Indian Centre for Endometriosis - ICE

Indian Centre for Endometriosis - ICE ICE is an educational resource created to increase recognition about endometriosis and bridge the de

29/07/2025

Think you know endometriosis? It’s time to break the myths and reveal the real facts.

Let’s challenge outdated beliefs, spread true awareness, and empower every voice in the endo community.

Share these truths and help others see beyond the misconceptions. Awareness begins with you!

Warning ⚠️ Some surgical imagery Post–C-section endometriosis of the abdominal wall is rare but deeply debilitating. Thi...
19/07/2025

Warning ⚠️ Some surgical imagery
Post–C-section endometriosis of the abdominal wall is rare but deeply debilitating. This case involved full-thickness re**us muscle infiltration with severe cyclical pain and mass effect. MRI revealed classic features. Radical excision and mesh reconstruction were essential for complete resolution.

💡A multidisciplinary team approach made this complex case successful—underscoring why these cases must be handled by experts in endometriosis and reconstructive surgery.

🩺 If you or someone you know has a painful scar or mass near a surgical site that worsens cyclically—get it evaluated. It might not be a hernia. It might be endometriosis.

18/07/2025

Endo can creep up on you, but there are always some warning signs.

What may look seemingly normal and the result of low impunity or poor digestion could actually be signalling to deeper problems once you start taking notice.

If you’re experiencing some or many of these red flags, it's time go on mode.

Keep a journal of your symptoms, mapping when they occur, are they cyclical, chronic, or persistent, and what makes them feel better or worse.

Endometriosis is more than a bad period. It’s an invisible, often overlooked disease that remains misunderstood, underdi...
16/07/2025

Endometriosis is more than a bad period. It’s an invisible, often overlooked disease that remains misunderstood, underdiagnosed, and isolating.

As a child and teen, I collapsed in pain during sports, struggled with IBS symptoms, and endured agony that felt far from normal. Like many girls, I was told it was just part of growing up, so I stayed quiet and pushed through.

One day, the pain became unbearable. I was rushed to the ER, curled in my father’s arms. That’s when we first heard the word endometriosis. It sounded foreign and frightening. My parents feared it was cancer.

That should have marked the beginning of healing. Instead, it led to twelve more years of misdiagnoses, confusion, and despair. I went through scans, hormone therapy, medical menopause, and trial treatments.

A general surgeon promised to remove a “chocolate cyst” but severed my fallopian tube without telling us. Another specialist dismissed my symptoms. I missed jobs, lost opportunities, and spent nights in pain, questioning my sanity. Still, we knew something was wrong. We just needed someone to believe us.

Finally, someone did. I’m grateful to my surgeon in Dubai who diagnosed deep infiltrating endometriosis and adenomyosis, and to Dr. Abhishek in India for his support and knowledge.

The pain remains, but now I live with more strength and understanding. I share my story because too many are still suffering in silence. Until there is real awareness, treatment, and change, we keep speaking up.

14/07/2025

What does endometriosis really feel like at work?
It depends on the job.

A nurse’s pain doesn’t look like a designer’s. A student’s struggle isn’t the same as an athlete’s. But all are valid. And all deserve support.

For years, I lived with pain I was told was "normal". Periods that felt like punishment, exhaustion that never lifted, a...
09/07/2025

For years, I lived with pain I was told was "normal". Periods that felt like punishment, exhaustion that never lifted, and a body I didn't recognize.

I didn't know it then, but I was living with endometriosis.

The diagnosis came too late, and after too much suffering. Over time, it became harder to stay positive.

Then, almost by chance, I found Dr Mangs on Instagram. Someone who truly understood the full picture. Someone who listened.

My surgery with him changed everything. For the first time in years, I began to heal.

I wasn't just surviving anymore. I was finally living. And while I still carry the scars of endometriosis... today, they feel like reminders of my strength.

Endometriosis tried to break me. I fought back. And now, I feel free.

For years, I lived with pain and was told it was "normal." Periods that felt like punishment, exhaustion that never ease...
09/07/2025

For years, I lived with pain and was told it was "normal." Periods that felt like punishment, exhaustion that never eased, and a body I didn't recognize. I didn't know it then, but I was living with endometriosis.

The diagnosis came too late, after too much suffering. I had four surgeries. Each one brought a little hope, but the pain always returned. Over time, it became harder to stay positive. I started to believe this was my life now. The pain, the fatigue, and the unpredictability of endo felt endless.

Then, almost by chance, I found a doctor on Instagram. Someone who truly understood the full picture. Someone who listened. My final surgery with them changed everything.

For the first time in years, I began to heal. I wasn't just surviving anymore. I was finally living.

I still carry the scars, but today they feel like reminders of my strength. Endometriosis tried to break me. I fought back. And now, I feel free.

08/07/2025

You'll probably come across thousands of do's & don'ts over the internet, especially when it comes to health. But when managing endometriosis, rest is non-negotiable.

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04/07/2025

Endometriosis doesn’t affect every woman’s fertility, but for some, especially those with ovarian cysts or complex cases, it can have an impact.

Too often, egg freezing is prescribed as a miracle solution. But the truth is a lot of factors need to be considered in order to judge if it's the right call for you.

Ask the right questions. Get the full picture.

📤 Share it with someone navigating endo and fertility choices

My story isn't just about a monthly period, but about 20 painful days a month with endo.Every month, I had to rush to th...
01/07/2025

My story isn't just about a monthly period, but about 20 painful days a month with endo.

Every month, I had to rush to the casualty.

It felt like I had a disability. I had severe anxiety all the time, whether it was going out or staying home, because who knew when the pain would flare up?

Even though I am a certified nutritionist, I couldn't fix my endo belly, which usually looked like I was 5 months pregnant.

Endo took away my time, energy, trust, and any hope I had of living a normal life. And it wasn't just abdominal or pelvic pains; I was quickly diagnosed with a slipped disc, which gave me severe back pain as well.

I have advanced adenomyosis and bowel endometriosis for 3 years and have gone from doctor to doctor, feeling invalidated and leaving undiagnosed.

Many said to get pregnant soon. Even when I tried naturally and wasn't able to conceive, I would have suicidal thoughts.

They then told me to try IUI and IVF. The horrible mood swings, the frustration, the constant stress of the routine were too much to bear, but it's like I had a sword hanging over my head because I was told one o***y was dead, and the other would be non-functional sooner rather than later.

To add to this, being on Dienogest for more than 1.5 years led to Stage 1 osteoporosis because, apparently, prolonged use causes loss of bone density.

Like a final ray of hope, my husband found Dr Mangeshikar on Instagram. And I began to heal. I’m so grateful to him because he validated my pain, answered my questions, and finally, he did my surgery on 8th May 2025.

Today, I feel mentally stronger, happier, and safe, knowing that I've found the right doctor. If anything happens in the future, I know I am in good hands.

26/06/2025

Your scan came back normal... but the pain is still real? Here’s what many don’t know: a routine ultrasound isn’t built to detect most types of endometriosis.
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From invisible superficial lesions to deep infiltrating endo hiding behind organs, they're not always visible, especially without the right imaging protocol.

If your body is telling you something’s wrong, don’t let a “clear scan” be the end of the story.
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Swipe through to learn what to ask for, what to watch for, and when to push for more.
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Your symptoms are valid. Even if the scan says otherwise.
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20/06/2025

Endo can be isolating. But it doesn’t have to be.
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Join our in-person support group led by Dr. Mangs, designed to offer real answers, real community, and relief that lasts beyond one evening.⁠
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✔ Trusted insights from a team of doctors across specialities (including physios & nutrition experts)
✔ Shared strategies that actually work
✔ Support from people who get it
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June 22 | 5-8 PM | Breach Candy Hospital, Mumbai

DM US TO BLOCK YOUR SEAT.
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And if you can’t be there, we’ll still be here. 💛
⁠

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Madhav Nivas, 8 Laburnum Road, Gamdevi
Mumbai
400007

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