18/01/2026
🦓💗 Things People Don’t See About Living With Neuroendocrine Cancer
Living with NET cancer means there’s a whole lot people don’t see.
They see me show up.
They see me functioning.
They see me smiling — sometimes even thriving.
What they don’t see is everything happening behind the scenes.
They don’t see the fatigue that settles into my bones and doesn’t go away with rest.
The depression and lack of motivation that can make even small tasks feel heavy.
The nausea that lingers.
The vomiting that shows up without warning.
The neuropathy.
The pain.
The constant effort it takes to pick myself up and keep going through the day.
They don’t see the dread around certain procedures — the prep, the meds that taste disgusting, the disruption to work and routine, the mental energy it all takes.
They don’t see what it’s like to live with a rare disease that many doctors don’t fully understand — and the responsibility that comes with that.
I have to be my own advocate.
My own voice.
I have to learn this cancer, track patterns, notice changes, connect dots, and speak up — clearly, confidently, and persistently — so that what I’m experiencing is taken seriously.
And that’s not always easy… especially when I look fine.
There’s a quiet fear that comes with that — the worry of being dismissed, misunderstood, or seen as dramatic or hypochondriacal simply because the illness isn’t visible. Because I don’t “look sick.”
What people don’t see is how much courage it takes to say,
“Something is different.”
“Something has changed.”
“This matters.”
“I hurt.”
“I need help.”
And yet — there’s another part they don’t see either.
The resilience that builds quietly.
The strength it takes to keep showing up.
The humor that still sneaks in (sometimes dark, sometimes inappropriate, always necessary).
The moments of joy that exist alongside the hard stuff — not instead of it.
Living with NET cancer has taught me that strength isn’t loud.
It’s steady.
It’s self-advocacy.
It’s refusing to disappear just because things are complicated.
If you’re living with something invisible — or loving someone who is — please know: there’s so much more beneath the surface than you might ever see.
If this resonates, feel free to save it and leave a 🦓 or 💛 below or share — community matters.