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Comfort and Joy Sickle Cell Foundation

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Democratic Republic Of The Congo
Abia
Comfort and Joy Sickle Cell Foundation

A non-governmental organization, established to help sickle cell patients all around the world, fight and manage the ANEMIA. Sickle cells are stiff and sticky.

Sickle cell anemia (uh-NEE-me-uh) is the most common form of sickle cell disease (SCD). SCD is a serious disorder in which the body makes sickle-shaped red blood cells. “Sickle-shaped” means that the red blood cells are shaped like a crescent. Normal red blood cells are disc-shaped and look like doughnuts without holes in the center. They move easily through your blood vessels. Red blood cells contain an iron-rich protein called hemoglobin (HEE-muh-glow-bin). This protein carries oxygen from the lungs to the rest of the body. Sickle cells contain abnormal hemoglobin called sickle hemoglobin or hemoglobin S. Sickle hemoglobin causes the cells to develop a sickle, or crescent, shape. They tend to block blood flow in the blood vessels of the limbs and organs. Blocked blood flow can cause pain and organ damage. It can also raise the risk for infection.

26/06/2025

💚 Help Save a Life: Support Gabriel Musa’s Kidney Transplant Journey 💚

Dear friends, family, and kind-hearted strangers,

We’re reaching out with hope and urgency. Our beloved, Gabriel is facing a life-threatening kidney condition and urgently needs a kidney transplant. While the emotional toll is immense, the financial burden is just as heavy. From pre-surgery care to the transplant procedure and lifelong medications, the costs are overwhelming.

That’s why we’re humbly asking for your help.

Whether it’s a small donation, a share of this post, or simply keeping Gabriel in your thoughts and prayers — every act of kindness matters.

🧡 100% of funds raised will go toward:

Transplant surgery and hospital costs
Post-operative care and anti-rejection medications
Travel and accommodation for medical appointments
If you’re able to contribute or share, you’re helping give Gabriel a second chance at life.

📍Donate here: https://gofund.me/49ed89b1
OR
GTB: 0177215622
Musa, Gabriel Osiapkhemhi

🙏 Please share and help

18/05/2025

STOP Replacing Blood Transfusion With Ugu and Milk!

I will always speak against giving Ugu and milk and others in place of a blood transfusion for sickle cell warriors.
I will keep speaking even if it makes some of you uncomfortable.

Because a child just died.

Why?

Because someone told the parents not to allow a blood transfusion.
They said:

"It’s a scam."
"Doctors are lying."
"Just go home and give Ugu and milk."

They listened.

They came back…
And it was too late.

Now, the parents are crying.
But should they be the ones crying?
No!
Because they were warned.
The child needed BLOOD. Not leaves. Not milk. Not guesswork.
And in sickle cell, time is life.

How on earth do you think ugu and milk will help a child with 14% PCV?

Blood transfusion is not evil.
Doctors are not magicians.
Delay is dangerous.
And misinformation kills.

Please stop promoting all these deadly "alternatives."
Someone with a stable PCV of 28% of the person has PCV of 18% will need a blood transfusion, but here you are asking the person to take ugu and milk because the last time you were at 18%, you didn't receive a blood transfusion.
But you forgot to mention your stable PCV is 20%

No child deserves to die like this.
No parent deserves this kind of pain.
Let science and care do what they were made to do.

I'm exhausted,so is Kemi Oguntimehin But we will keep shouting.

Because, this can’t keep happening.

07/03/2025

GREAT FOODS FOR SICKLE CELL FOLKS

YAMS(4)
Yam also passes the litmus test as one of the foods that’s appropriate for the sickle cell person.

Why so?

UPLIFTING
One of the fallout of sickle cell that sufferers will love to give a Bruce Lee kick is, fatigue. Listlessness and fatigue may not always come from depletion of oxygen resulting from sickle cells’ weak hands to hold the element, sometimes, it comes from sudden energy crash caused by certain foods we eat.

Yams are complex carbohydrates. When consumed, they break down slowly in the body with gradual glucose sips into the bloodstream, and this results in stretched or sustained energy level in the body of sickle cell folks. No quick rise and fall of glucose levels like you get from simple carbohydrates like white rice, white bread, fruit juices, pastries, etc..

Co-opting this food, therefore, is a smart pick for the SCD sweetie pie.

MENTAL HEALTH INTEGRITY
‘Don’t go there’, is not in the vocabulary of sickle cell disorder. The lawless thing goeth where it ‘listeth!’ And because of its rough play, it can impact negatively on the mental and nerve health of the sickle cell person. Silly thing!

Diosgenin, a compound found in yams, has been proven to improve mental function and nerve health. If the SCD honey, therefore, seeks to preserve his cognitive abilities and not slide into dementia and its partner-in-crime, Alzheimer’s disease, one of the foods to spend money on is yam.

GOODLY STOMACH/INTESTINES
The general wellbeing of a person, most times, depends on whether his guts(stomach/intestines) wear ‘bulletproof’ or just ordinary singlets! That’s, healthy guts equal a healthy person while ‘anyhow’ guts equal a nice playground for a long list of named and unnamed diseases!

This is also true for the sickle cell dude, but yams have you covered.

Yam has fibre that doesn’t digest in the stomach and intestines, but become ‘shawarma’ for good intestinal bacteria. As these friendly bacteria multiply and grow big from this sumptuous diets, they fight off the bad ‘guys’ and their ‘party members’, thereby creating spick-and-span guts.

NO RED CARPETS FOR INFLAMMATION
The mother of diseases - inflammation - also becomes a goner through frequent munching of yams. This is because, the college of antioxidants abiding in yams continuously create slippery grounds for inflammation to enjoy even a waiting-room in the delectable body of the SCD. person.

With all these, would you really need to be cajoled to make yams one of the foods that should adorn your plates?

10/06/2024

Zobo Drink: The Ultimate Warrior's Health Elixir

1. Cell Health and Repair: Bursting with antioxidants and phytochemicals, zobo drink supports healthy cell growth and repairs tissues, ensuring you stay strong and resilient.

2. Immune System Boost: Zobo increases levels of glutathione and white blood cells, critical for a robust immune system that fights off infections.

3. Combat Anemia: Regular consumption of zobo can help prevent anemia, particularly in sickle cell patients, by promoting the production of new red blood cells.

4. Digestive Aid: Zobo promotes smooth digestion, helping your body absorb nutrients efficiently and keeping your digestive system happy.

5. Vitamin C Power: Rich in Vitamin C, zobo drink is a fantastic immune booster, protecting you from colds and other illnesses.

6. Energy Boost: Packed with Vitamin B3, zobo supports overall body health, giving you the energy and vitality you need for daily activities.

7. Nervous System Support: The Vitamin B1 in zobo leaves maintains a healthy nervous system, ensuring your brain and nerves function smoothly.

8. Fatigue Fighter: Zobo is rich in riboflavin (Vitamin B2), a vitamin that helps your body produce energy, combating fatigue and weakness.

9. Hydration Hero: Zobo helps keep you hydrated, which is crucial for maintaining energy levels and overall health.

10. Heart Health: Regular intake of zobo can support heart health by helping to maintain healthy blood pressure and cholesterol levels.

Drink up and enjoy this delicious beverage that keeps your body in top shape!
- Comfort and Joy Sickle Cell Foundation © June 10, 2024

19/07/2023

Obtain free July to Sept edition of SICKLE CELL NEWS at https://education.sicklecellnews.com/free

19/07/2023

Title: A Holistic Approach to Managing Sickle Cell Crises

As a holistic professional with experience in managing sickle cell patients, I understand the importance of a comprehensive approach to handling severe crises. In addition to medical treatment I'll list, there are several holistic measures that can significantly influence and improve the management of the condition. Below are some practical steps and advice to help your loved one cope with sickle cell crises effectively:

1. Medical Assessment: If your loved one experiences a severe crisis, seek medical attention promptly. Make sure to inform healthcare providers about their sickle cell condition, so they can avoid administering treatments containing iron, which can be harmful.

2. Malaria/Typhoid Prevention: Sickle cell patients are prone to crises triggered by infections like malaria and typhoid. Take preventive measures against mosquito bites, such as using mosquito nets and taking regular prophylactic tablets (Metaprim) once a week. Daily intake of B-Co and Folic acid can also be beneficial.

3. Warm Environment: Avoid exposing your loved one to cold environments and cold water. Encourage them to drink warm water regularly, as it aids in maintaining blood flow and prevents excessive sickling of red blood cells.

4. Moderate Physical Activity: Advise your loved one to avoid strenuous activities, such as carrying heavy loads, long-distance traveling, or trekking. Reducing stress on the body can help minimize the risk of crises.

5. Nutritional Support: Incorporate a diet that includes milk, boiled eggs, or iron-free blood tonic to help build blood cells and strengthen the immune system. This can reduce the frequency of infections and the need for unnecessary transfusions.

6. Medication for Infections: Whenever your loved one receives treatment for infections, ensure the prescribed medication includes flushers that can help rid the body of harmful agents. Consult a lab or a healthcare professional for appropriate tests and recommendations.

7. Limited Use of Painkillers: Minimize reliance on painkillers due to potential side effects. Administer them only during severe pain. If crises become unbearable, seek medical attention for proper pain management, which may include intravenous medication or transfusions.

8. Iron-Rich Foods Avoidance: Meals rich in iron, especially unripe plantains, should be avoided. Instead, consider providing hollandia yoghurt (rich in calcium and vitamins) twice a week or as per your budget, as it can support bone health and reduce joint and hip-related issues.

9. Breathing Techniques and External Relief: Teach your loved one slow breathing techniques to help alleviate aches during crises. Use balms like ABONIKIN for joint massages, as they provide more effective relief compared to standard ointments like Robb. Warm water baths before applying the balm can enhance its effectiveness.

10. Embrace Positivity and Prayers: Remain optimistic, as sickle cell can be effectively managed with the right approach. Although not a spiritual ailment, prayer and seeking divine help can provide strength and comfort during challenging times.

Remember, managing sickle cell crises requires a multifaceted approach that encompasses both medical and holistic aspects. By combining these strategies, your loved one can lead a fulfilling life despite their condition. If you need further guidance or support, feel free to reach out to me; I'm always here to assist.

- Odunmbaku Reuben ✡️ | Holistic Director (Comfort and Joy Sickle Cell Foundation) © July 19, 2023

08/04/2023

*WATER SERIES* : *_THE NECESSITY OF DRINKING WATER_*

Yesterday, we learned that *our bodies are made up of between 50% - 80% water*.

Why the 50% - 80% range? *80% of a newborn's weight is water*, *50% - 55% of an elderly person's weight is water*, *55% of an adult female's weight is water* , *60% of an adult male's weight is water*.

For example, *the body of a 70kg adult male contains about 42 liters of water*.

Where can this 42 liters of water be found in the body of such a person?
The *brain* is *75% - 90% water*, the *heart* is *75% water*, the *blood* is *90% water*, the *eyes* are *90% water*, the *lungs* are *85% water*, the *muscles* and *kidneys* are *75% - 80% water*, the *bones* are *30% water*, the *liver* is *96% water*.

What role does water play in our body? Truth be told, *every bit or part of our body needs water to function correctly*.

Water is involved in all the activities that take place in each cell of the body.

Water helps to transport oxygen and nutrients from food to the blood and then to each cell of the body.

Water also helps take away waste materials from each and excrete them in the form of sweat, urine, breath, and f***s.

When the body temperature rises, blood circulation to the skin increases, enabling the body to get rid of the extra heat through sweating in order to keep the body at a constant and normal temperature.

Water also lubricates and cushions the joints, as well as protects the spinal cord and other sensitive tissues.

*The body is constantly losing water through breathing*, *sweating*, *urinating*, and *defecating*.

*Alcohol and drinks containing caffeine* ( _energy drinks_, _teas_, _soft drinks or sodas_, _fruit juices_, _coffee drinks_, _etc._) *may cause you to lose more water*.

*Some medications that contain caffeine and those that cause extra urination and sweating may cause you to lose more water*.

*Many diseases such as cancer*, *Crohn's disease*, *ulcerative colitis*, *celiac disease*, *cystic fibrosis*, *diabetes*, *bladder infections*, *kidney disease*, *etc.* *may also cause you to lose more water*.

Ladies and gentlemen, *trouble begins when there is not enough water in the body*. This condition is known as *dehydration*.

*Dehydration has very serious negative effects on the body's cells and is an ignored root cause for many diseases*.

*What if the cure for your disease is as simple as drinking enough water daily*?

Culled from Dr Eatright 'Water Series'

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