28/07/2025
Do you know what one of my pet peeve words is?
It's the term resilience
You want to know why? Well the term can often be weaponised against those with hidden disabilities.
Last night I watch a clip, it was talking about how often those working with people who can be come disregulated focus on the wrong thing at at the height of disregulation. The disregulated kid, who is pushed to the edge wants a chocolate bar, and instead of providing for the need, we push for the strategy that we have been taught will work. This ends up frustrating the kid and pushing the kid / or adult further towards the ends of disregulation.
When we go for the strategy and not for supportive regulation we are doing harm.
At times I have just had to just sit with the client, and just be, listen and guide and say its going to be ok, get them a drink of water, or a weighted blanket, or some food.
This may seem like top level stuff, but the need at that moment, at that very moment, where the person is is the most important - it is "the intervention"
Yesterday I was having a hard day, stuff in my internal world, and my external world were not going well. I was disregulated and it was on show. In the way I responded to those closest, and in small aspects of forgetting things. I was not been resilient.
I had to do the small things to keep my head screwed on so I could turn up for people - it was tough.
And that is the thing, those of us with hidden disabilities - we are managing a whole lot of internal stuff. If I'm tired, and there is a loud noise, it may lead to me been frozen for 10 to 15 minutes - it may be made worse if there is no where to go for me to calm myself and nervous system down.
Whenever I think of people who are disregulated, one of the most helpful things is having the things that will help them back down from the tough spot, for them it may be splashing their face, it maybe a coffee, it maybe calming music, it maybe a smell. Everyone if different.
The best thing we can do is go - hey I see this is hard, what do you need in this moment. IF they can't respond - just keep space and wait, be patient, take time. Likely hood is they are overstimulated, and need some time to get to what's causing the issue. Listen and help where you can
Picture below of me at my office, feeling ok. Happy and ready for the day