19/03/2026
If you or someone you know has hypermobile Ehlers-Danlos syndrome you might like to take part in the following study
Another awesome research opportunity for those with hEDS / HSD!
We are conducting a study at the University of Auckland investigating the relationship between dietary intake, gastrointestinal symptoms, and overall symptom presentation in people diagnosed with hypermobile Ehlers-Danlos Syndrome (hEDS) / hypermobility spectrum disorder (HSD).
People with hEDS/HSD commonly experience gastrointestinal symptoms and face challenges with dietary intake, which can impact overall health and wellbeing.
The aim of this research is to identify relationships between diet and symptom presentation and severity. This will inform further research and enable the development of national and international nutrition care guidelines for people with hEDS/HSD.
Those who complete the study will be provided with a $40 voucher as thank you for sharing your time and experiences.
If you are interested in taking part in our research, please fill out the expression of interest form by following the link below. https://redcap.fmhs.auckland.ac.nz/surveys/?s=39AYFA9RC8HY4YMT
Please note that completion of this form does not guarantee your enrolment in the study, as you must meet our eligibility criteria. To be eligible you must be:
o Aged over 16 years old
o Diagnosed with hEDS/HSD by a healthcare professional
o Not pregnant or breastfeeding
o Not relying on artificial nutrition for ALL nutritional needs. This includes enteral feeding through a tube such as nasogastric (NG) tube, PEG tube, nasojejunal (NJ) tube, or parenteral nutrition (TPN). You would still be eligible if you use artificial nutrition combined with oral intake of food / supplements.
Please feel free to contact us with any questions you may have.
Thank you,
Aeson Chappell, Student Dietitian / Researcher. mcha769@aucklanduni.ac.nz
Dr Nicola Gilles, Lead Researcher. n.gillies@auckland.ac.nz