Pulmonary Hypertension r.Macedonia Moment Plus

12/10/2025

🏃🏆 Wizz Air Marathon Sofija💜

12/10/2025

🏃🏆 Wizz Air Marathon Skopje💜

09/10/2025

📰📢Sotatercept, an activin-signaling inhibitor, has been shown to reduce morbidity and mortality in patients with long-standing pulmonary arterial hypertension (PAH). Its effects in patients diagnosed within the first year were previously unclear.

New data, published in the New England Journal of Medicine, show that in adults with PAH diagnosed less than one year earlier, adding sotatercept to background therapy reduced the risk of clinical worsening compared to placebo. The study showed that Sotatercept reduced the risk of clinical deterioration compared with placebo by 76%.

Patients also experienced fewer hospitalizations and improved exercise capacity, with no major side effects reported.

📑For more details, read the article here: https://www.nejm.org/doi/full/10.1056/NEJMoa2508170?query=featured_home

29/09/2025

💜 Today is World Heart Day 💜 – a moment to remind everyone living with a heart condition that the world is full of heart 💖, and no one should be left behind.

For pulmonary hypertension (PH) patients, whose condition affects both the lungs and the heart and can lead to heart failure, the importance of cardiovascular health cannot be overstated. Some heart conditions can cause PH, while others may result from PH – highlighting the urgent need for a unified approach to heart and lung health and a comprehensive cardiovascular plan 🫀.

At PHAEUROPE, we are driven by heart and passion, working tirelessly to ensure that every patient’s fight against PH and heart disease is heard, recognized, and supported.

PH may be rare, but it teaches broader lessons – the deep connection between heart and lungs, the devastating consequences of unequal access to care, the urgent need for drug development in neglected patient groups, and the importance of holistic, patient-centered care.

💡Did you know that the most common form of PH is linked to left-sided heart disease, such as left heart failure? Or that cardiovascular disease (CVD) claims over 20.5 million lives each year, with nearly 80% of these deaths occurring in developing countries?

💡As Hall Skaara, PHAEUROPE project manager and patient advocate, recently emphasized at the ERS event in the European Parliament:

"I have a lung disease, but will most likely die of a heart disease. The two are deeply connected." 💬

On this World Heart Day, let’s commit to raising awareness, supporting patients, and fostering a world where every heartbeat ❤️ – and every breath 🌬️ – matters.

➡Find out more about our initiative: www.phaeurope.org
➡Premier virtual center for PH patients: www.belaircenter.info

24/09/2025

На прв поглед ќе си помислите дека оваа нежна и жилава жена не би можела да истрча ниту 100 метри, а не дека е жена која како од шега трча и до 60 километри маратонски ил....

17/09/2025

Атлетичарката Валентина Узунова од Богданци, член на АК „7 Ноември“ од Гевгелија, долгогодишна натпреварувачка на долги стази, љубителка на маратонски трки, а во п...

16/08/2025

from North Macedonia💪👏

🏅 First Place & First in Support for PH Patients

In North Macedonia, Valentina Uzunova and Stanimirka “Lola” Tasevska, together with other compassionate runners, turned their passion for sport into a mission to raise awareness for pulmonary hypertension (PH).

From the grueling Titov Vrv SkyRace (20 km, 1900m+ elevation) to the scorching Trčame za Racin 10 km race in +36°C heat, they pushed their limits not just for medals, but for visibility and solidarity with the PH community.

🏔 Valentina conquered Titov Vrv for the 5th time, earning 3rd place in her category, while reminding everyone that PH patients face an even greater challenge every day.

☀️ Lola triumphed with 1st place in her category in the Racin race, while fellow runners ran side by side to amplify the message of hope and support for those living with PH in North Macedonia and beyond.

Together, these athletes prove that awareness can run far and climb high, inspiring others to join the race for better understanding, earlier diagnosis, and improved care for PH patients.

Pulmonary Hypertension r.Macedonia Moment Plus 💙🙏

17/07/2025

💜

from North Macedonia - Moment Plus 💙👏

To mark World PH Day 2025, the patient association Moment Plus from North Macedonia organized a powerful series of events to raise awareness about pulmonary hypertension. With the message that the PH community is far from small, the initiative brought together patients, caregivers, and supporters in a moving act of solidarity—getting breathless for those who struggle with air.

The events blended advocacy with art and music, proving that, even in the face of hardship, life with PH is meaningful—especially when there is access to proper treatment, early diagnosis, and understanding. The unity and dedication shown by the North Macedonian PH community is truly inspiring.

➡Original post: https://tinyurl.com/yc54z78f

Pulmonary Hypertension r.Macedonia Moment Plus 💙🙏

08/06/2025

Darko Prosev
Vlatko Semenakov
Nikola Kovacev

08/06/2025

Stanimirka Lola Tasevska

08/06/2025