ERN eUROGEN

12/08/2025

🎓 Upcoming ERN eUROGEN webinars:

📅 09 Sept: ERN eUROGEN Registry Update
📅 10 Sept: Fluorescence in pediatric colorectal surgery
📅 17 Sept: Multi-disciplinary management of cystinuria
+ more!

All free, all open for registration: https://eurogen-ern.eu/webinars/upcoming-webinars/

European Commission Jardin Joint Action European Association of Urology European Association of Urology Nurses (EAUN) EURORDIS-Rare Diseases Europe
ESPU - European Society for Paediatric Urology ESPU-Nurses International Continence Society (ICS)

Webinar Programme Upcoming Webinars Past Webinars Upcoming Webinars Our upcoming webinars are below (sign-up links are usually available 1-2 weeks prior). You can subscribe here to receive webinar alerts as well as our monthly newsletter. Webinar sessions take place on Zoom, usually starting at 18:0...

11/08/2025

What’s the impact of cancer surgery on sexual function, for patients and partners?

A recent UROwebinar from the European Association of Urology featured powerful insights from ERN eUROGEN ePAG representatives Rob Cornes and John Osborne.

💬 Advocacy meets lived experience.

🎥 Watch the recording: https://www.youtube.com/watch?v=BayCysfxtj4


What’s the impact of cancer surgery on sexual function for patients and partners? N) EURORDIS-Rare Diseases Europe Orchid - Fighting Male Cancer

The patient and partner perspectives on the impact of female cystectomy, pe**le cancer and prostate cancer on sexual functionThis recording will illustrate h...

08/08/2025

Did you see that our July newsletter was published last week? 🤔 If you didn't spot it in your inbox, then you can read about:

💬 patient empowerment,
📚 updates to rare disease classifications,
💡 funding calls, events, and more...

HERE ➡️ https://european-association-of-urology.email-provider.eu/web/mjla6ut7yj/3aajhmupaa/t00mfmxbrh/sw7kqe9i3f?lp-t=1753952783

📝 Sign up so you never miss another edition: https://european-association-of-urology.email-provider.eu/memberforms/subscribe/standalone/form/?a=mjla6ut7yj&l=t00mfmxbrh

08/08/2025

🚨 A major update to the Orphanet classification for spinal dysraphisms has been published, thanks to a cross-ERN collaboration led by ERN eUROGEN and ERN ITHACA.

🔍 25 new ORPHAcodes

🧭 Decision tree to support care

Find out how it improves diagnosis and research:

We are pleased to share the publication of the paper “Revised Orphanet Nomenclature and Classification for Spina Bifida and Other Spinal Dysraphisms (SBoD)” in the Orphanet Journal of Rare Diseases. Led by Ferdinand Dhombres, Timothée de Saint‑Denis, Dominic Thompson, Giovanni Mosiello, and a...

07/08/2025

Adult patients recently shared their powerful stories at the 2025 VACTERL Support Group Get-Together, showing how lived experience can drive real change. ERN eUROGEN has supported the development of a new flyer to help others find their voice.

📖 Read their story: https://eurogen-ern.eu/patients-take-the-stage-sharing-stories-of-empowerment-and-advocacy/

📽️ Watch the presentation: https://youtu.be/bl6vyLXXUg4?si=JGDwRvwjwrKMTUlO

European Commission Jardin Joint Action EURORDIS-Rare Diseases Europe

On Saturday, 28 June 2025, a group of inspiring adult patients living with VACTERL Association took to the stage at the VACTERL Association Support Group’s annual Get-Together in Birmingham, UK to share their journeys in a powerful presentation titled “Patient Empowerment: A Journey from Isolati...

23/07/2025

🚨 TONIGHT! Don’t miss our next ERN eUROGEN webinar! “State of the Art: Management of Anterior Urethral Strictures in 2025”

👨‍⚕️ Presented by Malte Vetterlein & Tim Ludwig

🗓 Wednesday 23 July @ 18:00 CEST

✅ Register now: https://bit.ly/eUROGEN23Jul25


European Commission Jardin Joint Action European Association of Urology International Continence Society (ICS)

21/07/2025

📢 Don’t miss our next ERN eUROGEN webinar! “State of the Art: Management of Anterior Urethral Strictures in 2025”

👨‍⚕️ Presented by Malte Vetterlein & Tim Ludwig

🗓 Wednesday 23 July @ 18:00 CEST

✅ Register now: https://bit.ly/eUROGEN23Jul25


European Commission Jardin Joint Action European Association of Urology International Continence Society (ICS)

18/07/2025

⚙️🔍 Missed our recent webinar?

“Minimally invasive surgical techniques to prevent residual fistula in male imperforate a**s and recto-urethral fistula” by Prof. Dr. Atsuyuki Yamataka is now available to watch on YouTube!

🎥 Watch here: https://youtu.be/VqLz7Ofanwo

📩 Stay updated – subscribe to our newsletter: https://bit.ly/4j7MaHU


European Commission Jardin Joint Action ESPU - European Society for Paediatric Urology ESPU-Nurses AIMAR - Associazione Italiana Malformazioni Anorettali

This webinar was held on 16 July with the title: Minimally invasive surgical techniques to prevent residual fistula in male imperforate a**s and recto-urethr...

16/07/2025

🚨 TONIGHT! 📢 Join us for a webinar from ERN eUROGEN & ERN ERNICA, supported by EUPSA and ARM-Net:

🩺 Minimally Invasive Surgery in Anorectal Malformation: State of the Art

📅 Wednesday 16 July | 🕕 18:00 CEST

🎙️ Prof. Atsuyuki Yamataka will explore MIS techniques to prevent residual fistulas in male imperforate a**s and recto-urethral fistula

👉 Register here: https://bit.ly/eUROGEN16Jul25

European Commission Jardin Joint Action ESPU - European Society for Paediatric Urology ESPU-Nurses AIMAR - Associazione Italiana Malformazioni Anorettali

14/07/2025

📢 Join us for a webinar from ERN eUROGEN & ERN ERNICA, supported by EUPSA and ARM-Net:

🩺 Minimally Invasive Surgery in Anorectal Malformation: State of the Art

📅 Wednesday 16 July | 🕕 18:00 CEST

🎙️ Prof. Atsuyuki Yamataka will explore MIS techniques to prevent residual fistulas in male imperforate a**s and recto-urethral fistula

👉 Register here: https://bit.ly/eUROGEN16Jul25

European Commission Jardin Joint Action ESPU - European Society for Paediatric Urology ESPU-Nurses AIMAR - Associazione Italiana Malformazioni Anorettali