Cure GM1 Foundation

01/23/2026

Join us in urging your Senators to support the funding package and reauthorize the Rare Pediatric Disease Priority Review Voucher Program. NOW is the time to push again.

https://everylifefoundation.quorum.us/campaign/110385/

01/22/2026

Rare Disease Day is coming up!
Support the fight against GM1 with Cure GM1 swag. Every purchase helps drive awareness and research forward.
Shop. Wear. Advocate: curegm1.org/gm1-store

01/22/2026

The vote is coming again.
Now is the time to act! Tell your members of Congress to support this healthcare package and reauthorize the PRV Program ➡️ https://everylifefoundation.quorum.us/campaign/110385/

Our community’s advocacy is working! Congress is listening to the powerful outreach from our rare disease community.

Lawmakers have released a draft legislative package that includes a five-year reauthorization of the Rare Pediatric Disease Priority Review Voucher (PRV) Program, increased funding for rare disease research, and other important healthcare priorities that matter deeply to patients and families. If passed by Congress and signed by the President, the proposed legislation would fund key health agencies, including the NIH, CDC, and HRSA, through September 30, 2026., including a $10 million increase in National Center for Advancing Translational Sciences funding dedicated to rare disease research.

Now is the time to act! Tell your members of Congress to support this healthcare package and reauthorize the PRV Program ➡️ https://everylifefoundation.quorum.us/campaign/110385/

To learn more visit: https://everylifefoundation.org/prv-reauthorization-included-in-draft-congressional-appropriations-package/

01/21/2026

The lived experience of GM1 matters. When caregivers share openly, we create connection, awareness, and community in spaces where voices are often unheard. Together, we turn isolation into solidarity.

JOIN on FB: https://tinyurl.com/28psn6ey

01/20/2026

Finding support and reliable information after a devastating diagnosis can feel overwhelming—that’s why resources matter.

👉 Visit: curegm1.org/gm1-family-resources

01/19/2026

"Life's most persistent and urgent question is, 'What are you doing for others?'" -MLK Jr.

01/18/2026

Yum! Chocolate, a gift, and an amazing cause.

SHOP for GOOD: https://tinyurl.com/mwr9kr9u

01/17/2026

Did you know that the majority of rare diseases lack a dedicated patient advocacy group? This leaves many individuals navigating diagnosis, care, and research without a community.

Whether you’re a caregiver, clinician, or ally, your voice can drive positive change.

MORE: curegm1.org/take-action

01/16/2026

It's time to get ready for Rare Disease Day by ordering your awareness gear in time for the big day next month. New designs are now available!

SHOP NOW: curegm1.org/gm1-store

01/15/2026

We’re committing $1.4 million toward enzyme replacement therapy (ERT) this year alone which is the largest investment in a single project that Cure GM1 has ever made.

READ MORE: https://conta.cc/4qpSZYV
PROJECT: curegm1.org/ert-project
GIVE: curegm1.org/donate

01/14/2026

Our unwavering commitment over time is necessary to make truly meaningful progress to advance research, drug development, awareness, and advocacy. Will you join us in our fight?

LEARN MORE: curegm1.org/ert-project

01/13/2026

This year, you can help change lives.

Every show of support brings us closer to hope, progress, and chances at life.

Learn more or support the ERT Project: curegm1.org/ert-project