
06/08/2025
Never EVER could I imagine I one day would tolerate the sun and tropical heat the way as I can this summer! After surviving TEN 13 years ago, it has been close to impossible to sit in the sun at all or to be outside when the temperature was over 25 degrees.
This summer I don't immediately get blisters on exposed skin and I don't develop a fever directly after being in a hot environment. I can cool down in a pool again - just as normal people! I can apply sunscreen which prevents me from burning - just as normal people!
I imagine it is hard to understand how not being able to be in the sun and not tolerating heat affects one. It hugely does! Planning ahead- covering your body - applying sunscreen - adjust your plans - recover from fever - recover from exhaustion. It affects you.
This year I have noticed long- awaited improvements. And I embrace them.
I am - of course - a bit sceptical if they will last. But for now I embrace them with gratitude!
If I have to guess why I tolerate sun and warmth so much better this year I would say that it is because of me being so much more stable, physically and mentally. I don't test my boundaries as much as I have done in the past, I accept being another person than I used to be. I embrace my TEN survival story - at last - and try to create awareness as much as possible, both for the physical life changing effects as for the emotional.
Ps 1: The photo was taken on Fuerteventura, at ca 17 o'clock, 30 degrees and I managed to sit there for about 10 min 😅. It was too hot for anyone - not just for me!!
Ps 2: Good thing we bought a house with a pool! 👊🏻🎉
Ps 3: In the background you can see the mountain I broke my leg a few years ago which strangely enough led to emotional recovery.
You can read all about it in:
🇳🇱Gebroken - niet gescheurd
🇸🇪Välj då Livet!
🇬🇧An inner tornado - my battle with Toxic Epidermal Necrolysis