Autism

Autism A place for Autistics

23/07/2024

With a focus on the autistic experience, our contributors (see below) consider this question and its implications for how professionals and services can adapt.

This is a post worth spending time with, as parents and as educators, but also as employers, living partners, and friend...
13/12/2021

This is a post worth spending time with, as parents and as educators, but also as employers, living partners, and friends.

- Why? It is about preschoolers!

Well because it is not actually about preschoolers, it is about humans and about how humans engage with each other. We ALL tend to resort to things like projection, mirroring our feelings onto others, assigning motive to others when that motive is really ours, resort to punishment of others instead of engagement and understanding... why? Why indeed! because it is 'too hard' or because we 'don't have time for this' and so on.

Ultimately this is about communication, engagement, interaction with our fellow members of a highly socially-oriented species. Our entire species' suite of strategies for success (by which I mean survival, safety, comfort, access to resources, self-fulfilment, feeling seen etc.) are based around co-operation and shared experience, support and compassion. This is why empathy is the fuel that drives the success of human societies, because it is the magic glue that binds them to a shared purpose: mutual achievement of success (defined as above).

Sadly, there are forces in our societies that are just selfish. Often these are driven by forces beyond the individual's control (sometimes you need to be 'selfish' to meet your own needs, and reflect on how hard it is to find a non-negative term for this... our very language frames what really is a type of self-care in a way that is negative)... but there are also forces that are based on aberrant readings of the world, that generate what we can call 'real selfishness' and while I could talk at length about those, this is not the place. Ultimately, we are all familiar with how they impact on us, wherever they arise - schedules, timetables, deadlines, money costs, energy demands, resource allocations, physical capabilities, educational limitations, geographic distance and so on.

So, I would ask people to read this at leisure, not as a task to hammer through in search of snappy phrases or key points. If it was meant to deliver bullet points, it would have been written in bullet points.

Dwell on the shift in perspective Greg is using here, and consider how maybe you could apply similar approaches in your own life, with those around you, who work for you, who are in your team or serve you in customer-facing jobs, on public transport, in your home, in your workplace... and yes for sure in the classroom.

Especially the classroom, and especially in pre-school classrooms... because these are where tiny humans learn things. Everything they experience is learning about the world and how it works, and if we are to generate real change to a more inclusive, compassionate and less harmful society, we really need to stop doing harm up front, teaching little humans that coercion and punishment, impatience and 'I'm too busy' are legitimate motivations for how we engage with those around us.

Just something to consider.

~ Stivvanos Maqqi Amolngatti Au

Turning the Corner from Behavior Management to Connection and Collaboration.

A community member shared a social media post with me from a pre-school teacher. This teacher was seeking advice from colleagues about “behavior management”.

The teacher wrote:

“I teach 4 and 5 year olds. I’m struggling with consequences for poor choices. I’m at a loss about what else to do. I’ve tried the following:

Time out
Daily Color behavior chart that goes home
Lonely Lunch
Walking instead of playing at recess
Trips to the office

They don’t care about the consequences and their behaviors continue.

When I taught 3rd grade, I was an expert at classroom management. Not in Pre-K for the most part.

Please share some of your ideas. Thank you!”

I needed a trigger warning before reading that for the first time.

My first thought was that this teacher needs a lot of support. Because I still work in the schools, I’m also assuming that this teacher is overwhelmed, or tired, or both, or more, and is reaching out to their colleagues for help. The post was upsetting to read, but I'm glad they're asking for help!

Now let’s dissect the post a little bit.

This teacher appears to be shopping for new ways to punish their pre-schoolers. One can interpret what the teacher wrote as: I’ve tried every attempt to punish them, isolate them, deprive them of things they like, scare them and make them feel sad, but nothing is working!

Yes, those tactics don’t work. A good rule of thumb is that you can’t make someone behave better by making them feel worse.

As I was reading the list, it became clear that humanity had left the behavior management brainstorming process, all in the name of compliance.

Lonely Lunch? Two L words to make the punishment sound “cute”?

I was sad reading the list. Imagine the 4 year old who was being told by the teacher they love that they have to eat lunch alone. Imagine the devastating impact of hearing that at such a young age….or at ANY age! Rejection and isolation are not good behavior management strategies.

This teacher was struggling to find “consequences” for “poor choices”. This is where a lens change is essential for the health of the teacher/student relationship and the feeling of safety in school.

Calling behaviors poor choices is assuming that the 4 year old student did something the teacher didn’t like ON PURPOSE! It assumes that the 4 year old COULD HAVE behaved well, but made a conscious decision to do something wrong. Developmentally speaking, that's really questionable.

As I’ve mentioned in previous posts and illustrated in an infographic, the book The Whole Brain Child (Siegel/Bryson) talks about the “upstairs and downstairs brain”. Making ‘choices’ is an upstairs brain skill. When 3 and 4 year olds have big behaviors or big emotional responses, that’s coming from their “downstairs”, reactive brain. The behavior is either a result of stress, overwhelm, dysregulation, or a sensory processing challenge. They’re not ‘choosing to be bad’, they don’t have the skills at that moment to be ‘good’.

However, even if you’re CONVINCED that it was a “choice” and they need to be ‘taught a lesson’, Lonely Lunch doesn’t teach the lesson you want taught. Walking the perimeter of the playground, or putting them in timeout, doesn’t teach that lesson, either. Validating the student’s emotions, noticing they are having a hard time, finding out WHY they’re having a hard time and helping them find a solution so they can do better next time- THAT’S the lesson we need to teach!

So, how does this teacher turn the corner?

First, I strongly recommend (and so does the literature) stopping Lonely Lunches, Time Outs and ‘taking away’ anything fun. Let the pre-schoolers play at recess even if they didn’t meet your expectations. Throw out your behavior charts and limit delegating the punishments to “the office”. Those tactics are not neuro-developmentally or trauma-informed, not effective in making long term changes in behavior and most importantly, they’re not nice!

So, tell me what to do then!

Let’s assume it’s a classroom of 20 kids. Chaos, right? If all the threats and bribes aren’t in place, the kids will be hanging from the ceiling! The teacher will lose all control and the classroom will be run by a gaggle of insubordinate, wild preschoolers!

Or, maybe not.

There are many unknown variables in the teacher's post (environment, support staff, etc), but in general, in a traditional ‘mainstream” classroom, not all of the 20 kids will need additional support all of the time. The teacher (or support staff if present) can focus on those few kids who need extra support.

Action item: Get specific.

To identify how to support the student, we first have to withhold judgment and identify the specific challenge. It doesn’t help to say ‘he’s always all over the place’ or ‘she never listens’ or ‘he’s just seeking attention’. Get specific. He’s having difficulty sitting on the carpet during morning meeting. She’s having difficulty waiting to be called on during reading. When you get specific, you’ll have a better chance of solving the problem.

Action item: Get input from the kids.

While we support using the language of Ross Greene’s Collaborative and Proactive Solutions Model, that model does take time to learn, practice and master. The kids are having difficulty now. The CPS Model is also best used proactively, not in the heat of the moment. That being said, the mindset and language of the CPS model is extremely helpful in solving problems that are preventing a student, or students, from meeting expectations. Greene’s book “Lost At School” gives examples of what the CPS Model looks like in a classroom.

Most often, when I ask a teacher about what THE CHILD thinks would help, they respond “I’ve never asked them!”. So, ask them! As the adults, we’ve often been in an adult-imposed ‘throw everything against the wall and see what sticks’ model of intervention. We become more efficient when we collaborate with the kids and yes, pre-schoolers can be great collaborators!

Action item: STOP teaching temporarily if they’re dysregulated, because if they're dysregulated, they're not learning.

Instead of imposing where or how they sit, ask them where or how they think they should sit in order to do their best listening. Ask them what makes their bodies ready to learn. If they’re getting wiggly, don’t be afraid to STOP, “notice” they're having a hard time again, collaborate and resume. Same for elementary students, or middle school students, or anyone!

Action Item: Check-ins.

Since “consequences” are reactive, working proactively can prevent the use of punishments. Before you start the day, or the lesson, or the morning meeting, check in with your students. Are they regulated and ready to learn? Do they need more input? Less input? No input? What will help them? What do they need? They don’t need Lonely Lunch, and they certainly can use recess to meet their regulation needs.

Let's fill the comment section with other strategies to help teachers move away from "behavior management" strategies.

Turning the corner means stop seeing “behaviors” as choices. See them as communication that the child is stuck, and they need your help.

In closing, there is no blame or shame here. The stress, the overwhelm and the exhaustion that teachers are feeling right now is very real. Some teachers are in survival mode. Same with our kids. Let’s all be kind to ourselves, AND to our kids. Before you hand out that consequence, ask yourself; How will this make the child feel? Humans are wired for relationships. Let’s not rely on punishments to get our expectations met. Let’s use our relationship to find solutions where everyone feels heard. When we do, problems get solved, relationships strengthen, and it just feels better.

Greg Santucci, Occupational Therapist

11/07/2020

[ Image Description for the visually impaired: A development of a wall art image by Steve West sees a young woman in leggings featuring a pro-autistic infinity spectrum logo, leaning on a wall with one hand, the other on her hip, and vomiting forth puzzle piece logos for Autism Speaks (a leading anti-autistic hate group), Filicide (the oft apologised-for slaughter of autistic children by parents), ABA (a form of torture committed against autistics to appallingly reprogram them as somebody's 'normal' fake), EIBI and PBS (camouflaged versions of ABA), MMS (commercial bleach used to burn autistic kiddies), and Autism Mom™ (the unacceptable appropriation of autistic's identity by domineering non-autistic mothers) ]

https://www.facebook.com/groups/autisminclusivity/

26/04/2018

Today, the Centers for Disease Control released the Autism and Developmental Disabilities Monitoring (ADDM) Network report, which estimates the prevalence of autism in certain areas. The results indicate that better recognition of autism, and an encouraging reduction of racial and gender disparities...

AUTISTICS NOW 1 IN 40The CDC has broadcasted the National Health Center for Health Statistics latest (2016) prevalence r...
15/12/2017

AUTISTICS NOW 1 IN 40

The CDC has broadcasted the National Health Center for Health Statistics latest (2016) prevalence rate for autism.

Using information gathered from the National Health Information Survey (NHIS), they reported a 2016 rate of 2.47%, or 1 in 40 American children/adolescents.

This figure now replaces the widely used 1 in 68 statistic announced by the CDC back in 2014.

As you can see in the associated graph, autism rates are growing faster than ever, about as fast as knowledge regarding autism's existence is also growing.

FRESH TAKE-AWAY STATISTICS

1 in 40 people are Autistic (was 1 in 68)

1 in 28 males are Autistic (was 1 in 42)
1 in 80 females are Autistic (was 1 in 189)
Males now only 3 times more likely to be diagnosed Autistic as females (was 1:4.5)

Estimated Autistic World Population: 188,000,000 (equal to Japan + Italy combined)

WHAT IS AUTISM?

Autism is a natural human logical/neurological variance typified by markedly diverse preferences, deep and/or intense focus, alternative learning and sensing, alternative paths to 'milestones', specialist interests and passions, often attended upon by one or more of a range of co-occurring health conditions such as dyspraxia, sensory processing challenges, epilepsy, late or precocious speech, etc.

WHAT'S BEHIND THIS RAPID GROWTH?

Factors affecting the statistic include
- less backwardness in states like Alabama where diagnosis remains less common,
- still earlier diagnosis in states such as a more educated New Jersey, and
- an increasing use of less-biased diagnostic tools to gather in females who are seriously disadvantaged by decades of damaging past male-oriented presumptions.

Nevertheless, the increase will take some by surprise at a time when
- the DMS5's owners have been so active in encouraging the dumping of tens of thousands of Autistics into their made-up 'junk science' category called 'Social Communication Disorder', created for industry-political and APA income reasons,
- at a time when an increasing number of diagnosticians disappoint parents with an appalling unwillingness to proceed to assessment and diagnosis if the candidate does not present with what they believe to be obviously complex needs.

Leading Autistic statisticians - perhaps best placed to know - believe the real rate will eventually settle at a minimum of "2 per classroom", a minimum of 6-8%, once social acceptance and a proper process for discovery are in place and generalised. Many Autistic commentators can remember at least one other child similar in nature to themselves from their school days - often their friend.

REFERENCES:

CDC Announcement: www.cdc.gov/nchs/products/databriefs/db291.htm
Previous CDC Rates: www.cdc.gov/media/releases/2014/p0327-autism-spectrum-disorder.html
Reference PDF: www.cdc.gov/nchs/data/databriefs/db291.pdf

DISCUSSION:
www.facebook.com/groups/autisticsworldwide/
Compiler: ʎllɐǝɹƃ uɥoɾ
Hashtags:

11/07/2017

SETTLED AT LAST - AUTISM IS INHERITED GENETICS

The latest meta-analysis (combined analysis of other studies) shows that - like eye colour - autism is all genetic in origin. 98%* of identical twins where one is autistic, so the other.

Not the confusing 90% or 60% of past twins studies**, as skewed by non-identical twin inclusions and weightings. A non-identical twin shares only as much genetic information as any other single-birth sibling (somewhere around 50% likely). No surprise really, as identical twins share twice as much genetic information in common as non-identical twins and single-birth siblings do.

*2% short of 100%? That is a minimal margin of error for current M-CHAT and CAST tests, because at one upper extreme of such testing, a natural 'close call' situation arises, the sensitivity of those tests being subject to constant improvement. 2% might also partly be accounted for by the fact identical twins are not quite as identical as many in society might traditionally presume, for a variety of interesting reasons, and in a variety of ways. We're calling it 100%.

**The errors in those previous studies were many, but the main one was the spoiling of data-impacts by unnecessarily mixing-in non-identical twin data - as a result of being fixated on dead-end searches for a motley group of pet proposed environmental factors now explainable by other impacts.

~ ʎllɐǝɹƃ uɥoɾ

Source:
www.facebook.com/autisticnewsfeed

Reference:
http://onlinelibrary.wiley.com/doi/10.1111/jcpp.12499/abstract

Discussion:
www.facebook.com/groups/autisticsworldwide

Tags:

27/03/2017

An introduction to autism that aims to raise awareness among young non-autistic audiences, to stimulate understanding and tolerance in future generations. It...

Parents and others who feel BURNED by the message, that's the wise surgeon's cauterizer seeking to stem the flow of your...
14/12/2016

Parents and others who feel BURNED by the message, that's the wise surgeon's cauterizer seeking to stem the flow of your precious blood and our precious life-blood also... right now you can choose to abandon all curist, eugenic, exterminating organisations. NOW. We want to live, first class lives, NOT DIE SO EARLY, not be mistakes that you or another failed to erase because the technology was not ready yet. You can never be our ally, or your child's, or your patients, while this has not been done. Thoroughly done. Clean break.

The future of autism and autistics lies COMPLETELY elsewhere!
There are no solutions in such organisations at all.
They ARE the problem afflicting the whole autism/autistic community.
They ARE the obstacle to awareness and acceptance.
They ARE why such abysmal progress has been made in understanding autistics, assisting autistics, helping autistics to have free from coercion, aversives, shocks, depression, maiming, abuse, su***de, unrecognition, anxiety, waste, attack, murder.

Inside you is at least a small voice speaking real hope - for autistics to experience equality from you at last, no matter how different they remain, no matter what form of diversity they represent, to progress the lives of autistics by gentle loving means that respects them equal to all other children and adults elsewhere. It may not seem an easy path, but it is the right one, it works for all in the long-term.

I beg you. No More 'Broken' Autistics.

~ pǝǝɟ sʍǝu ɔıʇsıʇnɐ

This is why we want ACCEPTANCE not awareness.

"how would you feel if your parents were raising money to research how to make sure nobody ever has a child like you?"

~ How Autistic Feels, twitter.com/autisticfeels

06/11/2016

The Human Rights Commission welcomes the commitment to ban seclusion in schools but adds that more changes still need to be made.

Address

Upper Hutt

Opening Hours

8am - 4am

Telephone

6449707703

Alerts

Be the first to know and let us send you an email when Autism posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Share

Share on Facebook Share on Twitter Share on LinkedIn
Share on Pinterest Share on Reddit Share via Email
Share on WhatsApp Share on Instagram Share on Telegram