IFPA

Global leader in fighting psoriatic disease
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Vision

A future where all people living with psoriatic disease enjoy good health and wellbeing, free from stigma and preventable disability and comorbidities

Mission

Unite, strengthen and lead the global psoriatic disease community to improve the lives of all people affected by psoriatic disease.

27/11/2025

Our Executive Director, Frida Dunger, was recently featured on Practical Dermatology's podcast, DWTV Extra, where she talked about IFPA’s advocacy efforts for people living with psoriasis and attending the UN General Assembly this autumn.

🗣️ The key message: people living with psoriatic disease are experts in their own experiences and should be included in policymaking decisions about them.

👉 Watch the full video and learn more about how IFPA is driving change on a global scale: https://eu1.hubs.ly/H0q0dn90

19/11/2025

New key resources – Playbook and Roadmap for implementation in the Americas – launched!

Patient organizations, advocacy groups, healthcare professionals, and stakeholders across the Americas—this is your opportunity to turn insights into action. Together, we can ensure that psoriatic disease remains visible on the political agenda, from national health plans to the global debate on non-communicable diseases.

In April 2025, the IFPA Forum Americas brought together the psoriatic community in Bogotá to promote regional action and define a path forward. With the Forum setting the course, it is now up to organizations and advocates in every country to implement its learnings, to help improve the lives of an estimated over 8 million people living with psoriasis across the Americas.

To support the next steps, IFPA has published two key resources, available in English, Spanish, and Portuguese:
✔️Roadmap for improving the lives of people living with psoriatic disease – outlines advocacy priorities and practical strategies to improve psoriatic care, from raising awareness of disease burden to influencing national and regional policies.
✔️Americas Action Playbook – a practical guide designed to help advocates and patient organizations implement the Roadmap’s recommendations. It provides inspiration, ready-to-use tools and actionable advocacy tips.

For IFPA Member organizations, the IFPA Forum Fund offers a unique opportunity to turn these recommendations into tangible results. Whether your focus is on improving access to care, raising awareness, influencing policy, or strengthening patient support networks, the Forum Fund is here to help bring your ideas to life.

🗓️ Forum Fund Application deadline: December 15, 2025

Visit our website to download the Roadmap and the Playbook for Americas and to apply for the IFPA Forum Fund: https://eu1.hubs.ly/H0pNNzV0

18/11/2025

Our latest episode of Beyond The Flare is now live, focusing on why early intervention matters in psoriatic disease.

Samantha, who lives with psoriatic disease, shares her diagnosis journey with us.

Spotify: https://shorturl.at/CEFUi
Apple Podcasts: https://shorturl.at/Sm1Qo

14/11/2025

It's World Diabetes Day today 🌍

Did you know that people with psoriatic disease are twice as likely to develop type-2 diabetes? The odds increase with the severity of psoriatic disease.

Early screening and prevention can:
✔️Ease the burden of managing multiple chronic conditions
✔️Reduce healthcare costs and missed workdays
✔️Improve overall health and even psoriatic disease itself

👉 Read the report: https://eu1.hubs.ly/H0pFnM10

11/11/2025

We’re proud to share that our IFPA Ambassador, Kathleen Gallant, delivered a powerful presentation at ACR Convergence 2025, held in late October in Chicago, Illinois. The event gathered rheumatologists from around the world to discuss advances in rheumatic and musculoskeletal diseases.

Kathleen shared her personal journey of living with psoriatic arthritis and her long-standing commitment to advocating for others living with the disease.

In her talk, she introduced the GoodCare for psoriatic arthritis — a project that turns real patient experiences into practical tools for healthcare professionals. It connects what people with psoriatic arthritis experience every day with how care is delivered, helping patients and clinicians better understand each other.

Through this initiative, IFPA and its partners co-created educational materials, podcasts, and a patient checklist designed to support treatment planning and shared decision-making, available in nine languages. The team also hosted an engaging webinar with a rheumatologist exploring how treatment guidelines can be used as tools for patient education.

The project has reached thousands worldwide, helping patients and healthcare professionals work together toward better, more personalized and inclusive care. Kathleen’s story and her message clearly resonated with the audience, showing that collaboration between patients and healthcare professionals can do more than improve health outcomes — it can changes lives.

A heartfelt thank you to Kathleen for representing the patient voice with authenticity and passion, to ACR Convergence for providing this platform, and to Board Member Helen Crawford and our Scientific Officer Sicily Mburu – for facilitating the event, as well as to our partners in this project Zsofi Bakonyi, for making this event possible.

👉 Read more about the GoodCare project here: https://eu1.hubs.ly/H0pxbcJ0

07/11/2025

Do you live with psoriasis or psoriatic arthritis, or support someone who does? The Psoriatic Disease Ambassador Program gives you the chance to share your story to raise awareness, fight stigma, and make a difference for the global psoriatic community.

We’re looking for passionate individuals from around the world — whether you have personal experience with psoriatic disease or are a caregiver, family member, or close friend. You don’t need prior advocacy experience. What matters is your willingness to speak up and learn the skills to inspire others.

Interested? Learn more and apply here: https://eu1.hubs.ly/H0psd340

06/11/2025

Too many people and communities remain underrepresented in psoriatic disease research. This lack of diversity limits understanding, slows innovation, and leaves people without equal access to care.

IFPA’s new global initiative, Breaking Barriers in Psoriatic Disease, aims to identify the obstacles that prevent diverse communities from participating in clinical research and inspire action to overcome them.

Working together with people living with psoriatic disease, healthcare professionals and institutes, researchers and advocacy organizations around the world, the project explores how stigma, culture, geography and socioeconomic factors influence participation and develops practical tools to foster inclusion and equity in research.

Together, we can build fairer pathways to care and ensure every voice is represented in psoriatic disease research.

👉 Learn more and join the project: https://eu1.hubs.ly/H0pqDDX0

05/11/2025

Psoriatic disease can be unpredictable and exhausting.

For Sofia, living with psoriatic disease can cause significant emotional distress.

Tune into our new podcast, Beyond The Flare, where we gather the global psoriatic disease community to share experiences, insights, and ways we can shape a healthier future together for people living with the condition.

Listen here: https://eu1.hubs.ly/H0pfZgY0

04/11/2025

People with psoriatic disease are at a higher risk for cardiovascular disease (CVD), and the risk increases with disease severity.

✔️Hypertension is more common in those with psoriatic disease, adding to CVD risk.
✔️Mild psoriatic disease increases the risk of major cardiovascular events by 28% and raises the likelihood of CVD-related mortality by 16%.
✔️With severe psoriatic disease, the risk of major cardiovascular events jumps by 62%, while CVD-related mortality rises by 75%.
✔️Younger people are especially vulnerable to these risks.

👉 Find out more in the report:
https://eu1.hubs.ly/H0pd4yp0

02/11/2025

People with psoriatic disease are more likely to have obesity, and the risk increases with disease severity. This can also impact treatment. Some medications may be less effective if a person has obesity.

Weight reduction may help reduce disease severity and improve treatment response.

👉 Explore more in the report:
https://eu1.hubs.ly/H0pd72J0

01/11/2025

People with psoriatic disease are twice as likely to develop type-2 diabetes. The odds increase with the severity of psoriatic disease.

Early screening and prevention can:
✔️Ease the burden of managing multiple chronic conditions
✔️Reduce healthcare costs and missed workdays
✔️Improve overall health and even psoriatic disease itself

👉 Learn more in the report:
https://eu1.hubs.ly/H0pd2Dz0

31/10/2025

We’re proud to have shared our voice in a blog for NCD Alliance, reflecting on our participation in the High-Level Meetings on NCDs and highlighting complexity of psoriasis as a disease and its ripple effects.

The article explores why listening to people living with psoriasis is essential — to improve care, reduce barriers and build health systems that truly meet patients’ needs.

A heartfelt thank you to NCD Alliance for this wonderful opportunity!

👉 Read the article: https://eu1.hubs.ly/H0pfDYs0

Adress

Slottsbacken 8
Stockholm
SE-16751

Webbplats

http://www.ifpa-pso.com/

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Medicin och hälsa