Cure GM1 Foundation

Cure GM1 Foundation The Cure GM1 Foundation is dedicated to directly funding research for a cure for GM1 Gangliosidosis.

Awareness -> Funding -> Hope
Donate to Save Children: https://www.curegm1.org/donate
The only 501(c)(3) entirely dedicated to GM1, Founded by families impacted by GM1 gangliosidosis, a fatal disease that primarily impacts children.

Please join us in sending Josias heavenly birthday wishes today. We are so grateful for the time you were here, little o...
04/29/2026

Please join us in sending Josias heavenly birthday wishes today. We are so grateful for the time you were here, little one. We hold your family in our thoughts today.

Happy belated birthday, Mila! Your spirit shines bright and inspires all of us. We hope you had a wonderful day.
04/29/2026

Happy belated birthday, Mila! Your spirit shines bright and inspires all of us. We hope you had a wonderful day.

For GM1 families, research funding is not abstract. It is hope, action, and the path toward treatment options. Help rais...
04/28/2026

For GM1 families, research funding is not abstract. It is hope, action, and the path toward treatment options. Help raise awareness and support progress.

Thank you to Fiona's Kindness Project for the amazing support with your truly yummy eggroll fundraiser!
04/27/2026

Thank you to Fiona's Kindness Project for the amazing support with your truly yummy eggroll fundraiser!

Because of your kind and generous hearts, we raised $1,104 from the Egg Roll Fundraiser!
$400 for First Lutheran Schools Wish List.
$354 for Mayo Hospital La Crosse.
$200 for Cure GM1 Foundation.
$150 will be save to go towards the teddy bears that will be made for the Cure GM1 Foundation Conference.
Thank you! Thank you! Thank you!

Practical support can make daily life feel more manageable for GM1 families. Therapy, respite care, trusted providers, a...
04/27/2026

Practical support can make daily life feel more manageable for GM1 families. Therapy, respite care, trusted providers, assistive tools, and community connection all matter.
LEARN MORE: .curegm1.org/gm1-family-resources

No family should face GM1 alone. Your gift helps advance research, raise awareness, and support families living with thi...
04/26/2026

No family should face GM1 alone. Your gift helps advance research, raise awareness, and support families living with this devastating disease.
GIVE: curegm1.org/donate

Less than a month to go until GM1 Day. May 23rd is a day to raise awareness, honor families, and help bring GM1 ganglios...
04/25/2026

Less than a month to go until GM1 Day. May 23rd is a day to raise awareness, honor families, and help bring GM1 gangliosidosis into the conversation.
LEARN MORE: curegm1.org/gm1day�

GM1 gangliosidosis is a fatal disease that affects the body’s ability to break down gangliosides, leading to buildup in ...
04/24/2026

GM1 gangliosidosis is a fatal disease that affects the body’s ability to break down gangliosides, leading to buildup in cells, especially in the brain and spinal cord.
Awareness helps families feel seen and supports the push for research and treatment development.
LEARN: curegm1.org/about-gm1

We are at the California State Capitol in May for .We are going to be recognized. We are going to be heard. And we are ...
04/23/2026

We are at the California State Capitol in May for .
We are going to be recognized. We are going to be heard. And we are going to ask our legislators to support a newborn screening pilot program for GM1 gangliosidosis because screening could save lives.
"We should not penalize babies because no treatment exists. Screening could help us find one."
SIGN ON: https://tinyurl.com/2tbzxc26

Sign on and Share
04/22/2026

Sign on and Share

Add GM1 Gangliosidosis to the newborn screening in California

Most GM1 families wait years for a diagnosis. By then, damage is already done.Timing matters. Cure GM1 funded the world'...
04/22/2026

Most GM1 families wait years for a diagnosis. By then, damage is already done.
Timing matters. Cure GM1 funded the world's first newborn screening assay for GM1. Two babies found before symptoms began.
SEE: curegm1.org/nbs-gm1

Address

PO Box 6890
Albany, CA
94706

Telephone

+15103062460

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