IFPA

Global leader in fighting psoriatic disease
(1)

Vision

A future where all people living with psoriatic disease enjoy good health and wellbeing, free from stigma and preventable disability and comorbidities

Mission

Unite, strengthen and lead the global psoriatic disease community to improve the lives of all people affected by psoriatic disease.

07/11/2025

Do you live with psoriasis or psoriatic arthritis, or support someone who does? The Psoriatic Disease Ambassador Program gives you the chance to share your story to raise awareness, fight stigma, and make a difference for the global psoriatic community.

We’re looking for passionate individuals from around the world — whether you have personal experience with psoriatic disease or are a caregiver, family member, or close friend. You don’t need prior advocacy experience. What matters is your willingness to speak up and learn the skills to inspire others.

Interested? Learn more and apply here: https://eu1.hubs.ly/H0psd340

06/11/2025

Too many people and communities remain underrepresented in psoriatic disease research. This lack of diversity limits understanding, slows innovation, and leaves people without equal access to care.

IFPA’s new global initiative, Breaking Barriers in Psoriatic Disease, aims to identify the obstacles that prevent diverse communities from participating in clinical research and inspire action to overcome them.

Working together with people living with psoriatic disease, healthcare professionals and institutes, researchers and advocacy organizations around the world, the project explores how stigma, culture, geography and socioeconomic factors influence participation and develops practical tools to foster inclusion and equity in research.

Together, we can build fairer pathways to care and ensure every voice is represented in psoriatic disease research.

👉 Learn more and join the project: https://eu1.hubs.ly/H0pqDDX0

05/11/2025

Psoriatic disease can be unpredictable and exhausting.

For Sofia, living with psoriatic disease can cause significant emotional distress.

Tune into our new podcast, Beyond The Flare, where we gather the global psoriatic disease community to share experiences, insights, and ways we can shape a healthier future together for people living with the condition.

Listen here: https://eu1.hubs.ly/H0pfZgY0

04/11/2025

People with psoriatic disease are at a higher risk for cardiovascular disease (CVD), and the risk increases with disease severity.

✔️Hypertension is more common in those with psoriatic disease, adding to CVD risk.
✔️Mild psoriatic disease increases the risk of major cardiovascular events by 28% and raises the likelihood of CVD-related mortality by 16%.
✔️With severe psoriatic disease, the risk of major cardiovascular events jumps by 62%, while CVD-related mortality rises by 75%.
✔️Younger people are especially vulnerable to these risks.

👉 Find out more in the report:
https://eu1.hubs.ly/H0pd4yp0

02/11/2025

People with psoriatic disease are more likely to have obesity, and the risk increases with disease severity. This can also impact treatment. Some medications may be less effective if a person has obesity.

Weight reduction may help reduce disease severity and improve treatment response.

👉 Explore more in the report:
https://eu1.hubs.ly/H0pd72J0

01/11/2025

People with psoriatic disease are twice as likely to develop type-2 diabetes. The odds increase with the severity of psoriatic disease.

Early screening and prevention can:
✔️Ease the burden of managing multiple chronic conditions
✔️Reduce healthcare costs and missed workdays
✔️Improve overall health and even psoriatic disease itself

👉 Learn more in the report:
https://eu1.hubs.ly/H0pd2Dz0

31/10/2025

We’re proud to have shared our voice in a blog for NCD Alliance, reflecting on our participation in the High-Level Meetings on NCDs and highlighting complexity of psoriasis as a disease and its ripple effects.

The article explores why listening to people living with psoriasis is essential — to improve care, reduce barriers and build health systems that truly meet patients’ needs.

A heartfelt thank you to NCD Alliance for this wonderful opportunity!

👉 Read the article: https://eu1.hubs.ly/H0pfDYs0

30/10/2025

As we wrap up this year’s campaign, we want to extend our heartfelt gratitude to all our member organizations, partners and supporters around the world. 🙏

Your commitment and solidarity with the 60 million people living with psoriasis, their families and communities, inspire us every day. Together, you’ve shown what a passionate, united and unstoppable global community can achieve.

Your engagement and dedication have made possible what once seemed out of reach: helping the world recognize psoriasis for what it truly is — a complex condition that calls for increased understanding, empathy and urgent, patient-centered action.

This , your powerful voices carried one clear message: we can of psoriasis. Together, we can reverse its devastating impact — and build a future where no one faces stigma or discrimination because of their disease.

This World Psoriasis Day may be over, but our fight continues.

Let’s keep raising awareness, pushing for change, and standing together — because every action counts.

29/10/2025

We’ve launched a new podcast – Beyond The Flare! The series brings together voices from across the psoriatic disease community to explore how we can improve the lives of everyone affected.

Stay tuned for our next few episodes. Listen to the first episode here: https://linktr.ee/psoriasisIFPA?fbclid=PAZXh0bgNhZW0CMTEAAaceBZwB0m0cSxZbk-Z4d5YzE7JikaTZ1K2RqS6IoxRIhb_OZ_PdoLCoESQ-2w_aem__vbTugqlyeLKkR-CDFBMdg

29/10/2025

This World Psoriasis Day, we stand with everyone living with psoriatic disease and shine a light on the importance of understanding the full impact it has on daily life. Psoriasis and psoriatic arthritis (PsA) are more than skin and joint conditions. They can set off a domino effect of comorbidities, including cardiovascular disease, diabetes, fatigue, and depression.

Good care is about more than managing symptoms. It means early recognition, addressing comorbidities, and supporting whole-person wellbeing. That’s the focus of IFPA’s Good Care Campaign, created together with GRAPPA Network which provides tools, guidelines, and patient stories to help people feel empowered and supported in their care.

Together, we can stop the domino effect. 👉 Visit https://eu1.hubs.ly/H0pb7Q_0 to find out more.

29/10/2025

At least 60 million people live with psoriatic disease worldwide. It is a systemic condition affecting multiple body sites, predominately the skin, the joints, or both.

People with psoriatic disease have an increased risk of developing other noncommunicable diseases (comorbidities):
✔️Depression
✔️Hypertension
✔️Cardiovascular disease
✔️Diabetes
✔️Obesity
✔️Inflammatory bowl disease

Find out more in the 'Psoriatic disease and comorbidities' report produced by IFPA:
https://eu1.hubs.ly/H0pb7yg0

Let's raise awareness and mark World Psoriasis Day together! ✨

28/10/2025

This September, we attended United Nations General Assembly ( ) high-level meetings on noncommunicable diseases and advocated for the people living with psoriatic disease.

As part of this initiative, we partnered with Devex to host a panel discussion featuring Frida Dunger, IFPA’s Executive Director, and Kate Reynolds, IFPA Ambassador, on why it’s crucial for healthcare professionals and policymakers to listen to people living with psoriasis.

To mark World Psoriasis Day ahead of time, we brought our campaign to New York City, featuring a domino installation at Times Square. The domino symbolizes the ripple effect of psoriasis and the urgent need to raise awareness.

We also connected with Frida and Kate after the events and captured a video highlighting our activities in New York.

Watch the video to find out why it’s vital to include people living with psoriasis in the global health agenda — and what actions are needed to make that inclusion a reality. For the full version: https://eu1.hubs.ly/H0p9FMN0

The Lavender Librarian

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Slottsbacken 8
Stockholm
SE-16751

Webbplats

http://www.ifpa-pso.com/

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Typ

Medicin och hälsa