Dakshayani and Amaravati Health and Education

Dakshayani and Amaravati Health and Education DakshamA Health is a Sec 8 company working on Health Care, Patient Rights, Access to Safe Medicines, and Basic Healthcare.

It operates through its member to bring policy change. NCDs, Rare Diseases, Mental health are its key focus areas.

On Rare Disease Day (28th February), we stand in solidarity with individuals and families navigating life with rare cond...
28/02/2026

On Rare Disease Day (28th February), we stand in solidarity with individuals and families navigating life with rare conditions.

Behind every diagnosis is a story of resilience, courage, and extraordinary strength. The rare disease community teaches us what it truly means to live with determination, to advocate with purpose, and to find hope even in uncertainty. Your journeys inspire us to build systems that listen better, care deeper, and act faster.

Rare diseases may affect a small percentage individually, but collectively they impact millions of lives worldwide. Today is a reminder that awareness must lead to action, better access to diagnosis, equitable treatment, supportive policies, and inclusive healthcare ecosystems.

At DakshamA Health & Education, we remain committed to amplifying voices, advancing awareness, and supporting a future where no one feels unseen or unheard.

To every patient, caregiver, advocate, and healthcare professional; thank you. You make us stronger every day. đź’ś

Dr. Mohini Singh shares a reflection close to her heart.Working with individuals and families affected by NF1 has change...
28/02/2026

Dr. Mohini Singh shares a reflection close to her heart.

Working with individuals and families affected by NF1 has changed the way she sees strength. It’s not just about managing hospital visits or treatment plans; it’s about waking up each day and choosing to keep going, even when the path feels uncertain. It’s about parents who advocate tirelessly, young people who learn to live confidently in their own skin, and a community that continues to support one another in quiet, powerful ways.

Being part of this journey is more than a role for her; it’s a responsibility. A responsibility to listen better, to push for stronger systems of care, and to make sure no one living with NF1 feels invisible or alone.

Today, she stands with the NF1 community not just in awareness, but in action and in hope for a more certain future. đź’ś

Rare diseases may affect a small percentage individually, but collectively they impact millions of lives. Behind every d...
25/02/2026

Rare diseases may affect a small percentage individually, but collectively they impact millions of lives. Behind every diagnosis is a person navigating uncertainty, treatment challenges, emotional stress, and financial strain.

Our mission is to raise awareness, strengthen early detection efforts, and improve access to quality diagnostics and treatment in India. Advocacy goes beyond information and it means building support systems that address mental health, financial guidance, expert consultation, and long-term quality of life.

We are committed to empowering patients with education, encouraging balanced lifestyles, promoting prevention wherever possible, and ensuring that no patient feels unheard or unsupported.

We reaffirm our commitment to standing with patients not just today, but every day driving awareness, advancing advocacy, and working towards stronger standards of care.

Because rare should never mean invisible.

Rare diseases may affect a small percentage of the population but for the families living with them, the impact is life-...
23/02/2026

Rare diseases may affect a small percentage of the population but for the families living with them, the impact is life-defining.

Every day, we are reminded that behind every statistic is a story of resilience, advocacy, and extraordinary strength. From navigating delayed diagnoses to challenging stigma and systemic gaps, rare disease patients show us what courage truly looks like.

Manoj Kumar Singh, President of Power In Me Foundation, has transformed his personal journey into a mission of advocacy, awareness, and dignity for the rare disease community. His story is one of resilience, courage, and an unwavering belief that every rare warrior deserves a life of respect and access to care.

Today and every day we stand with all rare disease patients who continue to inspire change.

Because “rare” should never mean unheard, unseen, or unsupported.

We stand in solidarity with every individual and family navigating the journey of a rare condition. đź’śBehind every diagno...
19/02/2026

We stand in solidarity with every individual and family navigating the journey of a rare condition. đź’ś

Behind every diagnosis is a story of strength, resilience, courage, and hope. Rare diseases may affect a small percentage of the population, but the challenges faced by those living with them are immense and deeply personal. No one should feel invisible because their condition is uncommon.

Today, we raise our voices for awareness, early diagnosis, better access to treatment, inclusive education, and stronger support systems. We stand with the warriors who fight silent battles every day, with the caregivers who offer unwavering love, and with the community that continues to push for change.

You are seen. You are valued. You are not alone.
We are with you; today and always. đź’™

Rare disease advocacy works. It builds research. It creates communities. It opens access.Patient advocacy is not just ab...
18/02/2026

Rare disease advocacy works.
It builds research.
It creates communities.
It opens access.

Patient advocacy is not just about sharing experiences; it’s about shaping systems, influencing policy, and expanding access to care.

Leaders like Clarinda Cerejo are helping move rare disease conversations from the margins to decision-making tables, in India and beyond.

Every day we recognize patient experts who are driving research awareness, strengthening communities, and pushing for sustainable access pathways because real progress happens when lived experience leads the way.



The Sumaira Foundation: UK Support Group for NMOSD/MOGAD

Strength is not defined by circumstance- it is defined by mindset.We amplify the voice of Taran Kamath, a young rare dis...
17/02/2026

Strength is not defined by circumstance- it is defined by mindset.

We amplify the voice of Taran Kamath, a young rare disease warrior from India who reminds us that resilience is a choice.

Rare diseases do not define potential. They do not limit ambition. And they certainly do not silence courage.

This is what patient leadership looks like- confidence in the face of uncertainty, joy despite complexity, and the determination to live fully.

Because rare is not weak.
Rare is powerful.

We commit to stand with patient advocates every single day to drive stronger systems, informed policies, and sustainable...
16/02/2026

We commit to stand with patient advocates every single day to drive stronger systems, informed policies, and sustainable change.

What began as a deeply personal journey evolved into a powerful movement of awareness, advocacy, and community support. Her voice represents countless families navigating the challenges of rare diseases reminding us that behind every diagnosis is resilience, courage, and hope.

Patient advocacy is not just about raising awareness; it is about building systems of support, influencing policy, empowering caregivers, and ensuring that no family feels alone in their journey.



Navintara Kamath

Strength is not defined by diagnosis. It is defined by courage, persistence, and the will to be seen and heard.Not just ...
13/02/2026

Strength is not defined by diagnosis. It is defined by courage, persistence, and the will to be seen and heard.

Not just for a day, but every day, we stand with Rashmi Kumari, an NMOSD patient and advocate, and with millions of others living with rare diseases who turn daily challenges into resilience and action. Their voices drive awareness, shape policy, and push healthcare systems toward equity and inclusion.

Rare disease patients are not invisible ~ they are leaders of change.

For many, awareness is information.For people living with rare diseases, awareness is hope.This powerful reminder from S...
11/02/2026

For many, awareness is information.
For people living with rare diseases, awareness is hope.

This powerful reminder from Shreyas Gupta, Patient Advocate, captures the true meaning of World Rare Disease Day. Behind every statistic is a person navigating uncertainty, delayed diagnoses, limited treatment options, and countless unanswered questions. For many rare disease patients, the journey to a correct diagnosis can take years- years of persistence, resilience, and strength.

Awareness is not just about sharing facts on one day. It is about building systems that listen earlier, diagnose faster, support better, and care deeper. It is about ensuring that no patient feels invisible, unheard, or alone in their journey.

At DakshamA Health, we stand with people living with rare diseases every single day.

We stand with patients seeking answers.
We stand with caregivers carrying silent strength.
We stand with advocates raising their voices for change.

Because rare is many. Rare is resilient. And rare deserves equity in healthcare.

Rare diseases may be uncommon individually, but together they affect millions globally.With over 7,000 clinically define...
11/02/2026

Rare diseases may be uncommon individually, but together they affect millions globally.

With over 7,000 clinically defined rare diseases; awareness, early diagnosis, and equitable access to care matter more than ever.

Let’s amplify voices, support research, and drive change. 💙

Rare diseases are rare. People are not. For many families, living with a rare disease means navigating limited awareness...
10/02/2026

Rare diseases are rare. People are not.

For many families, living with a rare disease means navigating limited awareness, scarce treatment options, and a lack of support systems. Yet, what stands out most is their strength, the courage to advocate, the determination to be heard, and the resilience to keep moving forward despite uncertainty.

On this World Rare Disease Day, we reaffirm our commitment to:
Amplifying patient and caregiver voices
Advocating for timely diagnosis and equitable care
Building informed, empathetic communities
Turning awareness into meaningful action

Together, we can help ensure that no one feels alone simply because their condition is rare.

Let’s stand for awareness, empathy, and access- today and every day. 💙

Address

VANI House, 1st Floor, PSP Pocket 7, Sector 8, Dwarka
Delhi
110077

Telephone

+911244916431

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