Cure GM1 Foundation

12/06/2025

A beautiful video about a hospice service for little Florence.
Fundraising for Florence

12/06/2025

The Access to Genetic Counselor Services Act (HR 6208) has been reintroduced in the U.S. House of Representatives. The bill would allow genetic counselors to be recognized as Medicare providers. This would expand patient access to genetic counseling and reduce delays in both testing and treatment decisions.

TAKE ACTION: https://mstr.app/3c198882-3b4b-4cec-a007-9d935c4119ce

12/05/2025

The House passed the Give Kids a Chance Act—now the Senate must act. Add your voice to help reinstate the Rare Pediatric Disease Priority Review Voucher Program and protect lifesaving progress for children.

Call your Senator to reauthorize this critical program now.

The EveryLife Foundation for Rare Diseases has created an easy way for advocates to take action: https://everylifefoundation.quorum.us/campaign/110385/

12/04/2025

Sweets, the holidays and an amazing cause!
SHOP: https://tinyurl.com/kb9tmerm

12/04/2025

Exciting progress, meaningful advocacy, and powerful community voices in our December Catalyst newsletter. Don't miss the important updates. Stay informed and stay involved:

curegm1.org/december-2025-cure-gm1-catalyst

12/03/2025

WOW! You helped raise $102,057 for our year-end and GivingTuesday fundraiser! Thank you for showing up, giving generously, and believing in our mission. We couldn’t do this without you.


Cure Kinley & Kennedy A Cure for Violet A Cure for Marley Sweet Iris

12/03/2025

Thank you! 😊 INCREDIBLE News! We urgently need your support — please give now and we can reach $100K in donations for Giving Tuesday!

curegm1.org/donate

12/02/2025

Today, on Giving Tuesday, we honor Violet’s beautiful life and the powerful legacy she continues to inspire.
In her name, we’re working urgently to advance research for GM1 — and today your impact can be doubled thanks to a $30K match.
Every gift today carries Violet’s light forward.
Give in her honor: curegm1.org/donate

A Cure for Violet David Law

12/02/2025

We need your help. Today only: your gift is doubled.
Our $30K Giving Tuesday match will accelerate critical GM1 research for babies and children.
We urgently need your support — please give now.
curegm1.org/donate

12/02/2025

This is incredibly important and hopeful. We need this this act to pass the Senate now.

Tell your Senator to support the Give Kids a Chance Act now ➡️ https://everylifefoundation.quorum.us/campaign/110385/

‼️The House of Representatives has passed the Give Kids a Chance Act (H.R. 1262)‼️

This key piece of legislation includes policies that will spur progress in therapy development for rare diseases, specifically through the reauthorization of the Rare Pediatric Disease Priority Review Voucher (PRV) Program. Today’s milestone comes as a result of community-driven advocacy and dedication from rare disease patients, families, organizations, and others who shared their stories and used their voices to ensure Congress took action. You made this happen! To learn more, visit our website ➡️ https://everylifefoundation.org/the-everylife-foundation-applauds-house-passage-of-the-give-kids-a-chance-act/

We're one step closer to reauthorizing the PRV Program. With the House of Representatives' support behind us, we must urge our Senators to follow suit! Tell your Senator to support the Give Kids a Chance Act now ➡️ https://everylifefoundation.quorum.us/campaign/110385/

12/01/2025

Tomorrow is GivingTuesday — and your impact can go twice as far.

Thanks to a generous $30K match, every dollar you give fuels urgently needed research for GM1, a devastating disease that primarily affects babies and children.

Your gift = doubled. Your impact = life-changing.

Together, we can push research forward and bring real hope to families who need it most.

Give today: curegm1.org/donate