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Beyond Limits: PCOS & Sickle Cell

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Beyond Limits: PCOS & Sickle Cell

Welcome to Beyond Limits, a community for individuals defying the odds with PCOS and Sickle Cell.

30/01/2026

Plot twist: What my village called a spiritual case of humans transforming into animals was actually a disease spread by mosquitoes. 🦟

Growing up, I believed that a particular woman with very huge swollen legs was “an elephant in another life.” We called it rikiɗa.

The reality? Lymphatic filariasis one of 21 neglected tropical diseases affecting 1 BILLION people.

World NTD Day is today, and you probably didn’t even know.

That’s the problem.

Let’s make these diseases impossible to ignore. Watch, learn, share.

See comments for all 21 NTDs, which one did you know about?

05/01/2026

First day of work, school, back to working on my thesis and the one million other things I have going.

Let’s go!

02/01/2026

This year taught me who I am when I choose myself.
I spent it building systems, translating complexity, and helping people find clarity in health, research, and life.

I worked across advocacy, policy, and communication. I learned how access is shaped, how voices are lost, and how much changes when information is made usable.

I’m choosing to be more visible now—not for numbers, but because clarity matters.
Because sometimes people aren’t looking for influence; they’re looking for answers.

Not louder.
Just clearer.

01/01/2026

Feliz Ano Novo…

🫶🏽❤️

1/1/2026

28/12/2025

Jan-Dec.
A year told in Sundays..

A year held together by grace.
By quiet Sundays, whispered prayers, and obedience in small things.

This year, I served behind the lens capturing worship, community, and moments that reminded me why I stay rooted.
Today, I broke my usual rhythm, stayed for second service, and witnessed a naming ceremony that felt like a gentle reminder: presence matters.

I didn’t miss my Bible this year. Not once.
And that alone feels like a testimony.

As the year closes, I’m grateful for consistency, for growth, and for a faith that continues to stretch me.
Here’s to deeper devotion, steadier rhythms, and a 365 that draws me even closer.

52/52.

30/11/2025

In the middle but moving forward.

This season isn’t a setback. It’s God’s schedule.
The middle is where faith gets tested, character gets shaped, and courage gets refined.
It’s where He calms storms, stretches us, and prepares us for what’s coming next.

I’m not stuck. I’m being strengthened.
I’m not behind. I’m being refined.
And I will make it to the other side, exactly on time.

14/11/2025

Bloating isn’t always about what you ate. 🎈

for women with PCOS here’s our truth we need to talk about more: sometimes it’s not the food. It’s your hormones.
With PCOS, bloating can be linked to:
→ Hormonal shifts (androgens, estrogen, insulin)
→ Gut microbiome imbalances
→ Chronic low-grade inflammation
→ Stress and cortisol spikes

Sometimes the salad bloats you more than the pasta. Sometimes you wake up puffy even though you “ate clean.” And that’s not failure, that’s your body communicating something deeper.

The gut-hormone connection in PCOS is real. High androgens can slow digestion. Insulin resistance affects how your body holds onto water. Stress tightens your gut and disrupts motility. And when your gut bacteria are out of balance? Even the “healthiest” foods can cause discomfort.

This post is for everyone who’s spent hours trying to figure out what they ate “wrong” only to realise it wasn’t about the food at all. You’re not broken. Your hormones are just speaking louder than your meals.

Next time you feel bloated, pause. Instead of spiraling into “what did I do wrong?”, ask yourself:
💭 Am I stressed?
💭 Where am I in my cycle?
💭 Have I been prioritising rest?
💭 Is my body responding to a hormonal shift?

Healing starts when curiosity replaces shame. Your body isn’t punishing you, it’s trying to tell you something. 💙

Save this if you need the reminder. And if this resonates, drop a 💜 below let’s normalise talking about this.

Have you ever experienced bloating that had nothing to do with what you ate? You’re not alone. 👇

09/11/2025

For many women, the hardest part of PCOS isn’t the diagnosis itself, it’s how quickly it becomes a conversation about fertility.
The moment you mention it, people ask, “So… can you have kids?”
And suddenly, your womanhood feels like it’s being measured by your ability to conceive.

But here’s what’s often missed: PCOS doesn’t mean you’re infertile.
It means your hormones need support to ovulate regularly and that can be managed.

But whether you want children or not, your womanhood is not defined by your womb.
You are still whole. You are still woman enough. 💛

When you’re diagnosed with PCOS, it’s easy to feel rushed through appointments, nodding while doctors talk, leaving with more confusion than answers.

But you deserve clarity.
You deserve to understand what’s happening to your body.

So next time you’re in the hospital or clinic, ask questions.
Ask how PCOS affects your ovulation.
Ask what treatment options exist beyond birth control.
Ask how insulin, thyroid, and stress link to your hormones.
Ask until you understand, because your health is a conversation, not a command.

The more informed you are, the more empowered your choices become.
Nobody told us that, but we’re learning together. 💛

💬 This is The Things Nobody Told Us About PCOS — Episode 7.

02/11/2025

Nobody told us that getting help for PCOS would feel like a full-time job.

That you could walk into a hospital for one problem and walk out questioning your worth.

In 2023, I went to the hospital because of severe knee pain.
I’ve always had mild arthritis, but this time it was worse.
After an ultrasound, they found I had popped my synovial cavity.

But before I could even explain my medical history, the orthopaedic doctor looked at me and said,
“Stop eating too much. Lose weight — or next year you’ll need a hip replacement. And when you come to me, I’ll charge you a lot of money.”

He never asked about my health background.
He just kept repeating, “You’re eating too much,” and threw in other demeaning comments.

That day, I realised something:
Sometimes the hardest part about living with PCOS isn’t the symptoms, it’s the people meant to help you heal.

I’ve sat through appointments where I knew something was off but I didn’t have the words or confidence to fight back.
And that’s what this episode is about: learning to find your voice in a system that keeps trying to quiet it.

I’m still figuring it out.
Still learning how to ask, how to insist, how to walk away when I’m not being heard.
But I’m on my way. 💜

Because healing shouldn’t require fighting but for women with PCOS, it often does.
And if we have to fight, at least let’s fight together.

If you’ve ever walked out of a doctor’s office feeling small, dismissed, or misunderstood share your story below.
Let’s turn our experiences into awareness, our pain into purpose, and our silence into change.
Your story might be the one that helps another woman find her voice. 💜

🎧 Episode 6 — Doctors: The Medical Maze Nobody Prepares You For

31/10/2025

When I was first diagnosed with PCOS, I thought it was something I could fix, that the right pill would make it disappear.

But over time, I learned that PCOS isn’t something you cure; it’s something you understand and manage.

My sister once said, “The only time you ever finished a drug dosage was when it had to do with having children.”

She was right. I’ve always hated medication even when I had a serious kidney infection, I didn’t stick to the dosage. My mum was furious, I chopped a few slaps sha 🥹🫶🏽. Thinking about it now, my mom was loosing it because I was sick and I was busy being a bum.

When I was prescribed birth control for PCOS, I took it so serious. And I wish I knew then what I know now: birth control isn’t a treatment, it’s a temporary cover-up.

It can regulate your period or ease symptoms, but it doesn’t heal the root cause.
And when you stop taking it, you often return to the same imbalance you started with, sometimes worse.

I wish someone had told me to start with knowledge not prescriptions.
To move, to track, to test, to listen.
To make peace with my body instead of trying to control it.

Because managing PCOS isn’t about perfection, it’s about partnership.
You and your body, learning to work with each other again. 💜

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