Thank God for miracles.



*Pssst! Look how pink her lips and cheeks are! 😍

Tehilla waited a week to recover from the heart catheter and not submerge her incision and now she is back in the water!...
17/08/2021

Tehilla waited a week to recover from the heart catheter and not submerge her incision and now she is back in the water!

Her incision sites at the top of her thighs have healed nicely, although she was very sore for the majority of the week.

But look at those rosy cheeks and pink lips!

Dr. G told us that swimming is actually the best sport for post-Fontan kids. It gets the muscles in the chest moving, exercises the lungs and improves general heart health. We didn't need any convincing, but now we have more of a reason to keep going swimming.

Tehilla just got her first Corona vaccine! She was terrified but the biggest love to all the nurses who came to cheer h...
16/08/2021

Tehilla just got her first Corona vaccine! She was terrified but the biggest love to all the nurses who came to cheer her on, and the sweetest people in the waiting room who offered to help, hold her hand, buy her something- and then made the biggest deal when she did it, giving her superhero names and showering her with love. It's time like this that I remember how much I love the people in this country.

And kudos to the grandpa who helped Tehilla negotiate ice cream and a toy for doing it.

Warning: Mushy-Gushy PostShe crawled into my bed, utilized her elbows and knees to make sure I made room for her, gave m...
10/08/2021

Warning: Mushy-Gushy Post

She crawled into my bed, utilized her elbows and knees to make sure I made room for her, gave me a tired little smile, whispered "I love you", smiled again when she heard me whisper back, "I love you more than you'll ever understand," and let her exhaustion sink in as she relaxed into my pillow.

And I stared at her sleeping face for awhile, appraising those freckled cheeks, noticing a newer shade of pink in them. Looking at her often stubborn and sassy little lips, taking a pinker tone. And listening to the rhythm of her breathing. I whispered "Thank you" to the heavens and let my tears flow freely.

To those who have been keeping up with our heart journey all these years (nearly 8!), you know that the risks and fears that come with her heart condition were sewn into the fabric of her life from day one.

I won't mask the fear and anxiety that kept me awake at night these past few months after watching Tehilla lose more and more energy, bow out of more and more activities, and struggle to do simple endeavors. Some nights I checked on her several times, just to watch her chest rise and fall.

There are no assurances in life, of anything, really. I try to live as much in the present and find the joy. It's not always easy when you watch your child slowly fade. Tonight, I can breathe easier, relax more, and sleep better. And I'll try to let her sleep without kissing her constantly.

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