dra.soniacaraballo

14/09/2025

Incredible day at the 2025 Chicagoland Walk & Roll to Cure FSHD! 💙🧡

This inspiring event, organized by the , brought our community together to raise both awareness and vital funds for research toward treatments and a cure for Facioscapulohumeral Muscular Dystrophy (FSHD).

A very special thank you to .dell72 for her dedication, passion, and proactive efforts to raise awareness and bring people together. Your leadership and commitment make such a meaningful impact on the FSHD community.

I’m so grateful to everyone who participated, donated, volunteered, and sponsored—your support truly makes a difference for families affected by FSHD.

06/09/2025

🔬 Grateful to participate in the 2025 Neurological Conference of the Puerto Rican Academy of Neurology and raise awareness about facioscapulohumeral muscular dystrophy (FSHD).

Proud to share this moment with my esteemed colleagues and mentors Dr. Luciano, Dr. Carlo, and Dr. Alfonso — pillars in advancing education and treatment of neuromuscular conditions in Puerto Rico. Your leadership continues to shape the future of neuromuscular medicine on the island.



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🔬 Agradecida de participar en las Jornadas Neurológicas 2025 de la Academia Puertorriqueña de Neurología y crear conciencia sobre la distrofia muscular facioescapulohumeral (FSHD).

Orgullosa de compartir con mis colegas y mentores Dr. Luciano, Dr. Carlo y Dra. Alfonso — pilares fundamentales en el avance de la educación y los tratamientos para condiciones neuromusculares en Puerto Rico. Su liderazgo continúa marcando el camino hacia un mejor futuro en la medicina neuromuscular en la isla.

03/09/2025

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04/07/2025

🎉🇺🇸 Today, we were happy to participate in the Fourth of July Parade in Barrington, showcasing the commitment to raising awareness for Facioscapulohumeral Muscular Dystrophy (FSHD). It was inspiring to see the community come together for this incredible celebration! Happy 4th of July! 🌟🧡

Find out more: https://www.fshdsociety.org/living-with-
fshd/understanding-fshd/

Donate: https://give.fshdsociety.org/team/658263

29/06/2025

24/06/2025

20/06/2025

🌍🧡 Today, we recognize World FSHD Day, a day dedicated to raising awareness for facioscapulohumeral muscular dystrophy (FSHD) . I want to take a moment to highlight the incredible work done by my friend Joanne Dalessandro in this important mission.

As a neuromuscular neurologist treating rare diseases, I understand the critical importance of raising awareness for conditions like FSHD. Increased awareness not only fosters understanding but also encourages research and support for those impacted. Joanne’s dedication and passion to create awareness for FSHD is truly inspiring. Her journey and relentless fight against this condition serve as a beacon of hope for many.

In recognition of her efforts, passed a resolution declaring June 20 as FSHD Awareness Day in Illinois in honor of Joanne.

Join me in celebrating her accomplishments and the progress being made in the fight against FSHD. To learn more about Joanne’s initiatives and the ongoing efforts to raise awareness, check out this feature: [FSHD Society - Raising Awareness for FSHD](https://wgntv.com/spotlight-chicago/fshd-society-raising-awareness-finding-a-cure-for-facioscapulohumeral-muscular-dystrophy/).

Together, we can make a difference!

Donate: https://give.fshdsociety.org/team/658263

14/06/2025

🌟I am thrilled to have participated in the first patient meeting in Puerto Rico: “Together for Myasthenia Gravis.” 🌟

My journey to becoming a neuromuscular neurologist began when my grandmother was diagnosed with myasthenia gravis, at a time when I didn’t know about the condition aprox 18yrs ago. Witnessing her journey and the difficulties she faced in finding experts to help her with her condition deeply impacted me. Sadly, she passed away🕊️, but this experience not only motivated me to dedicate my career to neuromuscular diseases and rare disorders like myasthenia gravis, but it also helps me better understand the needs of patients.

It is incredible to be part of a new era for myasthenia gravis with all the advancements in treatments we have today. It is a privilege and an honor to contribute to this field. I know my grandmother would be proud. I am grateful to everyone who has collaborated in the development of research and new therapies for this condition. Thanks Dr. Alfonso for the invitation.

14/06/2025

La Miastenia Gravis, una enfermedad autoinmune que afecta la comunicación entre los nervios y los músculos, representa un reto médico y emocional para muchos puertorriqueños. Ante los retos que enfrentan los pacientes puertorriqueños, se celebró en San Juan la primera reunión del grupo d...

13/06/2025

As part of Joanne’s Warriors, Indi and Chanel 🐱 are joining Fido to raise awareness for FSHD, a rare genetic muscular dystrophy, on June 20—World FSHD Day! Let’s spread the word and donate to help find a cure for FSHD! 🌟

Find out more: https://www.fshdsociety.org/living-with-
fshd/understanding-fshd/

Donate: https://give.fshdsociety.org/team/658263

02/06/2025

🌟 June is Myasthenia Gravis Awareness Month! 🌟
Stay tuned!

16/05/2025

Por iniciativa de Margret Perez, paciente de MG, comienza un grupo de apoyo para pacientes con esta condición con el propósito de compartir experiencias, consejos, emociones y que se acompañen en el camino. Asi, como trabajar en educación a pacientes y la comunidad medica. Si desea participar debe enviar mensaje confirmando su asistencia a
Miasteniagravispr@gmailcom