07/09/2022
Let’s spread awareness about Duchenne Muscular Dystrophy Today....
Today is World Duchenne Awareness Day!
Let’s all spread Awareness about Duchenne Muscular Dystrophy ….. World Duchenne Organization
On World Duchenne Awareness Day, we involve all stakeholders to raise awareness and inspire action to improve the lives of people living with dystrophinopathies.
The date of the World Duchenne Awareness Day (7/9) refers to the 79 exons of the Duchenne (DMD) gene.
There are over 500,000 people living with Duchenne and Becker muscular dystrophy. On September 7, we engage and educate all stakeholders to adopt effective strategies to improve the lives of people living with DMD/BMD.
People born with Duchenne and Becker need care from many specialists throughout their lives. With the current standards of care, people living with Duchenne can live into their early 30s and beyond.
Duchenne and Becker muscular dystrophy are rare genetic diseases defined by muscle weakness. Muscles are getting weaker over time. This ultimately affects the ability to breathe as well as the function of the heart, as the heart is a muscle too.
Hanugen Therapeutics
