Melanoma Patient Network Europe

06/05/2026

Just in time for May: our BURDEN OF MELANOMA Survey is live!

If you are a Melanoma patient or a family member, we would appreciate 20 min of your time to share a story that illustrates an issue that you experienced with Melanoma.

Right now available in English and 12 other languages, thanks to the efforts of colleagues from different countries (and of course, DeepL!!!)- Dutch, French, German, Hungarian, Italian, Latvian, Macedonian, Polish, Portuguese, Romanian, Spanish, and Swedish ❤️

The survey is part of the EU-project MELCAYA and uses a new way to collect stories- please have a go and share!!

TO THE SURVEY 👇👇👇

SenseMaker®

27/12/2024

Interesting to note- the FDA has now approved subcutaneous (injection into the skin) Nivolumab for all solid tumours (like Melanoma).

Data from CheckMate-67T support the approval of subcutaneous nivolumab in patients with solid tumors across all previously approved nivolumab indications.

01/12/2024

The program for MPNEhubs2024 is now finalised!

Looking forward to seeing you in Berlin next weekend!

MPNEhubs meeting on Advanced Melanoma

20/10/2024

We are often called as patient organizations to express our views on various topics, so here is the White Paper: Patient Consensus—an independently generated patient position on Data and AI! This work is led by Melanoma Patient Network Europe and its affiliates in the context of Itobos.eu, with applicability in other projects (e.g.MELCAYA) or national initiatives as principles for the benefit of patients and citizens! Please feel free to use it, acknowledge it, or contribute! 🌺

Melanoma Patient Network Europe
MelanomeFrance
Stichting Melanoom
Melanom Romania
Melanomföreningen
Magyar Melanoma Alapítvány
Πασυκαφ / Pasykaf
Stowarzyszenie Pomocy Chorym na Mięsaki i Czerniaki Sarcoma/Polish Sarcoma and Melanoma Patients Association
Hautkrebs-Netzwerk Deutschland
Cancer Patients Finland - Suomen Syöpäpotilaat, Finland
Step Ahead of Melanoma, Latvia

White Paper- MPNE patient consensus on data, AI and data-dependent models for business and research. Version 2.0

14/02/2024

YES, MPNE2024 is on! After 10 years, we thought it was time for a different type of conference- and what would be different than an UNconference?!

Find out more about what that means and the topics our MPNE colleagues have identified as important to our community (and obviously, how to apply!!) here

24th- 26th May, Berlin

Annual conference of the Melanoma Patient Network Europe

14/02/2024

https://www.mpneurope.org/melcaya-at-mpne

Interested in Melanoma in Children and Young Adults? Consider applying for the MELCAYA at MPNE workshop 22nd- 24th March in Berlin!

Details and how to apply on the website

MELCAYA meeting the MPNE community! Using Design Thinking to capture patient need and perspectives

12/08/2023

The increased use of telehealth in cancer care during the coronavirus disease 2019 pandemic has added to our knowledge and experience of the modality with benefits in terms of efficacy, cost, and patient and healthcare professional experience reported. However, telehealth has also been found not to....

12/08/2023

Autumn is coming and that's grant review time! Patient advocates are increasingly asked to review grant applications, in particular the patient engagement part.
Here my thoughts on what I am looking for- and why it's never about engaging for the sake of engaging:

Bettina Ryll Soon it will be autumn, the season of changing leaves- and of grant reviews! And with more and more research funders demanding patient involvement, it's also the time for many of us patient advocates to review grants. Some research funders still only want the patient engagement section....