Indian Centre for Endometriosis - ICE

Indian Centre for Endometriosis - ICE ICE is an educational resource created to increase recognition about endometriosis and bridge the de

18/09/2025

Inflammation is your body’s natural alarm system. But when it sticks around for too long, it starts affecting everything. From endometriosis to adenomyosis, chronic inflammation quietly impacts energy, hormones, digestion, and even mood.

Systemic inflammation can make daily life exhausting, even when your scans look “normal.” Recognising it is the first step toward managing it.

Anti-inflammatory strategies like diet, gentle movement, proper sleep, and working with endo-aware doctors can help you reclaim energy and improve quality of life.

15/09/2025

Recurring UTIs with negative cultures are frustrating. For some women, the real culprit is not infection at all but bladder endometriosis.

Bladder endo can mimic infections almost perfectly: urgency, frequency, burning, and sometimes blood in the urine. Routine ultrasounds often miss these lesions, and urine cultures come back clear. As a result, many women are prescribed repeated courses of antibiotics that do not address the underlying disease.

What helps is suspicion and the right tools. Protocol-based pelvic MRI or cystoscopy can detect bladder involvement, and early referral to an endometriosis specialist is key.

If you have UTI-like symptoms that return despite antibiotics, it is worth asking: Could this be endometriosis? The right diagnosis changes the course of care.

10/09/2025

Endometriosis is not just about painful periods. It is about the birthdays not celebrated. The jobs left behind. The relationships quietly strained.

Some grief is loud. This one is not. It slips in quietly, in the form of fatigue, fear, and endless waiting rooms. You look fine on the outside, so the world assumes you are.

But here’s the truth. Endo grief is real. It builds in the silence of late diagnoses, inconclusive scans, and treatment that arrives too little, too late.

The good news is, it doesn’t have to stay this way. With earlier referrals, better imaging, and care teams who see the whole person, the story can change.

Awareness is the first step. Listening is the second. Both can rewrite how women with endo live their lives.

I’ve been living with endometriosis for over 10 years. My symptoms began more than a decade ago, but it took seven years...
08/09/2025

I’ve been living with endometriosis for over 10 years. My symptoms began more than a decade ago, but it took seven years before I was finally diagnosed.

In 2021, I received my diagnosis and had my first surgery in Australia, but it only gave temporary relief.

When my symptoms returned with full force, I spent a year researching and connecting with advocates and surgeons worldwide. Finally, I travelled to India for excision surgery with Dr Mangeshikar.

Before surgery, my life had shrunk around the disease. I had to pause my degree, reduce work hours, cancel plans, and spend most of my free time resting. The mental torture of chronic pain, combined with being gaslit by doctors, left me exhausted.

My days leading up to, during, and after menstruation were ruled by debilitating pain, heavy periods, crippling fatigue, and painful bowel movements. Painkillers, heat packs, and my TENS machine became a lifeline on the worst days.

Dr Mangeshikar’s expertise and meticulous care were life-changing. He addressed my surgical needs and gave me confidence throughout the process.

The financial burden of chronic illness is immense, and flying overseas for proper care should never have to happen. But today, 18 months post-surgery, I am pain-free. I have energy, can exercise, and recently completed a multi-day bucket-list hike. My life is no longer ruled by endometriosis.

My message to other endo warriors is that there is hope. Trust yourself, know your body, and never stop fighting for the care you deserve.

[Endo warriors, Endo journey, endometriosis awareness, endometriosis, endometriosis survivor, endometriosis community, endometriosis update, endometriosis support group, Dr Mangs, Dr Abhishek Mangeshikar]

05/09/2025

Pain that feels “too much” is not imagined.
Deep infiltrating endometriosis is complex, often invisible on standard scans, and frequently misunderstood.

It can affect up to 1 in 5 women with endometriosis, yet many remain undiagnosed or dismissed because their pain does not match what shows up on imaging.

From the right scans, to multidisciplinary care, to support beyond surgery, here are 5 things every patient should know to be heard, diagnosed, and treated appropriately.

Pleased to have been invited as a speaker at the Society of Obstetricians and Gynecologists of Maldives (SOGM) Workshop ...
03/09/2025

Pleased to have been invited as a speaker at the Society of Obstetricians and Gynecologists of Maldives (SOGM) Workshop Series.

My sessions focused on:
🔹 Imaging in Endometriosis – bridging diagnostic findings with clinical correlation
🔹 Re**al infiltrative disease – surgical challenges and solutions
🔹 Specialized ultrasound & MRI protocols – ensuring accuracy for advanced disease

The workshop was well attended by gynecologists and radiologists across the Maldives, with colleagues joining from India.
This level of multidisciplinary engagement is key to improving awareness, diagnosis, and treatment of endometriosis worldwide.

Grateful to represent the Indian Centre for Endometriosis (ICE) internationally.

The pain began with the pill at 15, though symptoms appeared years before my first period. I always felt a congestion in...
01/09/2025

The pain began with the pill at 15, though symptoms appeared years before my first period. I always felt a congestion in my bowel. At 28, surgery confirmed it: endometriosis, exactly where I had sensed it.

Despite the surgery, the following years brought two bowel obstructions, fatigue, dizziness, brain fog, migraines, constant urge to urinate, constipation, painful bowel movements, and severe drug side effects. I was like a ghost with painful breasts and swollen features. After stopping medication against medical advice, I felt like a person again.

Still, I could not work full-time for nearly 18 years. No one took responsibility. A social worker once told me: “Congratulations, you’ve found the hole in our social net.”

Today, I am not in pain, but still dealing with the uncertainties of another bowel obstruction and the financial toll this disease has taken over decades.

Endometriosis does not end when the pain ends.

Why does s*x hurt? For many women with endometriosis, this question gets brushed aside. They are told it’s stress, anxie...
28/08/2025

Why does s*x hurt? For many women with endometriosis, this question gets brushed aside. They are told it’s stress, anxiety, or that it’s “all in their head.”

The result? Pain gets internalised as a personal flaw. Many start to feel ashamed, even apologetic, as if something about them is broken. And so they endure a pain that should never have been normalised in the first place.

Painful s*x can be a symptom of endometriosis. It is not a weakness, not a failing, and certainly not “just in your head.”

Swipe through to see how endometriosis can show up as dyspareunia and why naming it is the first step toward care and relief.

25/08/2025

Not all exercise stress is good stress. When you have endometriosis, your body is already managing high inflammation and fluctuating cortisol. Pushing yourself into intense workouts on low-energy or flare days can actually spike cortisol in ways that make pain and fatigue worse.

That’s why exercise shouldn’t be seen only as a weight-loss tool. Movement is also about lowering inflammation, easing pelvic pain, supporting digestion, improving sleep, and helping your nervous system find balance.

Some days that might look like strength training or cardio. Other days it might simply be walking, stretching, or intentional rest.

21/08/2025

Endometriosis can be overwhelming. The pain, the confusion, the isolation... It’s understandable that many patients feel like putting off treatment or waiting until things get “unbearable.”

But endometriosis doesn’t pause. Left untreated, it can spread, create adhesions, damage organs, affect fertility, and lead to complications that are much harder to repair later.

This doesn’t mean every situation requires urgent intervention. For some, a period of watchful waiting is safe. Lean on your doctors for the best advice. Get support from friends, family, and even a therapist if you're feeling overwhelmed.

Action matters as much as awareness because early, informed care can change the course of this disease.

I was told my surgeon found endo in my pouch of Douglas and that she ‘got it all’, to come back when I wanted to have ki...
13/08/2025

I was told my surgeon found endo in my pouch of Douglas and that she ‘got it all’, to come back when I wanted to have kids.

Only six months later I begged for help and had a second surgery, this time an excision with one of the highest trained surgeons in the country, yet I’ve had urinary issues since bladder and ureter excision.

I was put on a GNRH analogue to induce menopause, it caused auto immune issues I didn’t have previously.

My third surgeon told me ‘we’ve been waiting for a case like yours’ and that after a lengthy surgery and 15 stitches in my sacrospinous ligament, nothing was sent to pathology.

I’ve since found out otherwise, and my latest imaging suspects sciatic nerve, obturator fossa, and psoas major muscle involvement. My next surgery will be with a real expert.

Nothing has been the same since my endometriosis diagnosis. I had symptoms from when I was at least 8 years old but didn’t get diagnosed until my first laparoscopy at 27 years old.

I know it's a bit depressing, but I don’t want to sugarcoat my reality. Endo care is truly a minefield.

11/08/2025

These five supplements aren’t wellness fluff; they’ve shown real promise in scientific studies.

We’re talking reduced cramps, calmed inflammation, and even (in some cases) smaller lesions.

No, they’re not cures. But they can support your body alongside medical treatment... especially when tailored to your needs and monitored by your doctor.

Tag someone who’s confused and ready to feel more in control.

[Endometriosis Support, Endo Pain Relief, Endo Supplements, Endo Community, Endo Care India, Indian Centre For Endometriosis, Magnesium for endometriosis, turmeric for endometriosis, vitamin d for endometriosis, omega 3 for endometriosis]

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Madhav Nivas, 8 Laburnum Road, Gamdevi
Mumbai
400007

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