A Heart of Purpose - Journey in the life of a CHD Warrior, Baby Maxi

11/05/2025

Thank you LatestChika.com for featuring our life story.
Please like and share ❤️🙏🏻

‘A Warrior Mom, indeed’: Mom takes care of sick son while battling stage 4 breast cancer

FULL STORY in the comments section. ⬇️

30/04/2025

Maxi has his own battle, as someone diagnosed with a complex congenital heart disease, Single lung, underwent 2 Open Heart Surgeries, Cerebral Palsy, a stroke survivor and Global Developmental Delay. Purpose of the Glenn Shunt for Maxi's case: 1. Improve oxygenation 2. Reduce volume load on the heart 3. Preparation for 3rd Open Heart Surgery (Fontan) Despite the pain, look how joyful he is. Thank You Lord for sustaining my son ❤️🙏🏻

20/04/2025

Our life story ❤️ Please like and share 🙏🏻
Tiktok Account: https://www.tiktok.com/?_t=ZS-8vjsVoFrku2&_r=1

This Easter Sunday, we are reminded of life’s preciousness through the story of Nichole and her son who, even in the face of a life-threatening disease, embr...

15/04/2025

Thank you Philippine Star for sharing our story ❤️

06/01/2025

Medical Update of our Little Maxi, December 2024

3348 likes, 357 comments. “Maxi has faced a unique and painful struggle from the very start of his life. From childbirth to present. His heart, which should be the source of vitality and strength, is the center of medical challenges. From the moment of my son's diagnosis, we endure a path marked b...

10/12/2024

Let's support another Heart Warrior 🙌🏻💪❤️🙏🏻

02/11/2024

November is , and we are so grateful for the advocacy and stories of resiliency being shared by so many of you! We wanted to make sure to share this reminder because we know how sneaky intrusive thoughts can be. And if you hear one thing this month? We hope you hear that NICU mama, your child’s early delivery was not your fault. 💕

We know the ache that sits deep within you as you are left with more questions than answers. Was it my diet? Did I sleep on the wrong side? Was I too stressed? What if I would have exercised more? Did more yoga? Didn’t work so much? Didn’t go on that trip?

We know how natural it feels to blame yourself for your child’s NICU stay and how taxing it can feel to wrestle with the “whys” and the “what ifs”. We also know the grief that often comes when the answers simply aren’t there. But as you heal and grow, we hope you see your strength and feel immense amounts of pride.

Mama you are not to blame, you are to be commended. Because while your baby’s need for care in the NICU may have been out of your control, you took control of what you could and you showed up. You loved hard. You woke up day after day and faced the uncertainty that lied within those NICU doors with your mama heart on your sleeve. We are so proud of you. 💕

So whenever you need to be reminded, your sisters will proudly say that mama, your child’s early delivery was not your fault.💕   

19/04/2024

We will always support you, Cong Jam Jam Baronda
May the Lord continue to use you to be a channel of blessing to those who are in need. 🙌🏻🙏🏻❤️💯

15/04/2024

10/04/2024

Dear Parents, If your child has developmental delays, especially with speech, this account may be useful. Sharing is caring. ❤️🙌🙏

https://www.facebook.com/share/U7WEpjus4451hf6H/?mibextid=kFxxJD

1st time ko po ma-dyaryo as Teacher Kaye Talks 🥹

Medyo may artistic license lang yung ibang quoted sa akin (I did not say, "I was on my knees and crying...") but thankfully, the more crucial parts were intact.

"Now, 10 years into my practice, all my experiences have shown me that WE change, WE adapt to how we accommodate the needs of all these people. We become stronger, and celebrate those we help."

It's about changing perceptions. "It's important to talk about the full range of the spectrum," she said, noting that what most people know about autism is what they watched in the K-Drama "Extraordinary Attorney Woo."

"Not all of them are Attorney Woos and not all of them are children who can't speak, as portrayed in the media. The first thing we can do is to go on social media and see what they themselves (Autistics) are talking about. What can I do to better interact with the ones I work with? And we have to talk about Autism openly, honestly, and respectfully."

Thank you to MYLO Speech Buddy for the opportunity to talk about Speech-Language Pathology, the importance of therapy and early intervention, and of even greater importance -- what families do at home for the rest of the 99.4% of the child's time. (Yes, computed po yan kapag 1 hour a week lang ang therapy).

Thank you also to my Ninang who sent me the physical clipping 🥰 or I wouldn't even have known about this!

Happy talking, MABUHAY 🇵🇭

04/04/2024

03/04/2024

Pag-aalaga sa mga bata na may congenital heart disease (CHD) kapag mainit ang panahon.

1. Manatili sa Malamig na Parte ng Bahay
- Panatilihin ang bata sa malamig at well ventilated na lugar. Gamitin ang air conditioning o electric fan para panatilihin ang komportableng temperatura.

2. Pag-inom ng Sapat na Tubig
- Siguruhing sapat na nakakainom ang bata sa pamamagitan ng pagbibigay ng maraming tubig sa buong araw.

3. Tamang Pananamit
- Piliin ang maninipis at maluwag na damit na gawa sa breathable na tela tulad ng cotton upang hindi tumaas ang temperature ng katawan

4. Iwasan ang Paglabas Lalo na Kapag Mataas ang Araw
- Iwasan ang paglabas sa panahon ng pinakainit ng araw. Kung kinakailangan ang outdoor activity, manatili sa lugar na may lilim

5. Tamang Pag Inom ng Gamot
- Siguruhing patuloy na iniinom ng bata ang kanyang mga ini-rekomendang gamot, dahil maaaring makatulong ito sa pag adjust ng kanyang katawan sa init.

6. Mag -planong Mabuti
- Kung kailangan magbiyahe kasama ang bata sa mainit na panahon, tiyakin na may dala kang mga kailangang gamot, cooling aids (tulad ng hand-held fan o cooling towel), payong at water bottle.

7. Bantayan ang mga Sintomas

Obserbahan ang bata para sa anumang senyales ng pagtaas ng body temperature tulad ng sumusunod:

- Mas lalong pagbilis ng Paghinga o Hirap huminga
- mas lalong pagbilis ng tibok ng puso (heart rate) kumpara sa dati
- Sobrang Pagpapawis o Walang Pawis
- Sobrang Pagod / Hirap kumilos / matamlay
- Pagkahilo / Headache
- Pagsusuka o Pagtatae / pagsakit ng tiyan
- Pamamanhid/ pagsakit ng muscles lalo na sa mga binti
- Pamumula o pagiging maputla ng balat
- Pagiging iritable / confused

8. Emergency Plan
- Alamin ang mga senyales ng heat-related illnesses at anong hakbang ang dapat gawin kung magpakita ng mga sintomas ang bata. Sa mga kasong ito, pababain ang temperature ng bata sa pamamagitan ng paglipat sa malamig na lugar, pagbibigay ng malamig na tubig, pahinga, paggamit ng cold compress at pagtanggal ng sobrang damit. Kumonsulta sa inyong healthcare provider.