28/02/2026
Today, we stand with the 300 million people worldwide living with rare diseases including some of the remarkable children entrusted to us. 🌍✨
At Axon Children’s Centre, our team is currently supporting children diagnosed with:
💜 Kabuki Syndrome
💜 Xia-Gibbs Syndrome
💜 Coffin-Lowry Syndrome
💜 Pachygyria
💜 Agenesis of Corpus Callosum (ACC)
These are rare and medically complex conditions that require thoughtful assessment, multidisciplinary collaboration, and highly individualised intervention planning.
We are humbled by the trust families place in us to walk alongside them in navigating diagnoses that are often unfamiliar, uncertain, and emotionally heavy. Our role is to bring functional, structure, and evidence-informed support so each child can access their fullest potential, and families to feel empowered.
Rare does not define limitation. It calls for deeper understanding.
Today, we honour every child and every family living this journey and we reaffirm our commitment to advancing expertise in supporting complex developmental presentations.
