24/04/2026
Tagieldin Aymen and his father, Mr. Aymen Hasan, came to Artemis Hospitals for a years-long condition the child had been living with since the age of 3 months. When Tagieldin arrived, the diagnosis was not clear.
Under the expert guidance of Dr. Arun Singh Danewa (Senior Consultant – Pediatric-Haemato-Oncology & Bone Marrow Transplant (Unit II)) and Dr. Gaurav Dixit (Head – Haematology Oncology & Bone Marrow Transplant (Unit II)), the team leveraged advanced genetic testing to get to the root cause.
The discovery was staggering:
MYSM1-Related Bone Marrow Failure Syndrome 4: A rare genetic mutation with hardly 20 cases reported worldwide.
The medical challenge was immense, as there were only 6 reported cases of bone marrow transplants for this specific condition globally.
Faced with such a rare diagnosis, the doctors at Artemis didn't just follow a protocol; they innovated. By meticulously reviewing global literature, they tailor-made a conditioning regimen specifically for Tagieldin’s unique genetic profile. This level of precision medicine was his only fighting chance.
How does a medical team prepare a child for surgery so rare that only a handful of people have ever survived it?
Watch the full video to see how Tagieldin’s story unfolds and witness the incredible power of specialized care.
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