CUPID COST project

CUPID COST project COST Action CA21123
Cancer- Understanding Prevention in Intellectual Disabilities (CUPID) Other network funding streams will not support this kind of activity.

There is poor understanding of cancer prevention among people with intellectual disabilities. CUPID will establish a research agenda and knowledge base to improve this in the European Union and beyond. Among the European intellectual disabilities population, many cancer diagnoses are symptomatic presentations following on from behavioural distress or physical changes. Cancer deaths among this population occur up to 20 years earlier than the general population. Factors influencing unequal health status and premature death amongst people with intellectual disabilities warrant further investigation. Article 25 of the United Nations Convention on the Rights of People with Disabilities acknowledges their right to healthcare. The Council of Europe Disability Strategy 2017-2023 recognises health systems failure to engage with and include people with disabilities. Many external and internal factors influence healthcare engagement among this population resulting in long- term health consequences. External factors include diagnostic overshadowing, paternalism and cancer screening delays during the COVID-19 pandemic. For the person challenges with communication, cognitive ability and decision-making capacity influence healthcare engagement. It is timely to develop collaborative links with the EU research and service provider communities to reach consensus on addressing these challenges. CUPID establishs active working partnerships with academics, researchers, non-governmental organisations, carers, people with intellectual disabilities and policy makers. CUPID will establish a research agenda and exchange information regarding cancer prevention in the intellectual disability population. Short term scientific exchanges, training schools, conferences and seminars using a hybrid approach will explore highlighted issues.

27/02/2026

The Final CUPID Conference will take place on 23–24 June 2026 in Brussels, Belgium. This concluding international event will bring together project partners, researchers, practitioners, policymakers, and key stakeholders to…

You will be exploring what cancer screening means, and what cancer prevention involves, and why these are important for...
24/02/2026

You will be exploring what cancer screening means, and what cancer prevention involves, and why these are important for the health of people with intellectual disabilities, who face significant inequalities in health and cancer outcomes. Crucially, the session will also centre the voices and lived experiences of people with intellectual disabilities themselves — their perspectives on cancer, screening, and prevention, and why equitable access to these services matters to them. Their insights remind us that this is not just a clinical issue, but a matter of rights, dignity, and fairness.
Join us at: https://setu-ie.zoom.us/j/96475801129

11/02/2026

On April 13. - 14. 2026 an intensive training, targeting the young researchers of CalLISTA and other COST actions will be held in Valencia, Spain.

01/02/2026

28/01/2026

poland
28/01/2026

poland

28/01/2026

day 1 finished successfully.
27/01/2026

day 1 finished successfully.

# cancerprevention intellectualdisabilities
27/01/2026

# cancerprevention intellectualdisabilities

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27/01/2026

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