Epilepsy Sparks

24/07/2025

🎞️ Trailer! 😵‍💫 Common, unknown confusion: is that seizure actually a seizure...or is it a migraine? Or, is that migraine actually a migraine... or a seizure?!
Well, it's kind of important to know 🙄🤪! Dr Lucas Orellana 🇦🇷 🤩 shares what we thought we knew - and what we still don’t - about the links between & 💡!
👇 Watch the full episode of the Epilepsy Sparks Insights podcast for a deep dive into shared treatments, diagnostic dilemmas, and how to actually improve people's quality of life (after all, THAT'S our real aim)!! 👇

🎧 Podcast: https://mcdn.podbean.com/mf/web/au6rpkuxte6ysyza/222_ESI_Lucas_Orellana_AUDIO8ba8n.mp3
🎬 YouTube: https://youtu.be/6-P2RZ5Z-DA
📄 Show notes + transcript: http://torierobinson.com/epilepsy-sparks-insights/lucas-orellana-migraine

24/07/2025

🤯 Is it a migraine? A seizure? Or both?!

👉 https://youtu.be/6-P2RZ5Z-DA

In this Epilepsy Sparks Insights 🎧 episode, Dr. Lucas Orellana breaks down:

⚡ How so many people live with BOTH epilepsy & migraine
🧬 The links between the two
💊 Why some meds work for both
🧠 Why personalised care matters more than ever
🌙 Sleep, stress & hormones: common triggers!

Tune in for science, stories & sparks of insight 💥, right here 👇!

🎧 https://mcdn.podbean.com/mf/web/au6rpkuxte6ysyza/222_ESI_Lucas_Orellana_AUDIO8ba8n.mp3
🎬 https://youtu.be/6-P2RZ5Z-DA
📄 http://torierobinson.com/epilepsy-sparks-insights/lucas-orellana-migraine

24/07/2025

🎙️ NEW EPISODE OUT NOW!
"Migraine & Epilepsy: Best Friends?" – with the cool neurologist & epileptologist Lucas Orellana! 🧠⚡ 👉 https://youtu.be/6-P2RZ5Z-DA
What do seizures and migraines have in common? 🤔 Turns out… quite a bit! Join us as Lucas shares fascinating insights into how these conditions overlap, why diagnosis can be tricky, and how a personalised approach is absolutely key. 💥💊 , right here 👇!

🎧 https://mcdn.podbean.com/mf/web/au6rpkuxte6ysyza/222_ESI_Lucas_Orellana_AUDIO8ba8n.mp3
🎬 https://youtu.be/6-P2RZ5Z-DA
📄 http://torierobinson.com/epilepsy-sparks-insights/lucas-orellana-migraine

22/07/2025

🧠🌍 It's World Brain Day 2025!! 🌍🧠 To hear some positivity and about changing the world for the better - now and in the future - have a watch/listen https://youtu.be/GlewPTrz59U !! And, reg for the big global webinar at 13:00 BST today! With star neurologist Tissa Wijeratne, here https://zoom.us/webinar/register/WN_63KVbsCFSIC6GvKFqeqyGA #/registration !!

Torie Robinson interviews Prof. Tissa Wijeratne about World Brain Day 2025, discussing its history, significance, and current themes. They explore the import...

17/07/2025

🎉 Check out the trailer 👇 for our latest episode! 🎬
Dr. Daniel Goldenholz 👨‍🔬 shares how he’s using 3D printing to make the world safer for people experiencing generalised seizures. From design to accessibility to community engagement - see how SafeSteps is changing the game, globally! 🖨️💜🌎

Think:
✅ Caregiver support
✅ Public awareness
✅ Subtlety
✅ Practical, durable, customisable tools

Watch/listen/read now 👇!

🎙️ Podcast https://mcdn.podbean.com/mf/web/mnrmuy9qvse5w9fm/221_ESI_Daniel_Goldenholz_AUDIO84rk2.mp3
🎬 YouTube https://youtu.be/onLDoHpXCuU
📄 Show notes https://www.torierobinson.com/epilepsy-sparks-insights/daniel-goldenholz-safesteps
🔗 Safesteps platform https://sites.google.com/site/danielgoldenholz/Home/safesteps-platform

17/07/2025

🖨️✨ How can 3D printing make seizures safer?

In our latest episode with Dr. Daniel Goldenholz 🇺🇸 from Beth Israel Deaconess Medical Center & Harvard University, we explore:

🔍 What these 3D-printed seizure safety tools actually look like
🖨️ How you can print them at home or in clinics
🌍 Languages available for global accessibility
📱 QR codes & NFC chips to guide the public during emergencies
🎨 Custom features for sensory and personal needs
🛡️ Built to last with durable, lightweight materials
🤝 Community power – spreading awareness through collaboration!

This is practical innovation designed to help caregivers, the public, and everyone in the epilepsy community. 💜

Listen to/watch/read here 👇!!

🎙️ Podcast https://mcdn.podbean.com/mf/web/mnrmuy9qvse5w9fm/221_ESI_Daniel_Goldenholz_AUDIO84rk2.mp3
🎬 YouTube https://youtu.be/onLDoHpXCuU
📄 Show notes https://www.torierobinson.com/epilepsy-sparks-insights/daniel-goldenholz-safesteps
🔗 Safesteps platform
https://sites.google.com/site/danielgoldenholz/Home/safesteps-platform

17/07/2025

🚀 New Episode Alert! “How To Be Safer During Seizures: SafeSteps!" - is out now! 🎙️

This week on Epilepsy Sparks Insights, we're joined by Asst. Prof. Daniel Goldenholz 🤩 - Epileptologist, Neurologist, and Researcher - who’s revolutionising seizure safety with 3D printing! 🖨️✨

We talk about empowering caregivers and the public to help during seizures with accessible, customisable tools. Join us for this inspiring chat about innovation, awareness, and supporting our epilepsy community. 💜 Join us here 👇!!

🎙️ Podcast https://mcdn.podbean.com/mf/web/mnrmuy9qvse5w9fm/221_ESI_Daniel_Goldenholz_AUDIO84rk2.mp3
🎬 YouTube https://youtu.be/onLDoHpXCuU
📄 Show notes https://www.torierobinson.com/epilepsy-sparks-insights/daniel-goldenholz-safesteps
🔗 Safesteps platform https://sites.google.com/site/danielgoldenholz/Home/safesteps-platform

15/07/2025

📣 World Brain Day 🧠🗓️ is coming up - Tues 22nd July! And there's a webinar just for you (that's free)! Experts from around the world will share vital information related to “Brain Health for All Ages”. Learn more and reg here: https://www.epilepsysparks.com/conferences/world-brain-day-2025-all-ages

Join us for the 2025 World Brain Day webinar as experts from around the globe share vital information related to Brain Health for All Ages.

14/07/2025

‼️ We need your insight 👀! Your perspective matters! If you have or are a caregiver for someone with an , please take part in this very short (5mins, max) questionnaire so that clinicians know how you mean when you refer to “awareness”or “consciousness”!! 👇

🗒️Survey

The term “Consciousness” is different from “awareness” and we want to find out what terms people with epilepsy - and their caregivers - use, and what they mean to them!

10/07/2025

🎥 Trailer! Is there hope for people?

Our chat with Jenny Edwards 🤩 (Clinical Nurse Specialist in Epilepsy) is essential listening for anyone navigating *xualhealth and epilepsy.

Watch the trailer and dive in to learn how openness, trust, and holistic care can change lives. Let’s break the silence together! Links here 👇!

🎙️ Podcast https://lnkd.in/dehuUrZD
🎬 YouTube https://lnkd.in/dR9b75yk
📄 Show notes https://lnkd.in/dQ26J2uH

*xlife

10/07/2025

Ever worried about how to talk about s*x and epilepsy? 💬
In this cool Epilepsy Sparks Insights podcast episode, Jenny Edwards (Clinical Nurse Specialist in Epilepsy) covers:

💦 Involuntarily flaccid/dry? You’re not alone.
💊 Therapy & antidepressants
🤝 Building trust with your care team
🤔 What’s “normal” anyway?
🧠 Sexual dysfunction in temporal lobe epilepsy
🗣️ Encouraging open, honest dialogue with ALL clinicians

🎙️ Podcast https://lnkd.in/dehuUrZD 
🎬 YouTube https://lnkd.in/dR9b75yk 
📄 Show notes https://lnkd.in/dQ26J2uH

10/07/2025

Ever worried about how to talk about s*x and epilepsy? 💬
In this cool Epilepsy Sparks Insights podcast episode, Jenny Edwards (Clinical Nurse Specialist in Epilepsy) covers:

💦 Involuntarily flaccid/dry? You're not alone.
💊 Therapy & antidepressants
🤝 Building trust with your care team
🤔 What's "normal" anyway?
🧠 Sexual dysfunction in temporal lobe epilepsy
🗣️ Encouraging open, honest dialogue with ALL clinicians

🎙️ Podcast https://mcdn.podbean.com/mf/web/6ksin9tghr5255u7/220_ESI_Jenny_Edward_2_of_2_AUDIO88v50.mp3
🎬 YouTube https://youtu.be/hg9TvVKNLSg
📄 Show notes https://www.torierobinson.com/epilepsy-sparks-insights/jenny-edwards-flacid-dry-disinterested