15/11/2025
💜 World Sanfilipo Awareness Day is on November 16th, which is about spreading awareness and sparking conversations globally about Sanfilippo Syndrome, a disease few have heard of.
💜 This special day of Awareness is in honour of the children around the world living with Sanfilippo Syndrome today, and those who have passed away. It also honours the families of these precious children.
💜 Sanfilippo Syndrome is a rapidly degenerative and fatal disease in children causing severe dementia, currently with no cure and no treatment options. Learn more about Sanfilippo Syndrome, its causes, its symptoms, current research, and how families and foundations are helping fund research for a cure:
https://curesanfilippofoundation.org/
💜 Raising awareness of Sanfilipo is a cause close to our hearts at Ranolf Medical Centre as one of our close neighbour's is directly affected by this condition.
Ollie Schimanski lives with this debilitating rare condition, similar to childhood dementia. His family shares their positive approach dealing with one of life’s hardest challenges in this video:
https://youtu.be/IUdEW2C78oc?si=sRLWBVvDBPgaaZmG
💜 We will have a donation box in reception for the week of Monday 17th November and will pass any donations onto the Sanfilipo Foundation. If you would like to support the cause, you can either pop in and drop of your donation to us or donate directly online:
https://give.curesanfilippofoundation.org/campaign/653569/donate