29/07/2023
Please save the date for MPNErare2023:
24- 26th November 2023 in Berlin
And we are very grateful to the Charité to host us again!
After a long break, we are picking up on our tradition of MPNErare events- a conference with focus on the rare forms of Melanoma.
Rare Melanomas
While all Melanomas start from melanocytes, the pigment-producing cells of our bodies, Melanomas differ from each other genetically and also in their response to treatment.
Unfortunately, the rare Melanomas- uveal, mucosal, acral, paediatric and the ultra-rare ones tend to respond less well to the new treatments that have made such a difference in cutaneous (skin) Melanoma and means that we urgently need more options for these forms of Melanoma.
Why MPNErare
From the very start of MPNE, we have always had patients with rare Melanomas reaching out to us (google ### Melanoma and you most likely find skin Melanoma....) It takes a lot of time and effort for a community to reach a level where it can really make a difference for patients- and as rare Melanoma patients were finding us anyway, we decided to build on that, rather then trying to build separate communities that would have to painfully start from scratch. Now the entire MPNE community keeps watch for rare Melanoma patients and makes sure they end up in the right places, we all work on advocacy topics of shared relevance together and have separate events where necessary- so that anyone who wants to learn about rare Melanomas can do so- like MPNErare.
Details and application to come, and as always available on the MPNE website:
MPNE conference for rare Melanomas in 2023
