Brave Baby Sabrina Alexis- Tyrosinemia

Brave Baby Sabrina Alexis- Tyrosinemia Sabrina is now 4 years old and will turn 5 this April 2025. She was diagnosed with Tyrosinemia Type 1

Hello! 👋 We had our yearly neurodevelopmental check-up today at Sotto Hospital. Every visit reminds me how important ear...
27/11/2025

Hello! 👋 We had our yearly neurodevelopmental check-up today at Sotto Hospital. Every visit reminds me how important early guidance and support are for her growth. Grateful for her doctors and for every step forward, no matter how small. One day at a time, always choosing what’s best for my Sabby. 🥹🙏

Salamat sa Ginoo bisan pa man sa kadaghan pagsulay, wala jud Niya pasagdii si Sab. ❤️🙏🙌

Thanks Maam Lucille! ❤️ Always jud naga-support.



15/10/2025

I got over 10 reactions on one of my posts last week! Thanks everyone for your support! 🎉

Thanks Maam Lucille and Dr. Boligao 😍 And yes it’s true that Sabby is a good girl now since she doesn’t cry anymore. The...
15/10/2025

Thanks Maam Lucille and Dr. Boligao 😍 And yes it’s true that Sabby is a good girl now since she doesn’t cry anymore. They’re amazed on how prayers worked for Sab. Even Sab would initiate the prayover before the blood extraction. Praise God! Salamat Ginoong Dios sa panalangin kanunay. 🥹🙏

07/10/2025

Yes, dili na lisud ikuha ug dugo sa iyaha. She will even instruct the medtech to do it quick. One powerful revelation is she knows that Jesus is helping her get through it. She now asks me to pray with her while magkuha dugo sa iyaha. Even for just a little scratch, she will always ask me to pray over her.

Salamat Jesus! You have a 5 year old kid believer. ❤️🙏

Just letting everyone know that Sabrina is safe after the strong earthquake that hit Northern Cebu last September 30. 🙏W...
06/10/2025

Just letting everyone know that Sabrina is safe after the strong earthquake that hit Northern Cebu last September 30. 🙏

We’re here at Perpetual Hospital today for her repeat lab tests since her Alkaline Phosphatase and Phosphorus levels were elevated last month. She’s been having knee pain possibly related to the high phosphorus levels.

Thank you to everyone who sent messages and words of concern and special thanks to Tita Dianne for helping us with the tests today. ❤️

It’s been tough with the ongoing aftershocks, and we’ve mostly been staying outside the house. To be honest, we’re scared again especially the kids, at the thought of going back home to Daanbantayan.

Still, we’re holding on to faith that God is protecting us through it all. 🙏 Salamat Ginoo wa nimo pasagdii! You are our personal savior. Amen

Late upload ☺️ Repeat newborn screening done again for this quarter. 😍 Thanks Doc Boligao and Maam Lucille for the guida...
09/07/2025

Late upload ☺️ Repeat newborn screening done again for this quarter. 😍 Thanks Doc Boligao and Maam Lucille for the guidance. ❤️

For those wondering, yes this is required every few months.

Rare ni nga metabolic disorder, mao nga kinahanglan ug regular nga monitoring para masiguro nga maayo iyang response sa tambal ug dali ra matutokan kung naay changes.

Thankful nga naa rajud ta ani nga support ug libre nga test sa Sotto na Continuity Clinic. ❤️🙏

‼️Metabolic ni siya nga disorder ha, meaning naa sa pag-breakdown sa ginakaon ang problema. 🙂

‼️ Ang neuro ug psychological health kay normal ra gihapon sa mga naay Tyrosinemia. ☺️ Meaning, ang utok ug pamatasan kay normal. 😎

Elevated ALP and AFP. Liver Parenchymal Disease. Splenomegaly. 🥹But Lord God, I surrender everything to You. Ikaw ang la...
08/07/2025

Elevated ALP and AFP. Liver Parenchymal Disease. Splenomegaly. 🥹

But Lord God, I surrender everything to You. Ikaw ang labaw nga makagagahum sa tanan. Ikaw ang bugtong Diyos nga Amahan nga makatabang sa balatian sa akong anak. I trust in You, Jesus. Heal and hold us. 🙏

Philippians 4:6 KJV

“Be careful for nothing; but in every thing by prayer and supplication with thanksgiving let your requests be made known unto God.”

Done with flu shot today. 💉 Mama is very proud of Sabby. Wala kaayo nihilak 🤗
08/07/2025

Done with flu shot today. 💉 Mama is very proud of Sabby. Wala kaayo nihilak 🤗

Today I am scheduled for labs and ultrasound. I am going to see Doc Faciol again. Salamat sa prayers always 🥹🙏
07/07/2025

Today I am scheduled for labs and ultrasound. I am going to see Doc Faciol again. Salamat sa prayers always 🥹🙏

Another round of tests after 3 months. 💪Thanks Doc Kaitlin, for the free meds and vitamins ni Sabrina 🥹❤️🙏
16/05/2025

Another round of tests after 3 months. 💪

Thanks Doc Kaitlin, for the free meds and vitamins ni Sabrina 🥹❤️🙏

Good morning friends! ❤️ I’m scheduled for a whole abdomen ultrasound and a face-to-face check-up today. Praying for goo...
16/05/2025

Good morning friends! ❤️ I’m scheduled for a whole abdomen ultrasound and a face-to-face check-up today. Praying for good results. 🙏

Good morning, friends! 🌞I’m Sabrina Alexis and I am now 5 years old! My mama has made a special sample meal plan for me ...
14/05/2025

Good morning, friends! 🌞

I’m Sabrina Alexis and I am now 5 years old! My mama has made a special sample meal plan for me to stay healthy and strong, with the right amount of protein and calories. She’s always talking to my dietitian, Sir Lawrence, and nurses like Ma’am Jane and Ma’am Lucille to make sure it’s just right for me! 💖




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