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Sickle Cell Care Network-SCCN, Sapele warri Road, Sapele (2025)

24/09/2025

A LONG READ BUT COME With ME.......,

When it comes to sickle cell, God, and faith, people often get confused.

Some say, “God can change genotypes,” or “I know someone whose genotype changed,” so they encourage others to marry even when they are not compatible.

But is that really wisdom?

I believe in God.

I am a child of God.

God is all-powerful, yes,

He can do miracles. But He also gave us wisdom to make the right choices. The same God who can heal sickness also gave us doctors, hospitals, and tests to protect us.

In the Bible, when the d€evil told Jesus to jump down from the temple, Jesus said, “Do not tempt the Lord your God.” (Matthew 4:7).

If you knowingly enter an incompatible marriage, praying for God to fix it later, isn’t that tempting God?

Sometimes, the miracle is not that your genotype changes, but that you found out early before p@in and heartbreak. That’s God saving you from trouble.

I also believe in love.

Yes, call me a lover girl❤️❤️❤️❤️❤️❤️

Love is sweet, but marriage is beyond emotions. If both partners are AS and they marry, the children may suffer, and it’s the parents who will live with the guilt.

Wisdom is looking ahead, not just at today’s feelings. True love doesn’t hide the truth,it protects the future.

Can God change genotype? YES,HE CAN.

Faith is not closing your eyes to reality. Faith is trusting God while also walking in wisdom.

So, the balance is this: Believe in God, but also use the wisdom He has given.

Don’t tempt Him by making careless choices.

Knowing your genotype is already God’s way of guiding you.

Cherish that knowledge and walk wisely.

What do you think, should faith override wisdom in genotype matters, or should both work hand in hand?

I would love to hear from you.

My name is Mercy Ebele Chukwuma ,I talk genotype Compatibility.

24/09/2025

Do you even UNDERSTAND WHAT PAIN MEAN ?

Like every time I get to share my sickled journey on this space,I get people who send in questions as regards Genotype and compatibility with their partners.

I'm not a certified genetic counselor I tell them often,I only get to share my little knowledge about compatibility and options for incompatible partners.

Sadly, in this part of the world an average Nigerian can't afford the options available for partners who are not compatible.
It's even scary telling two grown adults who are s*xually active and legally married not to have s*x with the aim of making babies of their own.

It's unfortunate, on most days I come online to meet tags and messages of people who encourage others to get married that their Genotype will change or perhaps they know a pastor who can pray for thier Genotype to change.

Just because you've read somewhere about someone whose Genotype changed, doesn't mean it works for everyone.

It so easy for a person who hasn't felt pain to find soothing words to calm a person in pain, whereas you're not the one who wears the shoe.

At a point in my life, I stopped advicing people who aren't compatible not to marry... Omoh , E no concern me again, make experience mold you.

I'm sorry, as long as you're not compatible and can't afford options available for Incompatible partners, I can't encourage you to get married.

DO YOU EVEN KNOW WHAT PAIN IS ???

With sickle cell it means the body doesn't supply sufficient oxygen to other parts of the body, this means I'm at risk of complications.

There is more to a person who lives with sickle cell than just the pain crisis.

-Having a child been separated from either the father/Mother because the parents aren't compatible

-Having to think if you'll survive the next crisis

- Having my guardian living in fear if I don't survive my next crisis

- Having my life under panic attack when I get to hear the news of a warrior who kicked the bucket from a complication of sickle cell

- Having to think about the complications of sickle that awaits me if my immune system doesn't fight enough

- Having my life on hold because I have to manage a complication of sickle cell

- I'm not even talking about the stigma

- The financial challenge

- The psychological trauma

- The feeling of not being understood

- The thoughts of sickle cell complications that awaits me

- Living in self denial

- the body torture

- The sleepless nights

Omoh, the list is endless.

How would you say you love someone,still you'd want to have them live their lives in pain.

I do not want to have this discussion today .

I would always say it is crucial for individuals to know their genotype and communicate openly with their partner about it before considering marriage or starting a family.

Genetic counseling can provide further guidance and support in understanding the risks associated with specific genotypes and making informed decisions.

What ever options you take, NEVER ADD TO THE NUMBER OF PERSONS LIVING WITH SCD !

Nimi's Dairy

23/09/2025

My brother this road wey you wan follow no pure ooo.
I know you love this babe but una Genotype no gel na.
Look for another babe.

Sweetly in love: She is my dream woman.There is no other woman for me out there.l have invested so much in her.
I can not love another woman.We will be okay.
Besides this sickle cell stuff is overrated my bother. No matter the matter,we g*t each other.

Sickle cell 👇👇👇👇👇👇👇👇👇👇👇👇👇

Sickle Cell Care Network-SCCN

22/09/2025

Sweetly in love,sweet love dey sweet pass sugar… but abeg, check genotype before you sip am like tea. Sickle cell no get j0y.

22/09/2025

Dear Caregiver,

As they begin another academic session, mum please go the extra mile for our super warriors

Remember to include lot of vegetables in their meal.

Reduce the fizzy drinks,if you ask me I think just water is okay.

They need to stay hydrated. Cold water(drinking and bathing) is a NO! NO!!

Ensure the school toilet is neat.This is very very important.

Make sure they sleep on time (less of PJ MASK,LION GUARD,Bluey ETC)

They don’t need stress(don’t over exert themselves both at home and school ).You need to involve the class teacher be assist you

Kids will always want to play, the teacher should know when they have had enough.

The older champions should know when to stop.

Always keep them warm

Don’t forget the place of prayer,pray for them every morning.
Pray for and with them.

Decree God’s word over them

It will end it praise.

21/09/2025

Hello everyone,

My name is Mercy Ebele Chukwuma

I wear a few hats, but they all connect to purpose and service.

👉🏽I am a Gospelpreneur, I bring the message of Jesus Christ in a practical way to teenagers and youth, helping them live purposefully.

👉🏽 I am a Genotype Compatibility Advocate, the voice on the streets, both online and offline, reminding people to know their genotype and be absolutely sure before making life decisions.

👉🏽 I am also a Sickle Cell Wellness Evangelist. I inspire and encourage sickle cell champions and caregivers, showing them that fulfilling destiny is possible despite the challenges of the disorder.

👉🏽 And beyond advocacy, I am a Foodstuff and Seafood Vendor, I carefully source, hygienically process, and deliver high-quality, affordable foodstuff and seafood to customers within and outside Nigeria.

👉🏽I'm a mother and a caregiver to two amazing princesses living with sickle cell.

👉🏽I am based in Abuja, Nigeria.

In everything I do, my passion is to bring awareness, hope, and value to people’s lives.

May I meet you?

21/09/2025

Father, renew our faith where doubt has crept in.
Lord, we believe; help our unbelief!Mark 9:24

21/09/2025

Dear sickle cell champions,
The world may not see your silent battles, but heaven records every tear and every triumph.

05/09/2025

Sickey-tember.....Sickle cell awareness month.

Day 4

How Do I Explain Sickle Cell to Others?

When people ask me, “What is sickle cell?” I pause.

Because for me, it’s more than a medical definition.

It’s watching two of my precious children live with a condition that sometimes brings p@ain strong enough to br€ak the body, yet never strong enough to br€€ak their spirit.
It’s sleepless nights, emergency hospital visits, and prayers whispered through tears.

It’s the quiet questions a mother carries: “Will they be okay? Will they get to live their dreams?”

It is watching helplessly while sickle cell do what it know what to do Best......

But sickle cell is something else.
It’s resilience. It’s laughter returning after the tears. It’s children who choose joy even after pain.
It’s the courage of champions who refuse to let a diagnosis define their destiny.

When I explain sickle cell, I explain both sides: the struggle and the strength, the pain and the possibilities.

And above all, I explain God’s role in our story. Because through every crisis, I have seen His faithfulness. Through every tear, I have felt His comfort. And through every victory big or small . I see His love at work.

I say it is a journey of p@1n and promise, a b@ttle and a blessing.
It is proof that even in weakness, God’s strength is made perfect (2 Corinthians 12:9).

And with Him, every champion is not just surviving, they are living, thriving, and shining as champions of hope.

05/09/2025

Four years of advocacy.
For four years I chose to tell my story
Four years of talking about sickle cell
Four years of officially taking up this assignment
Through it all, God has been my strength.
He had used this platform to encourage other caregivers and SICKLE CELL CHAMPIONS.
We have prayed together
Laugh together
Cr1ed together
Trusted God for His intervention together
Hoped for a miracle together
Danced and celebrated His faithfulness together.

Abba I'm so grateful 🙏🏼
Thank You Abba 🙏🏼
You are worthy of praise.
Take all the glory, You alone deserve it all.
Thank you for more miracles that You will do for us in Jesus' Name, Amen 🙏🏼

My people, what did you learn about sickle cell from this page?
How have we fared?
I want to hear from you.

02/09/2025

The Day I First Learned My daughter Had Sickle Cell anaemia.......

28 February,201....

I still remember that moment.

BioMed laboratory ,Sapele, Delta State.....

The room felt so heavy, my heart sank, and my mind raced with questions I didn’t have answers to. “How did this happen?Why my child? What will her future look like? How will I carry this?”

It felt like the ground beneath me shifted. I held my baby and tears rolled down my face .

I journey from Okpe Road to Oton was the longesty........

Then I had Kenny March same year and six months later we conducted genotype test for her and boom it came out SS.

Oh I cr1rd.....I wanted to end it all....not because I didn’t love them , but because I feared the unknown. In that moment, I felt weak, broken, and even questioned, “Lord, where are You in this?”

But God’s love and faithfulness did not leave me where f€ar tried to tr@p me.

Over the years, I’ve seen His hand at work:
In every hospital stay that ended in recovery.
In every painful night that turned into morning laughter.
In the strength my children carry z strength that humbles me every day.

Yes, sickle cell has brought challenges, but it has also revealed God’s unwavering love. He has carried us when I felt I couldn’t take another step. He has turned my tears into testimonies. And through my children, He has shown me that His strength is made perfect in weakness (2 Corinthians 12:9).

Today, I no longer see that diagnosis as the end. I see it as part of a story God is still writing — a story of resilience, courage, and victory. My children are not defined by sickle cell; they are defined by God’s love and His purpose for their lives.

So, when I look back on the day I first heard the last words “your child has sickle cell,” I no longer see fear. I see the beginning of a journey where God’s faithfulness has been my anchor.

15/05/2025

Excellent Morning Beautiful family ❤️

I hope you had a restful night.

We come into today with deep gratitude to Jesus for His help and mercies towards us. We are so grateful.

May the blessings of today not elude us in Jesus Name, Amen.

It is pertinent that we do a very important assignment for God and ourselves.

What is the assignment?

*PRISON BREAK*

Let's there be a prison Break in every heart today.
Everyone that has hurt you and offended you.
Betrayed and lie against you...

Everyone occupying your heart space for free.

God wants us to let them all go.
Break that prison door and let the prisoners go.

We have to give them a PRESIDENTIAL PARDON.

Yes, they don't deserve our forgiveness, but neither do we deserve God's mercy.
While we were yet sinners, Christ died for us.

And now He is asking us to do the same so we, too, can continually enjoy forgiveness and mercy.

Matt.6.14 - For if ye forgive men their trespasses, your heavenly Father will also forgive you:
Matt.6.15 - But if ye forgive not men their trespasses, neither will your Father forgive your trespasses.

Ephesians 4:32 says: "Be kind to one another, tenderhearted, forgiving one another, as God in Christ forgave you.

That prisoner is a hindrance to our prayers.
They have to go.

Mark 11:25 - And whenever you stand praying, forgive, if you have anything against anyone, so that your Father also who is in heaven may forgive you your trespasses.

Is it easy? No way
Some hurt and betrayal are so deep that nobody can understand your pain.

Jesus understands what it means to be betra.yed, accused wrongly, be.aten and dis graced for a crime He did not commit and He wants us to let go.

Unforgiveness is hindering our prayers and blessings.
Daddy wants us to take it out
Give everyone a pardon, sweep off the bitterness, resentment and hate from our hearts.

Let the space be filled with the love of God.
His presence and His word.

Who is still a prisoner in your heart?

Funny enough, you might be among the prisoners.

For some people, God is there too.

You are angry at yourself for past mistakes and decisions.

Angry at God for the pain and struggles you are going through.

Angry at your parents for putting you in unpleasant situations. How come they did not check or know about genotype compatibility?

Today is that day to let everyone go.
Call out their name and what they sis and let it go.

I forgive myself
Mr A, I forgive you.
Sis Z I forgive you.
I let you go out of my heart.

Jesus said: *It is more blessed to give than to receive* (Acts 20:35)

He also said:

*Give, and it will be given to you: good measure, pressed down, shaken together, and running over will be put into your bosom. For with the same measure that you use, it will be measured back to you.”* (Luke 6:38)

So as we give pardon, we receive pardon. As we give mercy, we receive an overflow of mercy. As we give forgiveness, we receive reconciliation and restoration!

Wow!

That's exactly what it is, and that's exactly what we all need now!

God's word is so beautiful

As we carry out this assignment, you will feel light (like a heavy weight is off your shoulders), and you will enjoy peace.

Lord, we receive grace to obey, and we receive an avalanche of answers that will compensate for the losses suffered, in Jesus Name, Amen

We are coming back with miracles today oh, I can just sense it💃💃💃💃

Thank You Lord🙌

Sickle Cell Care Network-SCCN

24/09/2025

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