Scleroderma - Reset My Life

10/05/2026

This is what resilience looks like.
Living with Scleroderma for 15 yrs.

10/05/2026

🫒 What Cooking Oil Is Better for People with Scleroderma?

There is no single “perfect” oil, but in people with systemic sclerosis (scleroderma), many experts recommend oils that may help support:

❤️ Heart and blood vessel health
🔥 Lower inflammation
🌱 Better cholesterol balance
🍽️ Easier digestion

Because scleroderma can affect the blood vessels, gut, heart, and inflammation pathways, the type of fat used regularly may matter.

✅ Better Cooking Oil Choices

🫒 1. Extra Virgin Olive Oil (Best studied)
Often considered one of the healthiest choices.

Possible benefits:
Rich in monounsaturated fats
Contains polyphenols with anti-inflammatory properties
Supports cardiovascular health
May help protect blood vessels

Best use:

Salad dressing
Low–medium heat cooking
Drizzle on food

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🥑 2. Avocado Oil

A good option for higher heat cooking.

Benefits:
High smoke point
Rich in healthy monounsaturated fats
Mild flavor

Best use:
Stir-frying
Pan cooking
Roasting

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🐟 3. Oils Rich in Omega-3 (in moderation)

Examples:
Flaxseed oil
Perilla oil

These may help support anti-inflammatory pathways.

⚠️ Usually better for:

Cold dishes
Salad dressing
Not ideal for high heat.

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⚠️ Oils to Limit (Especially Frequent Use)
🍟 Repeatedly Heated Oils / Deep-Fried Oils

May increase:
Oxidative stress
Inflammation
Blood vessel damage

🧈 Trans fats / Partially hydrogenated oils

Associated with:
Worse cardiovascular health
Increased inflammation

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🤔 What About Coconut Oil?
Coconut oil is controversial.

Possible positives:
Heat stable
Contains medium-chain fats

Concerns:
High in saturated fat
May raise LDL cholesterol in some people

For people with:
Pulmonary hypertension
Heart disease risk
High cholesterol

…it may be better used only occasionally and in moderation.

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🍽️ Simple Practical Tip
Instead of focusing only on one oil:

✅ Use a balanced pattern:

Olive oil for daily use
Avocado oil for higher heat
Omega-3 sources from fish/nuts/seeds
Less deep-fried food

This aligns closely with a Mediterranean-style eating pattern, which is often discussed in autoimmune and cardiovascular health research.

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📚 References
Johns Hopkins Scleroderma Center
Arthritis Foundation – Anti-Inflammatory Foods
Harvard T.H. Chan School of Public Health – Fats and Cholesterol
American Heart Association – Healthy Cooking Oils

10/05/2026

09/05/2026

Shout out to my newest followers! Excited to have you onboard! Kim Hagan, Carolyn Whiteman, Kristine Kita Estill, Silvia Fernandez Garcia, نظير الطل, Karen Dayanna Acosta Padilla, Cindy Brad Sage, Emily Schiller Herzfeld, Jaydita Alicia Queen, Lucy Martinez, Marianne Totté, Cristina Biagini, Annette Massa, Juan Perez, Gaby Calle, Barbara Purse, Gosego Nolo Legae, Luciana Terracina, Regina Cassalia, Cassie Dillow Simpson, Sheila Whitecotton, Tiffany C Moss, Serena Gentili, Christy Lazaridis Molumby, Isabel Cristina Resende, Heather Fleming Traynor, Yeidy G. Orsini, Montilla Scleroderma, AndySmart Caroline, Tema Carpenter, Crawford Howard, Gloria Guzman, Paapa Akwasi Atuahene

06/05/2026

Early morning appointment today! ☀️
My mom has been super helpful in supporting me lately, we went to see my rheumatologist, Dr. Alexis Katz. She’s very smart and thorough with her care, the appointment was booked in December and I just got to see her May 5! I prefer all my doctors in one center, so I see a lot of physicians at University of Miami because they also have multiple infusion center locations and they can message each other about my plan of care. I have nearly a doctor for every body part and organ!

Keeping up and managing a chronic illness is a JOB! It’s many complicated emotional layers, combined with a lot of physical and mental anguish. But we keep moving. What’s the other option?

04/05/2026

Could you describe Scleroderma in One or Two words ?