IFPA

Global leader in fighting psoriatic disease
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Vision

A future where all people living with psoriatic disease enjoy good health and wellbeing, free from stigma and preventable disability and comorbidities

Mission

Unite, strengthen and lead the global psoriatic disease community to improve the lives of all people affected by psoriatic disease.

21/09/2025

💡 Did you know that 30% of people living with psoriatic disease report avoiding work or study opportunities because of their health condition?

For many, navigating work life is challenging. But for people with psoriatic disease, it can be filled with barriers that their colleagues often don’t see.

Workplaces are rarely designed to include people with “visible” health conditions, creating space for stigma, exclusion and discrimination. Greater awareness of psoriatic disease—and its reality as a chronic, lifelong condition—can foster more inclusive workplaces, improving the lives of over 60 million people worldwide, their families, and their communities.

👉 No one should feel excluded or undervalued because of their health condition. IFPA stands for people with psoriatic disease and their rights at .

📅 On Monday, Sept 22, we are partnering with for a panel discussion to spotlight the challenges faced by people with psoriatic disease.

Hear from:
✨ Frida Dunger, IFPA’s Executive Director
✨ Kate Reynolds, children’s librarian and IFPA Ambassador living with psoriatic disease

Join us to explore why patient-centered healthcare policies are key to building a future free from discrimination and stigma.

🔗 Register to attend in person in New York or online: https://eu1.hubs.ly/H0ncgMR0

20/09/2025

Several years ago, Kate Reynolds, a children’s librarian from Ontario, Canada, was diagnosed with Generalized Pustular Psoriasis (GPP). Her first outbreak was nearly fatal — and it profoundly changed her life.

As Kate navigated the healthcare system, she encountered that awareness of psoriasis among professionals was limited. Too often, “quick fixes” and low-cost solutions were prioritized over patients’ long-term health and wellbeing.

Determined to change this, Kate joined IFPA’s work to raise awareness of psoriatic disease — still a blind spot in global health — and to advocate for better outcomes for those living with it.

📅 On Monday, September 22, Kate will join our panel conversation with on the sidelines of to share her perspective on why health policies and medical treatment decisions should be shaped by people with lived experience of the disease.

Don’t miss this important conversation with Kate and Dunger, IFPA’s Executive Director, on how lived experience can transform healthcare.

👉 Register to attend in person in New York or online: https://eu1.hubs.ly/H0nc8w80

19/09/2025

IFPA at EADV Congress 2025
Inspiring days at the in Paris, surrounded by leading dermatologists, researchers, industry partners and patient advocates from across the globe. This year’s program was a great mix of inspiring sessions, meetings and thought-provoking discussions. We are grateful for the opportunities to strengthen collaboration within the psoriatic disease community.

Tomorrow, we conclude our presence at EADV with a workshop led by IFPA Board Member de Guzman. His session will explore the role of empathy in doctor – patient relationships, a reminder that healthcare and compassion must go hand in hand. A few spots are still available, register here: https://eu1.hubs.ly/H0nbYmh0

Thank you to and every colleague who joined us in Paris. Thank you IFPA Coalition Partners, representatives, , and . Together, we’re building a stronger global movement for people living with psoriatic disease.

18/09/2025

Did you know that 82% of people living with psoriatic disease face stigma and discrimination, and nearly 1 in 3 say it has held them back from work or study?

What has to be done to make sure that people who have chronic conditions like psoriasis can live their best lives, realize their full potential and pursue the careers they dream of?

This is one of the questions we’ll explore during the high-level panel discussion with Devex, that takes place in New-York on the sidelines of , on Monday, September 22.

One of our speakers, Kate Reynolds, IFPA Ambassador and a dedicated children’s librarian, will share her view on why the experiences of people living with psoriatic disease must be put at the heart of health policies.

Listen to Kate, as she reflects on what she went through when facing her first outbreak of Generalized Pustular Psoriasis (GPP) and how it impacted her work life.

Don’t miss this important conversation about why inclusive health policies are a must.

👉 Watch the video and register now to join the discussion:
https://eu1.hubs.ly/H0n9tcY0

16/09/2025

Skin diseases often come with invisible struggles. Simple communication and emotional awareness can dramatically improve care.

If you are a healthcare professional, attending EADV Congress 2025 in Paris this week, don’t miss a unique training workshop:

“Talk That Heals: How Better Communication Drives Better Patient Outcomes”
📅 September 20
🕒 14.15 – 15.30
📍 Room: W08

This hands-on interactive session will help you:
✔️ Expand your knowledge on the emotional impact of skin disease
✔️ Find out how to build trust with patients through empathy
✔️ Practice real-life conversations in a patient-led role play

The workshop will be co-chaired by De Guzman, IFPA Board and passionate advocate for psoriatic disease, who will bring his own expert insights and share conversational tools that dermatologists can use in their daily practice.

Interested?
👉 Register here: https://eu1.hubs.ly/H0n3mBf0

15/09/2025

On September 22nd we organize a panel conversation with Devex at the sidelines of United Nations General Assembly in New York, to discuss what it is like to live with psoriatic disease and why it’s crucial to integrate living experiences in the global health policies.

Why bring psoriatic disease into the spotlight now?

Over 60 million people worldwide live with the psoriatic disease, yet it still remains largely ignored in global and national health policies.

Despite being a serious, lifelong noncommunicable disease, affecting all aspects of a person’s life, psoriatic disease is often dismissed or misunderstood.

The reality?
• 82% of people with psoriatic disease face stigma and discrimination
• 81% say it impacts their relationships
• 28% report it has prevented them from working or studying
• 25% struggle with depression
• 48% experience anxiety
• People with psoriasis are 2x more likely to develop type-2 diabetes

…and the impact of the disease goes beyond the individual, living with it:
90% of family members report that psoriatic disease affects their own quality of life.

At IFPA we are convinced that the psoriatic disease is a serious global health threat and a health equity challenge. It deserves a place in the UN health agenda – just like other noncommunicable diseases.

It’s time to stop the domino effect and ensure policies, resources and healthcare systems reflect the needs and expectations of those living with the disease.

Join our conversation with Devex on September 22, 4:00–4:15 PM ET – featuring Frida Dunger, IFPA's Executive Director, and Kate Reynolds – IFPA's Ambassador, living with psoriatic disease. Let’s discuss together – why and how noncommunicable diseases like psoriasis should move to the center of global health policymaking.

👉 Register here (online or in-person in New York): https://eu1.hubs.ly/H0n0JMr0

12/09/2025

Are you Attending 54th Annual ESDR (European Society for Dermatological Research) Meeting in Antwerp this Saturday?

Don't miss our session, chaired by IFPA, titled: "More Than Skin Deep: Addressing Psoriatic Disease and its comorbidities." on Sept 13 at 11.00!

In this session, you’ll hear from both medical experts and individuals living with psoriatic disease as we explore its full impact — and why a comprehensive approach to patient care matters.

📄 See the full agenda and speaker list: https://eu1.hubs.ly/H0m_G080
📍 We look forward to welcome you on Saturday!

11/09/2025

💭❓What’s it really like to live with psoriasis?
Meet Kate Reynolds, an IFPA Ambassador and passionate children’s librarian from Ontario, Canada.

At age 35, Kate was diagnosed with Generalized Pustular Psoriasis (GPP) — a rare, potentially life-threatening form of psoriatic disease.

GPP triggers a severe immune system reaction, that manifests in sudden and intense outbreaks of painful pustules across the skin. Its impact goes far beyond the skin — GPP affects the entire body, causing fever, fatigue, and widespread inflammation. GPP is so rare that many healthcare professionals are unfamiliar with it, which makes timely diagnosis and treatment difficult. For Kate, the experience of the first GPP outbreaks was not only physically painful but also very lonely and emotionally devastating.

Today, Kate is using her voice to advocate for others living with psoriatic disease. On September 22, she will speak at our high-level advocacy event organized with , taking place alongside in New York.

🖥️📍Join the panel discussion online or in-person in New York and let’s discuss together - why and how noncommunicable diseases like psoriasis should move to the center of global health policymaking.

👉 Register here: https://eu1.hubs.ly/H0mZpkn0

09/09/2025

Are you attending 54th Annual ESDR (European Society for Dermatological Research) Meeting in Antwerp September 10–13? This year’s program features keynote lectures from world-class scientists, thought-provoking debates, and interactive sessions covering the latest advancements in dermatological research.

Join the session on Saturday, September 13 at 11.00–11.30, moderated by our IFPA colleagues Raquel Vas and Sicily Mburu:
"More Than Skin Deep: Addressing Psoriatic Disease and its comorbidities." Psoriatic disease increases the risk of heart disease, diabetes, obesity, and mental health conditions.

In this session, you’ll hear from both medical experts and individuals living with psoriatic disease as we explore its full impact — and why a comprehensive approach matters.

📄 See the full agenda and speaker list: https://eu1.hubs.ly/H0mX89S0
📍 We look forward to meet and engage in Antwerp!

03/09/2025

Over 60 million people worldwide live with psoriatic disease — a serious lifelong condition with no cure, often linked to other noncommunicable diseases like diabetes, heart disease, depression and more. Despite its global impact, the disease has been largely overlooked in global and national health policies.

IFPA (The International Federation of Psoriasis Associations) – a global organization, fighting for people living with psoriatic disease - calls for urgent actions to put the living experiences of psoriatic disease at the forefront of the global health agenda.

As a part of this advocacy initiative, IFPA organizes a high-level conversation in partnership with on the sidelines of UNGA, titled: Psoriatic Disease and NCDs: Putting Lived Experience at the Heart of Policy.

The session will feature Kate Reynolds, IFPA ambassador, living with psoriatic disease, and Frida Dunger, Executive Director of IFPA. The speakers will share insights and powerful perspectives on why lived experience of noncommunicable diseases like psoriasis must move to the center of global health policymaking.

📅 Monday, September 22, 2025
🕓 4:00–4:15 pm ET
📍Devex NCD Pavilion @ UNGA 80, New York
💻 Register here to attend in-person or online: https://eu1.hubs.ly/H0mMKXP0

02/09/2025

Early treatment of psoriatic disease can help prevent or minimize comorbidities like heart disease, diabetes, and depression.

By managing inflammation and staying proactive with treatment, you can prevent or minimize the long-term effects of these associated conditions. A timely approach is crucial in ensuring a healthier and more fulfilling future.

Explore more: https://eu1.hubs.ly/H0mFJdJ0

29/08/2025

Chronic inflammation associated with psoriatic disease can increase the risk of cardiovascular issues, such as heart disease and high blood pressure. This inflammation can damage blood vessels over time, leading to higher risks of heart-related complications.

It’s essential to recognize the broader impact of psoriatic disease on your health. Managing inflammation and addressing the condition’s systemic effects can be key to reducing the risk of cardiovascular complications.

Learn more: https://eu1.hubs.ly/H0mFD7Q0

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