Epilepsy New Zealand

31/05/2026

See The Person 👨‍👨‍👦‍👦👨‍👦

Epilepsy is more than just a medical condition; it's a part of life that can touch not only the person living with it but also their family, friends, and partners. It's important to remember that while epilepsy may bring challenges, it does not define the person you love. They are still the same wonderful individual they were before the diagnosis, with dreams, talents, and a unique personality.

28/05/2026

When a child is diagnosed with epilepsy, the effects can extend beyond the immediate family, affecting friends and caregivers as well. If you're considering hiring a babysitter, they must be well-informed and understand how to respond during a seizure.
The plan doesn't have to be complex; instead, consider these simple bullet points:
* Outline care procedures
*Specify symptoms to watch for
*Provide simple, clear instructions on what to do during a seizure.

28/05/2026

A Thursday Thank you to AK Franks Charitable Trust.

Digital technology is more important that ever for our educators, using it for communication, presentations and record keeping. The AK Franks Charitable Trust, managed by Perpetual Guardian has recently contributed to the purchase of a new laptop for Kore, supporting people and whanau in Northland.

Keeping our equipment up to date is important and support from philanthropic funds like this one make it possible.

Thank you.

27/05/2026

This week, our posts are particularly significant for those supporting individuals facing a diagnosis. Doctors frequently find video documentation of 'events' invaluable for understanding the diagnosis and identifying the 'type' of event. However, it is essential to make sure that the video you provide is both relevant and clear.

26/05/2026

WE NEED YOU

We are looking for participants in our See The Person Campaign. Please go to this link to record your video (this is open to friends, families, caregivers or those people who know someone with epilepsy)
https://epilepsy.org.nz/you-can-help/please-support-our-current-appeal/see-the-person/

To help tell these stories, we’ll ask two short reflective questions:

What was one misconception you had about epilepsy before meeting someone who lives with it?
How has knowing someone with epilepsy changed your perspective?

These questions are designed to encourage honest reflection and show how understanding of epilepsy can change through real-life experiences and relationships.

26/05/2026

WE NEED YOUR HELP

LAST CALL For participants in SEE THE PERSON -Can you help us highlight Epilepsy through the role of the caregiver? We would love you to be part of this.

Our See the Person campaign is aimed at caregivers, partners, friends, or colleagues of someone with epilepsy.
Please go to our website link below to read the two questions and start recording your responses to the questions.
Click on the link to get started.

See the Person • Epilepsy New Zealand https://share.google/K1ExiG50bW9FCL7x8

25/05/2026

Next week, we will launch our "See the Person" Campaign, which will explore the effects of epilepsy through the eyes of caregivers, partners, and friends. This week, our posts may particularly resonate with caregivers and loved ones of individuals who have recently been diagnosed with epilepsy.

24/05/2026

What's Been Going On In Whangarei?

We were pleased to attend the TLC4U2 All About Accessibility Expo on 7th May at the Kensington Stadium, Whangarei.
It was a great community event focused on accessibility, inclusion, and connecting people with support services.

Thank you to everyone who visited our Northland Educator, Reokore who said it was wonderful to connect and share information about epilepsy and the support available in the region.

A special thank you to for supporting the event as a photographer.

21/05/2026

LAST CALL For participants in SEE THE PERSON 🔊

Epilepsy New Zealand is proud to bring back our annual See the Person video campaign in June - and we'd love for you to be part of it. This is aimed at caregivers, partners, friends, or colleagues of someone with epilepsy.
Please go to our website link below to read the two questions and start recording your responses to the questions.
https://epilepsy.org.nz/you-can-help/please-support-our-current-appeal/see-the-person/

21/05/2026

A Thursday Thank You to the Otago Community Trust.

For 35 years the OCT has been helping others to build vibrant and resilient communities, supporting people, heritage and environment.

From Mount Aspiring to Cathedral Cove, the trust helps organisations like ours do deliver to their communities.

Thank you.

We are a community-owned charitable trust that provides grants to assist community projects that make a positive contribution to Otago communities.