ERN eUROGEN

20/05/2026

🚨 TONIGHT! ERN eUROGEN Webinar Series: Join us for our upcoming webinar on *Female Urethral Strictures*, presented by Dr. Beatriz Martinez Gonzalez and Dr. Adela Navarro Martínez from Spain.

🗓️ Wednesday, 20 May 2026
⏰ 18:00–19:00 CEST
✅ Register now: https://tinyurl.com/eurogen20May26

This webinar will explore the challenges of diagnosing and managing female urethral strictures, including conservative treatments, urethroplasty techniques, and follow-up strategies. The session will also discuss strictures in trans-female patients within reconstructive urology practice.

🎓 This weEuropean CommissionorJardin Joint Actionon for participants attending the live session and completing the post-session survey within two weeks.

European Commission Jardin Joint Action

18/05/2026

📢 ERN eUROGEN Webinar Series: Join us for our upcoming webinar on *Female Urethral Strictures*, presented by Dr. Beatriz Martinez Gonzalez and Dr. Adela Navarro Martínez from Spain.

🗓️ Wednesday, 20 May 2026
⏰ 18:00–19:00 CEST
✅ Register now: https://tinyurl.com/eurogen20May26

This webinar will explore the challenges of diagnosing and managing female urethral strictures, including conservative treatments, urethroplasty techniques, and follow-up strategies. The session will also discuss strictures in trans-female patients within reconstructive urology practice.

🎓 This webinar is European Commission aJardin Joint Actionrticipants attending the live session and completing the post-session survey within two weeks.

European Commission Jardin Joint Action

13/05/2026

📢 ERN eUROGEN Webinar Series: Join us for our upcoming webinar on *Female Urethral Strictures*, presented by Dr. Beatriz Martinez Gonzalez and Dr. Adela Navarro Martínez from Spain.

🗓️ Wednesday, 20 May 2026
⏰ 18:00–19:00 CEST
✅ Register now: https://tinyurl.com/eurogen20May26

This webinar will explore the challenges of diagnosing and managing female urethral strictures, including conservative treatments, urethroplasty techniques, and follow-up strategies. The session will also discuss strictures in trans-female patients within reconstructive urology practice.

🎓 This webinar is eligible for EACCME accreditation for participants attending the live session and completing the post-session survey within two weeks.

European Commission Jardin Joint Action

06/05/2026

🚨 TONIGHT! ERN eUROGEN Webinar Series: Join us for our upcoming webinar on "Lichen Sclerosus in Men", presented by Prof. Dr. med. Oliver Muensterer (LMU Medical Center, Munich, Germany).

🗓️ Wednesday, 6 May 2026
⏰ 18:00–19:00 CEST
✅ Register now: https://tinyurl.com/eurogen6May26

The webinar will review the disease burden and impact of circumcision on men with lichen sclerosus, focusing on sexual quality of life, therapeutic strategies, and clinical implications.

This webinar is eligible for EACCME accreditation for participants who attend the live session and complete the post-session survey within two weeks.

European Commission Jardin Joint Action

04/05/2026

📢 ERN eUROGEN Webinar Series: Join us for our upcoming webinar on "Lichen Sclerosus in Men", presented by Prof. Dr. med. Oliver Muensterer (LMU Medical Center, Munich, Germany).

🗓️ Wednesday, 6 May 2026
⏰ 18:00–19:00 CEST
✅ Register now: https://tinyurl.com/eurogen6May26

The webinar will review the disease burden and impact of circumcision on men with lichen sclerosus, focusing on sexual quality of life, therapeutic strategies, and clinical implications.

This webinar is eligible for EACCME accreditation for participants who attend the live session and complete the post-session survey within two weeks.

European Commission Jardin Joint Action

23/04/2026

✨ European Reference Networks: A flagship initiative for rare diseases in Europe!

A new publication highlights how European Reference Networks are improving care for people living with rare and complex conditions through cross-border collaboration.

By connecting experts across Europe, ERNs ensure patients benefit from shared knowledge and expertise—no matter where they live.

🔗 Read more: https://eurogen-ern.eu/new-publication-celebrates-erns-as-flagship-initiative/

European Commission Jardin Joint Action

A comprehensive review published in the Orphanet Journal of Rare Diseases documents the evolution and impact of the European Reference Networks (ERNs) since their establishment in 2017. The paper, titled “European Reference Networks – a flagship activity of the EU in the field of rare and comple...

26/03/2026

EAU26 in London was a brilliant opportunity to showcase ERN eUROGEN's work — with our Thematic Session, European Patient Advocacy Group (ePAG) presentations, roundtables, and an Information Desk in the Patient Advocacy Plaza, all bringing rare disease expertise to the heart of the urology community.

Congratulations also to Rob Cornes, Orchid - Fighting Male Cancer Nurse and member of our ePAG, who was awarded the EAU Patient Advocacy Medal of Excellence at the Opening Ceremony 🏅

We are deeply grateful to the European Association of Urology, our Supporting Partner, and to the EAU Patient Office and EAU Policy Office for their collaboration in championing patients' voices across the programme.

Read the full report: https://eurogen-ern.eu/ern-eurogen-at-eau26-bringing-rare-disease-expertise-to-london/


European Commission Jardin Joint Action European Association of Urology Nurses (EAUN) Aici - Associazione Italiana Cistite Interstiziale AIMAR - Associazione Italiana Malformazioni Anorettali Max's Trust

The annual European Association of Urology (EAU) congress held this year in London from 13 to 16 March provided ERN eUROGEN with an outstanding platform to share our work, connect with the wider urology community, and demonstrate the vital role that European Reference Networks play in improving care...

24/03/2026

ERN eUROGEN supports the Declaration on a European Innovation and Care Ecosystem for Rare and Complex Diseases, launched at the first High-Level Meeting on Rare and Complex Diseases (HLM Rare) in December 2025.

❤️ Your endorsement truly matters — for the future of the ERNs and for everyone living with a rare or complex condition.

By signing, you will help:

✅ Advance a comprehensive EU Action Plan on Rare Diseases
✅ Ensure long-term sustainability and recognition of ERNs
✅ Strengthen our collective voice to influence EU policy and funding

✍️ Sign the Declaration here: https://wppsign.eu2.adobesign.com/public/esignWidget?wid=CBFCIBAA3AAABLblqZhAEhyHEzWoWt7eIpkFocvpSdGEFDbkSFlsZdA8bwNgHOfeWCctOQ0KeRt3dGqWXz50*

Please indicate ERN eUROGEN as the ERN you collaborate with.

🔁 Please share this link with colleagues who contribute to, or benefit from, the work of ERNs such as ERN eUROGEN.

20/03/2026

🌍 Today is World Anorectal Malformation (ARM) Day — and for the first time, 14 countries are officially recognising this global milestone together.

ERN eUROGEN joins the worldwide ARM community in marking this important day. We know that behind every diagnosis is a patient and family navigating complex, lifelong care — and that access to reliable information makes a real difference.

That's why we want to make sure our ARM resources reach as many people as possible:

🔹 Combined Clinical Practice Guideline – the full care pathway in one consolidated document
🔹 Patient Journey – in full-text, brochure, and audio formats
🔹 Sexual Support Website – in collaboration with ERNICA, in English and Dutch

👉 Download the Guideline: https://eurogen-ern.eu/our-work/guidelines/
👉 Explore the Patient Information: https://eurogen-ern.eu/our-work/patient-information/
👉 Visit: https://sexualsupport.eu

Today, we raise our voices for everyone affected by ARM. Together, we are stronger. 💙

European Commission Jardin Joint Action ESPU - European Society for Paediatric Urology ESPU-Nurses AIMAR - Associazione Italiana Malformazioni Anorettali Max's Trust

15/03/2026

This afternoon at — join us for the ERN eUROGEN Thematic Session: "Update on Rare & Complex Urology."

📅 Sunday 15 March | 15:30–17:00
📍 Blue Area, Victoria 6

Hear from clinicians across our three workstreams, plus presentations from our European Patient Advocacy Group (ePAG) on pe**le cancer and anorectal malformation. Chaired by Prof. Peter Mulders and Michelle Battye.

All congress attendees are welcome — see you there!

European Commission Jardin Joint Action European Association of Urology European Association of Urology Nurses (EAUN)