MY ILD

MY ILD First Official Malaysian Interstitial Lung Disease (MY ILD) Awareness Account All members are encouraged to seek the advice of a healthcare professional.

The primary purpose for this page is to disseminate information about the so called ‘rare’ interstitial lung disease that is ever so often misdiagnosed or under diagnosed by healthcare providers. The mission is to provide support and education for ILD patients and their families, helping them to deal with the heartbreaking truth about living with this disease. The information provided here is not meant to take the place of a doctor’s professional advice.

25/09/2024

Pulmonary Fibrosis (PF) is a chronic lung disease which involves scarring of the lung tissue, making breathing more difficult over the time. Throughout Pulmonary Fibrosis Awareness Month, we are focusing on raising awareness of the symptoms and treatment available. Watch the PF disease awareness video ,we debunk common myths and provide the facts about Pulmonary Fibrosis (PF), a progressive lung disease that affects thousands of people. Understanding the truth about PF can make a huge difference in early detection and early intervention will definitely help the patient to live a better life.

01/10/2023

Thank you for joining us on this 30-day September journey in raising awareness about pulmonary fibrosis. Your support matters, and together, we're making a positive impact!

Let's continue to stand united and support those affected by this condition. See you next year! 💙

30/09/2023

Day 30 - PF Daily Facts

Symptoms such as breathlessness, a persistent dry cough, and fatigue may be a sign to speak to a doctor about pulmonary fibrosis.

To learn more, visit https://mypf.org.

Day 29 - PF Daily FactsPulmonary fibrosis can affect mental health too. Today, let's raise awareness about the emotional...
29/09/2023

Day 29 - PF Daily Facts

Pulmonary fibrosis can affect mental health too. Today, let's raise awareness about the emotional impact and the importance of holistic care for patients living with pulmonary fibrosis.


Day 28 - PF Daily FactsNo one should fight alone in this journey. Be a source of encouragement for someone living with p...
28/09/2023

Day 28 - PF Daily Facts

No one should fight alone in this journey. Be a source of encouragement for someone living with pulmonary fibrosis. Your support means the world to them.


27/09/2023

Day 27 - PF Daily Facts

Engage in creative hobbies and activities to uplift your spirits and maintain a positive outlook while living with pulmonary fibrosis.


Yesterday was a momentous day of celebration in Institut Perubatan Respiratori, as we had the opportunity to honor and c...
26/09/2023

Yesterday was a momentous day of celebration in Institut Perubatan Respiratori, as we had the opportunity to honor and celebrate our pulmonary fibrosis heroes 🦸🦹‍♀️🦹‍♂️🦸‍♂️.

"Malaysia Pulmonary Fibrosis Patient Summit and World Lung Day 2023", on 25th September, is an event dedicated for patients living with pulmonary fibrosis to connect, to share their triumphs and struggles, to learn from one another and to be inspired from their stories of hope and perseverance.

Highlights of the celebration included morning Zumba session, informative educational sharing from multidisciplinary healthcare team and heartwarming stories shared by patient themselves.

The "Harmony of Voice IPR" team wrapped up the event with a beautiful choir rendition of Live Life with Strength and Standing in the Eyes of the World.

Thank you, to the organizing committee and Boehringer Ingelheim for this wonderful event collaboration.

Day 26 - PF Daily FactsPulmonary fibrosis affects not only the individual but also their loved ones. Let's foster an env...
26/09/2023

Day 26 - PF Daily Facts

Pulmonary fibrosis affects not only the individual but also their loved ones. Let's foster an environment of understanding and compassion.


Day 25 - PF Daily FactsDo you know that autoimmune diseases like rheumatoid arthritis and scleroderma can be linked to c...
25/09/2023

Day 25 - PF Daily Facts

Do you know that autoimmune diseases like rheumatoid arthritis and scleroderma can be linked to certain types of pulmonary fibrosis? Early detection matters.

24/09/2023

Day 24 - PF Daily Facts

Advances in research are paving the way for innovative treatments and therapies for pulmonary fibrosis. Exciting times ahead!


Day 23 - PF Daily FactsMedications, oxygen therapy, and lung transplantation are some of the options available for manag...
23/09/2023

Day 23 - PF Daily Facts

Medications, oxygen therapy, and lung transplantation are some of the options available for managing advanced pulmonary fibrosis.

Day 22 - PF Daily FactsPulmonary fibrosis caregivers are unsung heroes, providing invaluable love and assistance to thei...
22/09/2023

Day 22 - PF Daily Facts

Pulmonary fibrosis caregivers are unsung heroes, providing invaluable love and assistance to their loved ones. Let's honor them today ❤


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Institut Perubatan Respiratori
Kuala Lumpur

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