Cure GM1 Foundation

Cure GM1 Foundation The Cure GM1 Foundation is dedicated to directly funding research for a cure for GM1 Gangliosidosis.

Awareness -> Funding -> Hope
Donate to Save Children: https://www.curegm1.org/donate/
The only 501(c)(3) entirely dedicated to GM1, Founded by families impacted by GM1 gangliosidosis, a fatal disease that primarily impacts children.

Behind every ultra-rare disease is a story — a person, a family, and a community searching for answers. Though each cond...
10/28/2025

Behind every ultra-rare disease is a story — a person, a family, and a community searching for answers. Though each condition may be ultra-rare, together, ultra-rare diseases impact millions worldwide.

LEARN MORE: curegm1.org/about-gm1

Honored to represent the GM1 community at the Biotechnology Innovation Organization PACE Changemakers event in DC. Top...
10/27/2025

Honored to represent the GM1 community at the Biotechnology Innovation Organization PACE Changemakers event in DC. Topics include breaking down barriers so patients can have access to innovative treatments.

ABOUT: https://tinyurl.com/y9ttbnw5

"A healthy lysosome is like a clean kitchen — you throw away the garbage at the end of the day, and the space keeps work...
10/26/2025

"A healthy lysosome is like a clean kitchen — you throw away the garbage at the end of the day, and the space keeps working. In lysosomal storage diseases, nothing gets thrown away, and the kitchen becomes unusable." -Gouri Yogalingam, board member
MORE: curegm1.org/about-gm1

Whether it's a slower progressing form of GM1 gangliosidosis or the rapid and most severe early infantile form, GM1 has ...
10/25/2025

Whether it's a slower progressing form of GM1 gangliosidosis or the rapid and most severe early infantile form, GM1 has been described as torture by many caregivers.
LEARN MORE and help: curegm1.org/about-gm1

"As many times as you’ve told your story, someone is hearing it for the very first time — and they may be in a position ...
10/24/2025

"As many times as you’ve told your story, someone is hearing it for the very first time — and they may be in a position to create change." David Law A Cure for Violet

Make a difference today: curegm1.org/take-action

Cure GM1 is proud to share that we’ve invested over $750,000 to date toward the development of enzyme replacement therap...
10/23/2025

Cure GM1 is proud to share that we’ve invested over $750,000 to date toward the development of enzyme replacement therapy (ERT) for GM1 gangliosidosis.

This investment reflects our ongoing commitment to accelerating research, supporting innovation for GM1.

LEARN MORE: curegm1.org/ert-project

Cure GM1 is proud to have launched a simplified and streamlined IRB approved census / registry. Families, please consid...
10/22/2025

Cure GM1 is proud to have launched a simplified and streamlined IRB approved census / registry. Families, please consider participating.
LEARN MORE: curegm1.org/census

"Even if we are ultra-rare, every little bit of telling someone about GM1 really matters. It’s through hope, community, ...
10/21/2025

"Even if we are ultra-rare, every little bit of telling someone about GM1 really matters. It’s through hope, community, and awareness that we can drive research forward." -Christine Waggoner

JOIN US: curegm1.org/take-action

"GM1 gangliosidosis is a devastating disease that was taking our daughter away from us, piece by piece. But with the rig...
10/20/2025

"GM1 gangliosidosis is a devastating disease that was taking our daughter away from us, piece by piece. But with the right treatment and support, children like Nella can not just stabilize, they can thrive." -Nella's Dad

READ and SHARE: curegm1.org/nellas-story

Did you know that for 10+ years, Cure GM1 has contributed to projects to help further drug development and to encourage ...
10/19/2025

Did you know that for 10+ years, Cure GM1 has contributed to projects to help further drug development and to encourage investment into treatments for GM1 gangliosidosis?

LEARN MORE: curegm1.org/ert-project

Address

PO Box 6890
Albany, CA
94706

Telephone

+15103062460

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