Cure GM1 Foundation

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United States
Albany, CA
Cure GM1 Foundation

The Cure GM1 Foundation is dedicated to directly funding research for a cure for GM1 Gangliosidosis.

Awareness -> Funding -> Hope
The only 501(c)(3) entirely dedicated to GM1, Founded by families impacted by GM1 gangliosidosis, a fatal disease that primarily impacts children.

07/23/2025

May sweet Gael rest in peace and his family find comfort at this truly difficult time.

“The reality is that you will grieve forever. You will not ‘get over’ the loss of a loved one; you will learn to live with it. You will heal and you will rebuild yourself around the loss you have suffered.” -Elisabeth Kübler-Ross

READ MORE: curegm1.org/gaels-story

07/22/2025

To change the future of GM1, we need to join forces to advance treatments, and that's what this conference is about: bringing together the world's leading GM1 researchers, experienced caregivers, and families at every stage of their GM1 journey.

READ MORE: https://conta.cc/4eANBxA
REGISTER: curegm1.org/conference

07/21/2025

"Until she was 14, everyone thought she had some form of myopathy and heart problems, but in 2008 she was diagnosed with GM1 gangliosidosis. For her parents, for us and for her, it was a shock."

READ MORE: curegm1.org/solomijas-story

07/19/2025

Will you join us in supporting the creation of an arsenal of approaches to treat a complex and truly devastating disease? All treatment modalities may ultimately be required. Take action.
LEARN MORE: curegm1.org/ert-project

07/18/2025

"Children like Kiaan are running out of time — and they deserve a future. GM1 gangliosidosis is a rare, fatal genetic disease that most people — even doctors — have never heard of. There’s no cure yet, and very little funding, simply because it’s rare."

READ AND SHARE: curegm1.org/kiaans-story

07/17/2025

Choose from beautiful trips to help support our critically important mission and an amazing cause! Net proceeds are donated to Cure GM1 and to research!
BID HERE: https://givebutter.com/c/UfDWzk/auction
(Be sure to click on the auction button at the top of the page)

07/16/2025

Every little bit counts and matters. Together we can contribute to meaningful change. Also, Charity Miles can be used whenever you choose.
MAKE A PLAN FOR OUR SEPT FUNDRAISER: curegm1.org/do-it-for-gm1
JOIN: curegm1.org/fundraise-with-the-charity-miles-app

07/15/2025

We are thrilled to share updates regarding our team at the Cure GM1 Foundation. Thank you to Gouri and Megan, two wonderful volunteers who are making a difference for our cause. See curegm1.org for their bios.

07/14/2025

Join us for two important events!

1. TODAY, we will hear about the AZAFAROS B.V. Phase 3 trial. Mail info@curegm1.org to be added to the invite!

2. REGISTER NOW for our annual community conference! In-person registration ends 7/24 and virtual registration closes on 7/31. We can't wait to see you! SEE: curegm1.org/conference

07/11/2025

Choose from beautiful trips to help support our critically important mission and an amazing cause! Net proceeds are donated to Cure GM1 and to research!

BID HERE: https://givebutter.com/c/UfDWzk/auction

(Be sure to click on the auction button at the top of the page)

07/10/2025

We are incredibly thankful to all the speakers for our annual hybrid conference! There's still time to join. Don't miss out on this incredibly unique and important meeting!

REGISTER and MORE INFO: curegm1.org/conference

07/09/2025

We are absolutely heartbroken for Daxton's family. His family shared his story to spread awareness and to create a legacy of hope.

READ MORE: curegm1.org/daxtons-story

Address

Albany, CA

Telephone

+15103062460

Website

http://www.curegm1.org/

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