Acromegaly India

05/02/2025

🌟 *Join the Movement – Racefor7 is Back!* 🌟

*Greetings from ORDI!!!*

This *23rd February 2025* , let’s come together for the *10th edition of Racefor7* – a run that goes beyond steps, reaching hearts *across 20+ cities* in India. This year’s theme, *“For Rare, Everywhere...”* is a powerful call to support and amplify the voices of rare disease warriors and their families.

🏃‍♀️ *Racefor7 isn’t just a race;* it’s a movement of love, awareness, and solidarity. By participating, you show the world that while rare diseases may be uncommon, the support and care are boundless.

💫 *Be part of something historic!* Join us in making this the largest single-day awareness event for rare diseases ever held.

🚨 *Registrations are now open!* Don’t wait—secure your spot and make your steps count for a noble cause.

👉 https://registration.racefor7.com

Together, let’s show that rare is strong, and together, we are stronger. 💙

15/12/2024

*🌸 DEEP SLEEP & ANXIETY RELIEF* (ONLINE)
_Learn the most powerful techniques to free your mind from anxiety_

Facilitated by Senior AOL Faculty
*Veenu Malhotra Ji🌸*

Online sessions for 4 days (2.5 hours/ day)
🗓️ 19- 22 December
⏰7.00 PM-9.30 PM
▶️Register: https://aolt.in/830016

*👉🏻The Art of Living’s Anxiety & Sleep Workshop’s new format* is here! 😃
*Its with new process and technique recently created by Gurudev🌸* for anxiety relief and deep sleep!

*Rejuvenate body-mind* • _Experience deep rest • Increase productivity_

*🌸🌸What will I get from the workshop?*

*🌸Rejuvenate holistically*
_When you regulate your breath, you regulate your mind and the quality of your life is determined by the state of your mind._

*🌸Good nights, good days*
_Good sleep is necessary for optimal health as it affects hormone levels, mood, and weight._

*🌸Activate vagus nerve*
_On a physical level, anxiety is just the Sympathetic Nervous System going out of control. Activating the Vagus will help you deal with it._

*🌸Better productivity & peace*
_Workshop techniques relax the nervous system completely, allowing it to rest during sleep. This, in turn, develops into a healthy sleep pattern with a powerful impact on overall wellbeing. Discover newer levels of productivity, energy and practical tips for peace of mind._

🪷🪷
*For any help* 9873428016 |
9999842596 | 9811667525 |

*Forward to all. 😎👍🏻*

06/10/2024

https://pituitaryworldnews.org/sleep-is-this-an-issue-for-you/?fbclid=IwY2xjawFv1Y1leHRuA2FlbQIxMQABHbHAmuLTSbQGC0muD2omGQeny4HRpf-GTHes3gKbED71h37KmueNz4L2OA_aem_RVBPxTK22utGGMmDPaK38A&sfnsn=wa

Get the latest news from Pituitary World News, a non-profit organization that seeks to increase awareness and reduce the number of undiagnosed and misdiagnosed people with a debilitating pituitary disease. PWN publishes regular blog posts and podcasts on pituitary diseases and treatments with the wo...

28/09/2024

Do join this interesting session at 9 pm IST https://meet.google.com/ukw-bycg-vjv

26/09/2024

Interesting session on *CST ( Craniosacral Therapy )*
*Ms.*Amita Shukla**
CST therapist
Yoga & Meditation Trainer
Certified Pre & Post natal yoga trainer
Wellness Counsellor
Certified Craniosacral therapy and Marma practioner
Bachflower
Hand & foot Reflexology
_Join this 1 hour Free Webinar and learn from an expert in the field about:_
✨ Experience the amazing sessions of *Craniosacral Therapy* ✨

⚡ *Craniosacral Therapy* helps to heal and support the following indications:

– Migraines & Headaches
– Chronic Neck and Back Pain,
-- scoliosis, sciatic nerve pain
– Spine related issues,
-- joint pains
– Issues with the Ear and Jaw (TMJ issues), ENT issues
– Accidents, Falls, Whiplash
– Chronic Fatigue,
-- Depression,
-- Anxiety,
-- Sleep Disorders
– Post surgery support
– Sinusitis,
-- Asthma,
-- Bronchitis
-- Hormonal issues
*Among Many Other Issues.*

*Date: 28th sep , 2024 (Saturday)*
*Time: 9 pm ( IST)

To join the meeting on Google Meet, click this link:
https://meet.google.com/ukw-bycg-vjv

Or open Meet and enter this code: ukw-bycg-vjv

See you there! 😇

15/07/2024

Dear All , Please note that in an effort to include Acromegaly in Rare disease list , received this response from Rare disease cell , GOI.Patients who are administered by octreide depot or Sandostatin ,can visit near by COE for verification and validation . Financial assistance may be provided on case to case basis based on approval of committee until the policy decision is taken . please contact me in case you have any queries.

22/06/2024

Join Dr. Kevin Yuen and patient advocate Kelly Johnson for our discussion regarding Acromegaly and Pregnancy. Acromegaly and Pregnancy zoom link for this Saturday, June 22, 2024. 8 am PDT, 9 am MDT, 10 am CDT, and 11 am EDT. Posting it now for those who want to attend to add the link to your calendar.

Acromegaly Community is inviting you to a scheduled Zoom meeting.
Topic: Acromegaly and Pregnancy
Time: Jun 22, 2024 08:00 AM Pacific Time (US and Canada)
Join Zoom Meeting
https://us02web.zoom.us/j/82144406299?pwd=LmRMdjUcZsFoVpKhgKntFlIJ0Eblmc.1
Meeting ID: 821 4440 6299
Passcode: 098357
---
One tap mobile
+17193594580,,82144406299 #,,,,*098357 # US
+12532050468,,82144406299 #,,,,*098357 # US
---
Dial by your location
• +1 719 359 4580 US
• +1 253 205 0468 US
• +1 253 215 8782 US (Tacoma)
• +1 346 248 7799 US (Houston)
• +1 669 444 9171 US
• +1 669 900 9128 US (San Jose)
• +1 305 224 1968 US
• +1 309 205 3325 US
• +1 312 626 6799 US (Chicago)
• +1 360 209 5623 US
• +1 386 347 5053 US
• +1 507 473 4847 US
• +1 564 217 2000 US
• +1 646 558 8656 US (New York)
• +1 646 931 3860 US
• +1 689 278 1000 US
• +1 301 715 8592 US (Washington DC)
Meeting ID: 821 4440 6299
Passcode: 098357
Find your local number: https://us02web.zoom.us/u/kc3gp1SKzZ

Zoom is the leader in modern enterprise video communications, with an easy, reliable cloud platform for video and audio conferencing, chat, and webinars across mobile, desktop, and room systems. Zoom Rooms is the original software-based conference room solution used around the world in board, confer...

26/05/2024

https://youtu.be/s1EBOzNtnfg?si=C18vHixj9qOSHMxa

07/05/2024

Eye health is crucial for individuals with diabetes because diabetes can lead to various eye complications.

_Let’s learn from an expert in the field about:_
✳️ Various risks diabetes poses to our eyes’ health
✳️ Some practical and effective ways to keep them at bay
✳️ Practical tips to keep our eyes healthy

Join in the free webinar via Zoom

https://zoom.us/j/93832092934?pwd=OE5mcnYzRFlUcE81aHNpT1EwMDNnQT09

Meeting ID: 938 3209 2934
Passcode: 123

*Date: 7th May, 2024 (Tuesday)*
*Time: 8:30pm to 9:15pm* IST

See you there! 😇

06/05/2024

Eye health is crucial for individuals with diabetes because diabetes can lead to various eye complications.

_Let’s learn from an expert in the field about:_
✳️ Various risks diabetes poses to our eyes’ health
✳️ Some practical and effective ways to keep them at bay
✳️ Practical tips to keep our eyes healthy

Join in the free webinar via Zoom

https://zoom.us/j/93832092934?pwd=OE5mcnYzRFlUcE81aHNpT1EwMDNnQT09

Meeting ID: 938 3209 2934
Passcode: 123

*Date: 7th May, 2024 (Tuesday)*
*Time: 8:30pm to 9:15pm*

See you there! 😇

28/04/2024

Subject: Postponement of Upcoming Webinar on Diet and Nutrition of Acromegaly

Dears,

We regret to inform you that due to unforeseen personal exigencies of speaker , we are postpone the upcoming webinar scheduled for today .Our speaker has encountered unavoidable circumstances that require immediate attention.

Please accept our sincerest apologies for any inconvenience this may cause. We understand the value of your time and interest in the topic, and we assure you that we are actively working to reschedule the webinar at the earliest possible date.

We appreciate your understanding and patience during this time. We will keep you updated on the new date and time for the webinar as soon as it is confirmed.

Thank you for your continued support.

25/04/2024

Dear Members,

Join for an important session on Diet and nutrition from an expert

Join Zoom Meeting
https://us06web.zoom.us/j/81042578956?pwd=iFbilo41FtNR6jMKjFz2AVCbujV28b.1

Meeting ID: 810 4257 8956
Passcode: 880758