Deetya's Battle with Tay-Sachs Disease

Deetya's Battle with Tay-Sachs Disease Deetya our adorable Daughter is diagnosed with rare of the rearrest Neuro Degenerative Juvenile Metabolic Disorder which is known as a Tay-Sachs Disease.

It's been journey of Six & Half Painful years till now on September, 2015. We were desperately trying and keep finding everything our way out, wht really happened to my daughter Deetya. She was born on 06th October' 2006. It was whole new World for me and my wife to have received such a beautiful gift from god. She has achieved all of her developmental milestone within time. To Seat, To Walk, To T

alk, Developed Gross Motor Skills and rest of all.. It was a early days when she were just Three & half years old and she were the happiest most delightful, chubby loving girl I know. She had very good time spent with me & my family and her kindergarten friends. Recognition about Pictures, To Read & Write was proper till then.. She was the girl ranked always who stand first among all the kids performing all the activities. Enjoying Rhymes, Music, Climbing stairs & whats not...

What happen all of a Sudden....

With early symptoms wht we found with Deetya at age 3.5 Years. She started falling frequently even in flat surface. Later Troubled with Balance. Motor Skills, Speech - Repeating sentence twice & thrice.. All Developmental milestone what she achieved then, had started difficult to perform. After various reminders from her Nursery Class Teacher and with our own observation we finally started investigating & took this matter serious. As it was too early day for that periods even her pediatrician also felt nothing wrong with it. But we as a parents don't wanna take any chances. So keep insisting doctor to investigate even as visually Deetya was so much fine.. So we have been sent to Neuro Pediatrician to ruled out all the doubts. And the story begins...Me & my wife started hunting best Neuro Pediatric doctors of town. There were tow names came across us. 1) Dr.Anaita Hegde & 2) Dr.Vrajesh Udani. To find out their appointments were again a difficult task, being resident of the city which is populated over 2 Billion. Six months waiting down the row. How to wait such long with fear & doubts in our mind. Somehow we have managed to get it in first week with Dr.Vrajesh Udani at Saifee Hospital. We visited him with murmuring name of God. Dr. told us to get a specific MRI done with immediate effect. We did so with tears in our eyes. Now it's time to revisit him to get a perfect picture done. Updating Soon...

As long as i breath u ll be remembered...πŸ’
04/03/2024

As long as i breath u ll be remembered...πŸ’

Deetya and shivanya both... without hair...after mundan pic
21/02/2024

Deetya and shivanya both... without hair...after mundan pic

03/12/2023
03/12/2023

β€œIn my dreams, I hold you in my arms again, knowing that you are safe and loved in heaven.”

Today it has been 7 years, we lost our heavenly angle Deetya. We missing her in every moment. On her death anniversary w...
24/09/2023

Today it has been 7 years, we lost our heavenly angle Deetya. We missing her in every moment. On her death anniversary we remembering her doctor.
*Dr. Anaita Hegde....*
Deetya's pediatric neurologist...one of the best doctor as well as best human being...! We went to see her after almost 6 years bt we felt the same warmth when we use to go with Deetya. After SHIVANYA we really wanted to meet her once, to say thanks for all the efforts she took for our heavenly angel Deetya...she tried her best to give comfertable treatment and life for Deetya..she have done beyond her doctor's limits to give the best for Deetya. She tried to discuss Deetya's case in international conferences. She was in that hope that we can atleast find some sort of treatment for Deetya to prolong Deetya's life.
After knowing that Deetya is not going to live longer with us, as a parent we broke down so many times, she was the one who has taken extra efforts to consol us.
We have seen her teary eyes while treating Deetya. She might have seen so many children with small life span but Deetya and we have been taken good care in person by her.
We really great full to have such a great human being as Deetya's neurological pediatrician.

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Kandivali West

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9820006685

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