NBS Satellite Continuity Clinic - Tamparan District Hospital

27/02/2026

Equity for rare diseases means MORE HOPE.

Meet Dana, 17, from Batangas, Philippines. She is living with Phenylketonuria (PKU), one of the rare diseases included in the Philippine Newborn Screening panel.

Because of newborn screening, Dana was diagnosed early. With proper medical care, regular follow-ups, and support from healthcare providers and her family, she continues to grow, learn, and pursue her dreams, even sharing her music with the world.

Without early detection, PKU can lead to intellectual disability, behavioral problems, and poor growth. But through timely screening and lifelong care, children like Dana are given a chance at a healthier future.

This is why equity matters.
Equity means access to screening.
Equity means access to treatment and follow-up care.
Equity means no Filipino child is left behind.

This National Rare Disease Week, February 22–28, 2026, we stand with over 300 million people worldwide living with rare diseases.

RARE IS STRONG.
RARE IS MANY.
RARE IS PROUD.

Join us in raising awareness, sharing stories, and calling for more opportunities, more action, and more hope for the rare disease community. Be part of the movement:
✔ Wear blue denim
✔ Raise your hand for Rare
✔ Share this post
✔ Use the hashtags below:

27/02/2026

Equity for rare diseases means MORE OPPORTUNITIES than you can imagine.

Meet Prince, 12, from Pasig City. He is living with Congenital Adrenal Hyperplasia (CAH), a rare condition that, without newborn screening and confirmatory testing, could have gone undetected and become life-threatening.

Because he was screened at birth, Prince was diagnosed early and guided by medical professionals who helped him and his family understand and manage his condition. Today, he continues to grow, study, and play, with the right care and support behind him.

This is what more opportunities look like.

Opportunities to access timely diagnosis.
Opportunities to receive proper treatment and follow-up care.
Opportunities to go to school, play sports, and dream big.
Opportunities not just to survive but to thrive.

Rare diseases may affect not more than 1 in 20,000 individuals in the Philippines, but collectively, they impact millions worldwide. Most patients are children. Many families still face delayed diagnosis, limited treatment options, and barriers to care.

This 17th National Rare Disease Week (February 22–28, 2026), with the theme “More Than You Can Imagine,” you can help move the conversation forward:
💙 Share verified information about rare diseases
💙 Start conversations in your schools and workplaces
💙 Wear blue denim to show solidarity
💙 Raise your hand and tag National Rare Disease Week Philippines and Philippine Society for Orphan Disorders Incorporated

When awareness grows, policies strengthen.
When communities unite, systems improve.
When opportunities expand, children thrive.
Let’s imagine and build a Philippines where rare disease patients are fully seen, supported, and empowered.

Together, let’s create a future where no one is left behind, more than we can imagine.

27/02/2026

In celebration of the National Rare Disease Week, join us for an informative and timely discussion on rare diseases and newborn screening.

HEALTH UPDATES WEBINAR #275
Rare Disease: Safe ba ang Anak Ko?
Featuring insights on Maple Syrup Urine Disease (MSUD), Pompe Disease, and Osteogenesis Imperfecta

February 27, 2026 (Friday)
12:00 NN – 1:00 PM

Our featured speaker, Dr. Ebner Bon Maceda, Director of the Institute of Human Genetics, National Institutes of Health, UP Manila, will help us better understand these rare conditions, the importance of early detection, and how families can be supported through proper care and newborn screening.

Together, let’s raise awareness, promote early diagnosis, and strengthen support for individuals and families affected by rare diseases.

Register now: bit.ly/HealthUpdatesWebinar275

Let’s continue working toward equity, awareness, and hope for every Filipino family. 💙💛

03/02/2026

🌼 IMPORTANT ANNOUNCEMENT 🌼

Assalamu alaikom! The NBS Satellite Continuity Clinic of Lanao del Sur Provincial Hospital – Tamparan District Hospital is now operational starting February 2026.

🩺 NBS Follow-up Clinic Consultations
📅 Every 5th day of the month
⏰ 9:00 AM – 12:00 NN
📍 2nd Floor (near OB ward Station), LDSPH–TDH, Tamparan, Lanao del Sur

📞 For inquiries and coordination, please contact: 0936 955 7911

Kindly share this post and inform parents and caregivers who may need NBS follow-up services. Thank you! 👶💙

03/02/2026