Empty Nose Syndrome / Iatrogenic Nasal Dysfunction - FB PAGE

16/08/2025

A reminder again please don’t forget to fill out the form. It’s important science for all who have ENS.

Dear all,

We are pleased to share with you our *questionnaire on ENS*. Please find below the access links for each available language version: English, French, German, Italian, and Spanish. _Kindly select and complete only one version by clicking on the corresponding link._

*English version*: https://redcap.unimore.it/redcap/surveys/?s=ATYLYMC3DLXFXMAL
*French version*: https://redcap.unimore.it/redcap/surveys/?s=RLRMK7DT9T4MCHC9
*Germany version*: https://redcap.unimore.it/redcap/surveys/?s=Y8H4RLY9CHAJKLTL
*Italian version*: https://redcap.unimore.it/redcap/surveys/?s=KHJXR9MC7DJ4TEKE
*Spanish version*: https://redcap.unimore.it/redcap/surveys/?s=YAK97FRNKLTJ74XJ

We encourage you to distribute the questionnaire to other ENS patients outside of this group as well.

Thank you for your engagement and valuable contribution to this important project.

We look forward to receiving your response and advancing knowledge on ENS!

Sincerely,
The ENS Questionnaire Team

Este estudio busca ampliar el conocimiento sobre el síndrome de la nariz vacía (ENS) mediante el registro de la experiencia directa de los pacientes teniendo en cuenta el inicio, la sintomatologia, los efectos y su tratamiento, así como recopilar información preliminar sobre el impacto general d...

13/08/2025

Test

13/08/2025

I repost this from Tanya

CASTING REAL STORIES - Documentary Series about Cosmetic Surgery Regrets

Hey Everyone,

The admin has kindly allowed me to share the casting call for a documentary series I'm producing which will feature stories about individuals who regret their cosmetic procedures and functional surgeries for nasal congestion.

I am hoping those of you who are ready to share your experience, will kindly consider sharing your story in the casting form below. I will be reaching out to have a call with those short-listed for the series and those who are selected will be compensated.

Why am I making this series? I underwent lasik eye surgery back in 2018 which I deeply regret and now live with the consequences. My hope is to educate audiences about the often unknown negative side effects of cosmetic procedures and functional procedures which have sadly been normalized and in many cases aren't discussed enough by surgeons/medical staff.

I am a Canadian filmmaker who has produced award-winning documentaries over the past decade. My website is linked in the comments. I'm happy to answer any questions you may have!

consider submitting as soon as possible and sharing this opportunity with others:

https://form.jotform.com/Tanya_Hoshi/InHindsight?fbclid=IwZXh0bgNhZW0CMTEAAR7afML2Jm18canM3nWnR0h9dLmAjMn_qNwMz8_RHU8-zZbjbHXL0MBCAg2vWA_aem_z5nY9H7mFpYVqNN-g0osfg

Please click the link to complete this form.

18/03/2025

Find the Best Solution for Nasal Reconstruction and ENS
Restoring nasal structure and function is a complex process—but there are many options! From autologous cartilage with long-term stability to biological and synthetic materials that promote tissue regeneration, each method has its own benefits and limitations.

✅ Which material provides the best support?
✅ How long do the results last?
✅ Which options integrate best with the body?

Explore the top solutions for your needs—read on to compare different materials and find the optimal choice!

https://tinyurl.com/2fuzexa9

26/02/2025

🚨 Shattered Trust – The Complete Version is Finally Here! 🚨

After two years of relentless work, I have finally completed the full version of Shattered Trust – The Untold Story of Empty Nose Syndrome - a high-quality, 1-hour and 25-minute investigative documentary.

To be honest, if I had known in advance how much effort this would take, I might never have started. In the time it took to make this, I could have written several books… But now, at last, it’s done!

This is my contribution to the world. I hope it helps bring much-needed awareness to Empty Nose Syndrome and prevents others from suffering the same fate.

This documentary is invaluable for anyone considering nasal surgery—it could literally save your life. If you or someone you know is about to undergo a nasal procedure, you must watch this first. Shattered Trust also serves as a powerful resource for those who have recently been diagnosed with ENS, helping them understand the condition.

💡 About the Documentary
Every year, thousands undergo routine nasal surgeries, trusting their doctors to improve their breathing. But for some, these procedures mark the beginning of a lifelong struggle. Shattered Trust is a groundbreaking investigative documentary that exposes the hidden dangers of turbinate reduction, septoplasty, and other nasal surgeries—procedures that can lead to the devastating condition known as Empty Nose Syndrome (ENS).

Through raw patient testimonies, expert medical analysis, and in-depth research, Shattered Trust reveals how a single operation can strip away more than just nasal tissue—it can steal a person’s ability to feel air, to sleep, and to live without constant suffering. The documentary uncovers the financial motives behind these procedures, the lack of informed consent, and the painful reality that many victims are forced to endure in silence.

For the time being, the full version will be available on Patreon for a small fee. This is to help recover some of the costs of making the film, including the high expenses for AI services, avatars, voice programs, film editing software, video content, and other production tools that made this project possible.

🎥 Watch now! Copy the link below to my Patreon and open it outside of Facebook in a web browser. "If opened in Facebook’s web browser, third-party checkout might sometimes be blocked."

https://shorturl.at/UHcH5

For more information on ENS, see the files included with the purchase. One of the files specifically contains contact information for ENS-friendly physicians, some of whom offer experimental treatments like implants or injections. Please note that all these treatments are experimental and undertaken at your own risk.

This film is more than just a documentary—it’s a warning, a resource, and a lifeline. It is also my legacy to the world—a way to create something meaningful and ensure that others don’t have to endure what I have.

When I underwent nasal surgery in 2014, there was no information available in my native language. Had a film like this existed back then, it could have changed everything for me—it might have even saved my life. That’s why I am now taking action, raising awareness, and seeking solutions to help others avoid the same suffering.

Will you take a breath… and watch?

Check out ENS Awareness Project’s shop on Patreon

14/02/2025

Quick Overview of the Consequences of Nasal Surgery

Surgical Procedures in the Nose and Their Consequences:

Turbinate reduction, septoplasty, spreader graft surgery, and medial maxillectomy (a sinus surgery where the wall between the nose and maxillary sinus is removed) lead to excessive nasal opening, resulting in a loss of normal airflow resistance. Additionally, these procedures impair the filtration, warming, and humidification of inhaled air and cause damage to the nerves and receptors responsible for airflow perception....

Read the rest of the article here: https://shorturl.at/6Eabm

07/02/2025

Patients with Empty Nose Syndrome (ENS) often develop chronic hyperventilation not only due to excessive nasal openness and reduced nasal resistance but also due to damaged nerves and receptors that disrupt normal respiratory control. This leads to a diminished pause between exhalation and inhalation, increasing respiratory rate and exacerbating CO2 loss.

Excessive breathing causes hypocapnia (low CO2 levels) and respiratory alkalosis, which have serious consequences for oxygen delivery. Hypocapnia leads to blood vessel constriction (vasoconstriction), reducing overall blood flow to tissues. This means that less oxygenated blood reaches vital organs, including the brain and heart. Additionally, the Bohr effect shifts the oxygen-hemoglobin dissociation curve to the left, making it harder for oxygen to be released into tissues. The combination of reduced blood flow and impaired oxygen unloading leads to significant tissue hypoxia despite normal oxygen levels in the blood.

To compensate, the body may increase blood pressure to maintain adequate oxygen delivery despite restricted blood flow. However, taking blood pressure medication to lower this compensatory response can further reduce perfusion, worsening symptoms such as dizziness, cognitive dysfunction, heart pain, and general fatigue.

I personally developed heart problems after first using a supplement - citrulline malate (a vasodilator), followed by blood pressure medication. Oxygen delivery to my organs was already severely impaired due to hypocapnia and alkalosis. My body attempted to compensate by increasing blood pressure. However, after taking blood pressure medication, my CO2 levels remained low, oxygen deprivation persisted, and the compensatory mechanism of elevated blood pressure was removed. As a result, hypoxia in my organs worsened, ultimately triggering my heart problems.

07/01/2025

The Impact of Breathing on the Nervous System

1. Inhalation and the Sympathetic Nervous System (SNS)

Inhalation activates the sympathetic nervous system to a greater extent. This is because heart rate naturally increases slightly during inhalation (an effect known as respiratory sinus arrhythmia).
Rapid and shallow inhalation can overactivate the sympathetic nervous system, leading to feelings of stress or heightened arousal.
Individuals with Empty Nose Syndrome (ENS), who lack nasal resistance, tend to breathe faster and less controlled, which can further amplify this sympathetic activation.

2. Exhalation and the Parasympathetic Nervous System (PNS)
Exhalation has the opposite effect: it activates the parasympathetic nervous system, which lowers heart rate and helps the body relax.
Long and controlled exhalations are particularly effective in stimulating the vagus nerve, a key component of the parasympathetic system.

In ENS, where nasal resistance is absent, exhalation often becomes rapid and short, reducing parasympathetic stimulation and preventing the body from entering a relaxed state.

The Effect of Rapid Breathing and Short Breathing Cycles (as in ENS)

Rapid breathing overactivates the sympathetic nervous system:
ENS often leads to rapid and shallow breathing due to the lack of natural nasal resistance. Nasal resistance typically creates a "braking effect" that slows and regulates both inhalation and exhalation.
Without this resistance, breathing becomes faster, overactivating the sympathetic nervous system and creating a state of constant stress response.

This condition, known as hyperventilation, lowers carbon dioxide levels in the blood, disrupting the body’s acid-base balance and further intensifying feelings of stress and anxiety.
Short exhalations reduce parasympathetic activation:
Since exhalation is the phase that activates the parasympathetic system, short and inefficient exhalations are problematic. They reduce the body’s ability to relax and enter a calm state.
This lack of parasympathetic stimulation can contribute to the sleep difficulties and challenges with relaxation that many individuals with ENS experience.

Disruptions in breathing dynamics disturb the body’s rhythms:
The nose plays a vital role in maintaining a natural balance in the rhythm of breathing. Without this balance, breathing can become dysfunctional, leading to chronic overactivation of the sympathetic nervous system. This is a common issue for individuals with ENS.

How This Relates to Sleep Difficulties
Sleep requires strong activation of the parasympathetic system, which is typically facilitated by slow and rhythmic breathing during rest.

In ENS, where the breathing cycle is rapid and short, the sympathetic nervous system is overstimulated, making it harder for the body to relax and enter deep sleep.

Rapid breathing can also create a sensation of "air hunger" or panic, further disrupting sleep patterns.

Summary
Rapid breathing and short exhalations, often observed in ENS, overactivate the sympathetic nervous system and reduce the body's ability to engage the parasympathetic system. This can contribute to stress, anxiety, and sleep problems. By slowing down breathing, prolonging exhalation, and reintroducing some resistance in the airways, these symptoms can potentially be alleviated.

28/12/2024

Empty Nose Syndrome - Search interest over time:
Blue = ENS... Red = Atrophic rhinitis
https://trends.google.com/trends/explore?date=all&q=empty%20nose%20syndrome,atrophic%20rhinitis&hl=en

24/11/2024

My message from the group, this text is valid for this page as well:

It seems that only a small number of individuals are involved, but it has become clear that some members of the group have reported blog posts and videos to the platform owners. These posts and videos were created with the utmost care, love, and respect to honor ENS-related departures. Unfortunately, it appears that some individuals may have felt uncomfortable with the topic and reported it as inappropriate content.

As a result, there have been several consequences. The new blog is now blocked, and it is no longer possible to share the URL here. All of my YouTube channels have been deleted, and Facebook has restricted me from uploading any new videos.

To be honest, I am feeling quite tired and disheartened by these challenges. I’ve been a part of these groups since 2019, and I have often reflected on whether it might be better for me personally to step away and shut down this group. The primary reason I’ve kept it active until now is because it has been an important tool in raising awareness about Empty Nose Syndrome. However, since I can no longer share content within the group, that purpose feels diminished. While I am not making any final decisions yet, I plan to be much more selective about who can join the group moving forward.

From now on, I will not allow profiles that appear inauthentic. This includes profiles without photos, videos, friends, or other personal details, and at the same time have not posted anything in the group. Last week, I removed over 100 such accounts that lacked these elements and had not contributed to group discussions at all. It is possible that I may have mistakenly removed genuine members, and if that is the case, I sincerely apologize. You are, of course, welcome to reapply for membership, but I ask that you do so with a valid Facebook profile that has been active for at least six months.

I understand that there may be larger forces at play when it comes to the challenges we face in spreading awareness about ENS-related departures. The work we do shines a light on the profound impacts this condition can have, and I believe it is an important message to share. Because of this, I will remain cautious and will no longer accept profiles that seem uncertain. Many ENT doctors would like to see us fail.

We have invested thousands of hours into documenting ENS-related departures with care, professionalism, and deep respect for those affected. It is incredibly upsetting to see this work being reported and removed.

For those whose Facebook profiles may appear incomplete or look fake, I kindly ask that you update your profiles or rejoin the group using your real Facebook account. I have already removed many “empty” profiles and will continue to do so to ensure that this group remains a safe and productive space, free from ENT doctors or others who might seek to undermine our mission to raise awareness about ENS

24/11/2024

Bente Van de Veerdonk - yet another sad ENS related departure.

Read her story here:

https://shorturl.at/7aAs0

07/11/2024

https://vimeo.com/1030298694

In this video, we bring you the third segment of the Adherent First and Fifteen series, now in 2020, and we're excited to dive into some important news. In c...